Breaking News Of Interest Or Help To You 2003 To 2004


05/24/04 - DAC News V4-#64 - VA Surplus - Time Out e-zine - Dis. Nurses - MD corrupt-> 
05/20/04 - DAC News V4-#63 - SS Benefits - Grants - Kids - Rural Housing - Kaine - ADA-> 
05/17/04 - DAC News V4-#62 - ADA Victory - Stair-lift - MS Rx? - IDEA - AT Book - Sara-> 
05/13/04 - DAC News V4-#61 - Free w/chairs - Job - Brown v Board - OCD - ADA - EXPO-> 
05/12/04 - DAC ACTION ALERT News V4-#60 - Full Funding of Section 8 - Support SB 333
05/10/04 - DAC News V4-#59 - VA Waiver - FAMIS - Autism - ADA Info - May Info -> 
05/04/04 -
DAC News V4-#58 - Waivers, PAS, Grants - Voting - Housing - NVRC - Job->
04/29/04 - DAC News V4-#57 - Medicare Cards - Grants - Freaks? - Eye Exams - Funds->
04/22/04 - DAC News V4-#56 - Lil' Girl Needs Friend - No Rx's - Kids & Food - Webstuff-> 
04/19/04 - DAC News V4-#55 - VA Sneaks No Rx Bill - WatchingJustice - Awards->
04/15/04 - DAC News V4-#54 - Warner should veto HB632 - HireAbilities - CA Cuts Homecare-> 
04/13/04 - DAC News V4-#53  snap4kids - Deaf Rally - March - DRS - ADA - Mexico->
04/06/04 - DAC News V4-#52 - Rural Housing Grants - VADV - Info - Kids - CMS - Autism->
04/02/04 - DAC News V4-#51 - VA Rep's Violate Olmstead - Expo - PAS - Survey - Funds-> 
03/29/04 -
DAC News V4-#50 - NJ Gov. on $ - VA Del. on Budget - MS - HEATH - CMS Retracts> 
03/23/04 - DAC News V4-#49 - CMS Policy - No VA Budget - ADAPT - KIDS - M.S. - PASS->
03/19/04 - DAC News V4-#48 - VA Del. Won't Listen - PFAW - MiCASSA - Free Webcasts-> 
03/13/04 - DAC News V4-#47 - NH Escape - Expensive Drugs - Study - Rental $ - HHS-> 
03/09/04 - DAC News V4-#46 - Hm Mods - VA ADAPT - Budget - Jobs - AT - NH Loses->
03/07/04 - DAC News V4-#45 - Autism - Serices - Freedom Award - Disabilities Grant->
03/05/04 - DAC News V4-#44 - ASL Singles - VADV - Medicare - Senior Care - ADA info->
03/01/04 - DAC News V4-#43 - ADAPT March - Bullies - Rx Imports - Living Trust - Grants->
02/25/04 - DAC News V4-#42 - Warner V.P.? - Educate - Letters - Medicaid - Deaf Cap. ->
02/20/04 - DAC News V4-#41 - Injured Website - Cuts for CC - Tests? - HOME - ADA - VRS-> 
02/13/04 - DAC News V4-#40 - ADA Info - Websites - Grants etc. - Tests - Reagan 93->
02/05/04 - DAC News V4-#39 - Actors w/Down Syndrome - Dis. Com. - U.D. - Tickin' Bomb-> 
01/29/04 - DAC News V4-#38 - March on Richmond - Web Resources - Vacations - PhysEd-> 
01/27/04 - DAC News V4-#37 - Drugs - Uninsured - CBS Medicaid - Disabilities Expo - Kids ->
01/20/01 - DAC News V4-#36 - WrightsLaw - Kids Are People Too - Cash/Counseling - ADA->
01/16/04 - DAC News V4-#35 - SenateCam - Kids News - Come Together - Lady Needs Advice
01/14/04 - DAC News V4-#34 - PMA Action Call - ADA case - Deaf News - Old ladies poem-> 
01/09/04 -
DAC News V4-#33 - Save ADA - ADA Info - Request 4 Comment - Elderly #2->
01/05/04 - DAC News V4-#32 - Eugenics SOL's - TN vs Lane - SSA News - Elderly Bad News #1-> 2004
12/19/03 - DAC News V4-#31 - Happy Holidays - Freebies - Conf. - MR - Learning Disabled-> 
12/16/03 - DAC News V4-#30 - Newsletters - ADA Alert - VBPD Funds - Medicare Changes->
12/12/03 - DAC News V4-#29 - Soup 4 Needy - LTC - AAMR - Grants - ADA Declining?-> 
12/04/03 - DAC News V4-#28 - Bad Drug - Free Computers - HBOT - HOME - Grants->
11/25/03 - DAC News V4-#27 - Eugenics Apology - Housing Vouchers - Contracts - FL ->
11/20/03 - DAC News V4-#26 - DAC Wishlist - Action - Lynchburg Forum - Events - PCS->
11/13/03 - DAC News V4-#25 - PMA - NFI Forum - Get Them Out - Web Resources -> 
10/28/03 -
DAC News V4-#24 - SS Raise - Terri Schiavo - Request 4 Proposals - Expo->

10/11/03 - DAC News V4-#23 - Metro - Proclamation - SS News - Athletes Grants - ADA->
09/24/03 - DAC News V4-#22 - Please Help - Ability Camp - Bridges4kids - Medicaid ->
09/15/03 - DAC News V4-#21 - Hurricane Watch - Canadian Drugs - March/rally - SS News ->
09/10/03 - DAC News V4-#20 - Kansas Ruling - Survey - Betts Award - Meds Exp? - Work lose Medicaid?->
09/03/03 - DAC News V4-#19 - HBOT Grants - Dis. Expo - Film Fest. - Hearne Awards->
08/26/03 - DAC News V4-#18 - Stutter - RecruitABILITY - ADAPT RALLY - SS News->
08/19/03 - DAC News V4-#17 - Free HBOT - ADAPT Rally - Grants - Left to Die in Dark->
08/11/03 - DAC News V4-#16 - Access Screening - Women w/D's Forum - Loans - SS->
08/06/03 - DAC News V4-#15 - Defending Disability Remark - DME#2 - Voting - IBM -> 
08/04/03 - DAC News V4-#14 - Disabled Activist - DME - Dyslexia - Native Amer's. - Rx's->
07/29/03 - DAC News V4-#13 - HBOT - CHCS News - Reading Problems - Suit - Jobs->
07/23/03 - DAC News V4-#12 - Elderly Driving - NH's - Eugenics - Trainers Needed - Deaf->
07/18/03 - DAC News V4-#11 - $10B to Medicaid - ADA - Safeyouth - SS News - Webcast->
07/12/03 - DAC News V4-#10 - NJ Resolution - Medicaid Cards - Stories - Blind - Hospice-> 
07/09/03 - DAC News V4-#09 - Cir. of Support - Rally - Slow CBW's - Age/Care - Medi Rx's-> 
07/05/03 - DAC News V4-#08 - ADA Gala - Links for Deaf - NJ Listens - Gifts - Writers ->
06/26/03 - DAC News V4-#07 - CA Sidewalks - TN Behind - NCD - Job - Kids - OR Payraise-> 
06/24/03 - DAC News V4-#06 - #991 - TN v. Lane - ADA Updates - 30 Condo's - NCAHB->
06/20/03 - DAC News V4-#05 - Write NJ Rep's - ADA - UN - CBC Waivers - Univ Health-> 
06/16/03 - DAC News V4-#04 - IDEA S1248 - TC Observer - HUD & DOJ - Pryor - AZ LTC-> 
06/12/03 - DAC News V4-#03 - Caring Communities - NJ Adv's Fight - Study - Visit -> 
06/09/03 - DAC News V4-#02 - Ability Camp - HBOT Log - ADA Gala - News - Grant->
06/07/03 - DAC News V4-#01 - DAC Celebrates 4th Anniversary - Focus Group - NCD - ADA->





++
========================================================
DAC News V4-#64   Monday, May 24, 2004   
========================================================
It amazes me that just less than 3 weeks ago our infamous VA legislators predicted gloom and despair as the state was running out of money and HAD to raise taxes or user fees as they're referred too. Now, after the taxes were raised it's reported that our state will end up with a SURPLUS and the deficits suddenly disappeared. Our revenue collections are coming in at 9.5% growth which is 41% higher than predictions. This is before our new tax hikes even take effect. Some scam huh?

Well, if we have all of those extra dollars its high time to put them towards healthcare reform as in giving caregivers a LIVING wage and GROUP health insurance plan along with increasing the Personal Maintenance Allowance (PMA) that stakeholders are subject to live on as in poverty conditions now. Another disturbing factor that has been ongoing in Virginia for years is the abuse in Assisted Living Facilities as told by this series of Washington Post stories where you can read in depth here: http://www.washingtonpost.com/wp-dyn/metro/va/homes/
Certainly a LIVING WAGE would help alleviate these kinds of horror stories in this state as well as other states.


The same abuses occur in Nursing Homes too so it should be high on Governor Warner's agenda to see that instead of a non living wage to caregivers that are hard to find and survive without a healthcare plan, that he puts those funds towards complying with the Olmstead Decision. This state ranks almost last in healthcare needs for the vulnerable and this crisis will keep on escalating until someone has the guts to say enough already. The time to start is today, not tomorrow or next year because we don't need to be brought back to the eugenics era with our healthcare requirements. Lets see were this windfall goes -- time will tell and so will I:)  

NEXT
Here's a great newsletter for families and professionals...enjoy:)

The Time Out for Families Gazette is an e newsletter for families and professionals who have a child with special mental health/behavioral need in their lives. It is a connection that includes 500+ people and is growing steadily.

The content is reader supported, which means that YOU have the opportunity to have your voice be heard! There are even submission options for those of you who break into a cold sweat when it comes to being asked to write anything.

To receive a copy of The Time Out for Families Gazette e newsletter, or to ask any questions you may have about sharing your ideas for publication, kindly inquire to:

Christine E. Walker
ctmom05@yahoo.com
The Time Out for Families Group


AND
With the shortage of nurses here is an opportunity for the disabled to once again prove they are more than capable of working only 'give me' types of jobs. Disabled doesn't mean dead and I encourage those interested in checking out this site.

www.ExceptionalNurse.com is a resource network for nurses and nursing students with disabilities. It provides links to disability-related organizations, technology, equipment, legal resources, mentors and related articles helpful to nurses, educators and disability services staff.

Donna C. Maheady, Ed.D, ARNP
Founder and President
www.ExceptionalNurse.com
(561) 627-9872 (561) 776-9254 (fax)
(561) 776-9442 (TTY)
Author of Nursing Students with Disabilities Change the Course available at: http://www.eplibrary.com

AND
Bill to Extend Au Pair Program to Include Personal Assistance
The experiences of a Tennessee lawyer spurred the introduction of a bill that would expand the au pair program to allow foreign students to work in the U.S. providing people with disabilities with personal assistance. Read this article in the Tennessean:
http://www.tennessean.com/nation-world/archives/04/04/50418585.shtml?
Element_ID=50418585   (now if we could only afford to pay them a living wage..kk)
(thax DS News)

NEXT
You've probably heard of Visitability http://www.concretechange.org But have you heard about the EasyLiving Home Program? http://www.easylivinghome.org

The ELH Coalition is planning a replication conference, if interested, go to: http://www.easylivinghome.org/outofstateform.htm This program goes to show all our nervous builders and scared bureaucrats that homes ranging from $100k to $500k or more can be made accessible and NOT hinder the appearance but rather make it more sellable and pleasing to everyone at little to no expense. I hope our county supervisors take note:)

AND
Charges dropped yet held 6 years
http://www.baltimoresun.com/news/local/bal-te.md.lockup21may21,0,2882548.sto
ry?coll=bal-home-headlines

Read this story from a woman trying to regain her twin son's from the abusive Maryland Social Service system. What's with this Governor Erhlick, its not what you promised when campaigning??????
http://www.prweb.com/releases/2004/4/prweb127959.php

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. MESSAGE FROM ADAPT
2. WALKING ABILITY IMPROVES IN PARALYSIS STUDY
3. COLLEGE SCHOLARSHIPS AVAILABLE NOW
4. REASONABLE ACCOMMODATIONS UNDER THE FAIR HOUSING ACT
5. MEDICAID -- GOOD MEDICINE FOR STATE ECONOMIES
6. SPEECH/LANGUAGE DISORDERS
7. JOINT ACCOUNT NOT SUBJECT TO EXECUTION
========================================================
********************************************************
MESSAGE FROM ADAPT
********************************************************  
Dear Advocate:

ADAPT will be ranking (survey at end of this message) the 2004 "Ten Worst States" in providing home and community services and supports (HCBSS) compared to nursing home and other institutional services.  This ranking will be released in mid July, 2004.

This assessment will combine information taken from statistical data released to the public on state spending in various categories as well as the views of advocates in the states who experience "the good, the bad and the ugly" of our states long term care system.

To assist us in this ranking we would appreciate it if you would fill out the survey and return it to us by June 30, 2004.

Your support will assist us in accurately ranking your state.

All individual responses will be confidential.

For an Institution Free America,

ADAPT        

1339 Lamar Sq Drive  Suite 101          
Austin, Texas  78704

bkafka@juno.com                  

512/442-0522    fax

PS If you want the survey sent to you as an attachment, let me know.

################################################################

2004 HCBSS Survey

This is an informal survey to get your assessment of how your state ranks in providing home and community services and supports (HCBSS).

Your answers will be used to develop an advocate’s view of what is really going on in your state.  All answers will be kept confidential.   

Thank you!

NAME ____________________________________________________________________

ADDRESS ____________________________________________________________________

CITY, STATE, ZIP ______________________________________________________________


e-mail
_______________________________________________________________   


PHONE ________________________________________________________________

ORGANIZATION _______________________________________     STATE _______________

1.  From your perspective would rank your state as:

     a)  in the top 10 states providing services and supports
     b)  in the top 20
     c)  in the top 30
     d)  in the top 40
     e)  one of the 10 worst

2. Would you rate your state's ongoing response to the Olmstead decision as:

     a)  excellent
     b)  good
     c)  fair
     d)  poor
     e)  bad

3.  Would you rate your state's involvement of advocates and advocacy organizations in the development and evaluation of community service programs as:

     a)  excellent
     b)  good
     c)  fair
     d)  poor
     e)  bad

4.  Would you describe the amount of consumer direction in your community services programs as:

     a)  excellent
     b)  good
     c)  fair
     d)  poor
     e)  bad

5.  If someone needs 30 hours of personal attendant services (pas) and would like to move to your state, would you:

    a)  encourage them to come
    b)  warn them to go to another state
    c)  tell them about your long waiting lists

6.  Does your state Nurse Practices Act allow delegation or assignment of traditional health/nursing tasks?:

     a)  yes
     b)  no
     c)  other (please describe) _________________________________

7.  Does your state pay a livable wage and/or benefits to personal attendants?

     a)  yes
     b)  no

8.  Is your state pursuing a money follow the person concept to assist in moving folks from nursing homes and other institutions to the community?

     a)  yes
     b)  no

9.  Please rank from 1-5 how services are provided to the populations listed below.

     5-Excellent        4-Good        3-Fair     2-Poor        1-Bad

     a)  cognitive disabilities                                    1  2  3  4  5
     b)  developmental disability - physical              1  2  3  4  5
     c)  physical disability                                         1  2  3  4  5
     d)  mental health disability                                1  2  3  4  5
     e)  sensory disability                                          1  2  3  4  5
     f)  multiple disabilities - physical/mental           1  2  3  4  5

10. Comments

Thank you for taking the time to fill out this form.  Please return by June 30th:

ADAPT
1339 Lamar Sq Drive  Suite 101
Austin, Texas  78704
bkafka@juno.com

********************************************************
WALKING ABILITY IMPROVES IN PARALYSIS STUDY
********************************************************
Walking Ability Improves in Miami Paralysis Study

Sun May 23, 1:16 PM ETAdd Health - Reuters to My Yahoo!
By Jane Sutton

MIAMI (Reuters) - Rats with spinal cord injuries regained 70 percent of their normal walking function with a three-part treatment hailed as a breakthrough in paralysis research at the University of Miami School of Medicine.

The study at the university's Miami Project to Cure Paralysis, due to be published on Monday in the June issue of the journal Nature Medicine, produced results "by far greater than what we've seen in anything else," said the principal researcher, Dr. Mary Bartlett Bunge.

"It opens up a potential new avenue of treatment for human spinal cord injury," said Bunge, who declined to speculate when human trials might be attempted.

The spinal cord carries messages between the brain and the muscles through a network of nerve cells. Normally, chemical signals prevent those nerves from regrowing, resulting in paralysis when the network is severed by an injury. Regrowing nerve cells and reconnecting them is the holy grail of spinal cord research.

The Miami study involved hundreds of animals with crushing injuries to the thoracic region of the spinal cord, which mainly causes loss of control of the legs and is the most common form of injury among the 243,000 people in the United States living with spinal cord injuries, the researchers said.

They transplanted cells known as Schwann cells from the peripheral nerves, where regeneration does occur, to create a bridge across the damaged area of the spinal cord and promote the growth of axons, the nerve fibers that transmit messages.

Those cells also make the protective myelin sheath that insulates nerve fibers.

GROWTH STOPPED TOO SOON
In earlier research, such grafts did promote the growth of new nerve fibers across and through the damaged areas of the spinal cord, but they stopped growing too soon.

So researchers combined the grafts with two other treatments -- injections of cyclic AMP, a messenger molecule that guides the nerve cells to grow their connecting fibers, and Rolipram, which prevents the breakdown of cyclic AMP.

"The cyclic AMP hangs around longer and can be more effective," Bunge said in an interview on Friday.

Rolipram was developed as an antidepressant by Germany's Schering AG and is also being investigated as a possible treatment for multiple sclerosis. After eight weeks, the rats that did not receive the treatment could occasionally take a halting step but could not take one step after another, Bunge said.

Those that received the treatment had regained 70 percent of their walking function, "a striking improvement," Bunge said. They could step consistently, and had better fine motor control and coordination. "The hind limbs knew what the fore limbs were doing," said Bunge, who designed the study with her colleague, Dr. Damien Pearse.

The triple-treated animals also had more tissue in their spinal cords than those without the treatment, suggesting it had stopped the secondary tissue loss that normally occurs after a spinal cord injury, Bunge said. And the triple-treated rats had a 500 percent increase in nerve fibers in the graft area, she said.

"Each of the pieces of the (Miami) strategy have been hailed as 'promising' in earlier reports, but the behavioral effects were not huge. With the right combination, the sum is now proving to be much greater than the parts," said Dr. Naomi Kleitman, a program director for spinal cord injury research the National Institute of Neurological Disorders and Stroke, a component of the National Institutes of Health.
(thax cabbie)

********************************************************
COLLEGE SCHOLARSHIPS AVAILABLE NOW
********************************************************
If you know someone who wants to go to Hampton University and needs assistance please forward. We would hate to lose any scholarship because of lack  of participation.

Please help get the word out to current Hampton students that ESPN is considering taking back two $10,000.00 scholarships because of lack of applicants; they only got two applications.  I told the lady at ESPN the kids must not know about it and begged her not to pull it even though her boss  is getting peeved that they are wasting the scholarship.

If anyone knows of a deserving student please let the kid know about it and contact  renee.antoine@espn.com.

Mercedes-Benz USA Launches Scholarship Program

Deadline: June 11, 2004

Mercedes-Benz USA has launched a national scholarship program to provide educational assistance to students who will be the first in their families to attend college.

The program, Drive Your Future: The Mercedes-Benz USA Scholarship Program, will make $500,000 in funding available to students through support from MBUSA and the fundraising activities of its dealers.

Graduating high school seniors who will be the first in their families to attend college or vocational school are invited to apply for one-time, $2,000 scholarships. Three students in each state will receive scholarships in addition to students from various youth organizations. More than 250 scholarships will be awarded in 2004.

Scholarship applicants will be evaluated based on academic achievement (a grade-point average of 3.0 or higher), financial need, demonstrated leadership, and participation in school and community activities. Honors, work experience, goals and aspirations, and unusual personal or family circumstances will also be considered.

Detailed program information and application forms are available from the Mercedes-Benz USA Web site.

RFP Link: [ http://www.mbusa.com/drivefuture

********************************************************
REASONABLE ACCOMMODATIONS UNDER THE FAIR HOUSING ACT
********************************************************
The following information is forwarded to you by the Great Lakes ADA and Accessible IT Center for your information:

The U.S. DEPARTMENT OF JUSTICE CIVIL RIGHTS DIVISION AND U.S. DEPARTMENT OF HOUSING AND URBAN DEVELOPMENT OFFICE OF FAIR HOUSING AND EQUAL OPPORTUNITY ISSUED A JOINT STATEMENT

RE: REASONABLE ACCOMMODATIONS UNDER THE FAIR HOUSING ACT ON MAY 17, 2004.

This document can be viewed on-line at:
HTML version: http://www.usdoj.gov/crt/housing/jointstatement_ra.htm
PDF version: http://www.usdoj.gov/crt/housing/joint_statement_ra_5-17-04.pdf
(thax B.G.)

********************************************************
MEDICAID -- GOOD MEDICINE FOR STATE ECONOMIES
********************************************************
NOTE: Another good reason to pay caregivers a LIVEABLE wage....kk:)

Families USA has just published Medicaid:

Good Medicine for State Economies, 2004 Update.

An update of our January 2003 report, the 2004 edition shows what kind of impact state Medicaid spending will have on business activity, jobs, and wages in 2005.
The report includes data for every state.

But wait -- there's more! As many of you know, last year, Congress provided $10 billion in fiscal relief to states through increased federal Medicaid funding. That fiscal relief is scheduled to end on June 30, 2004. Our new report shows how much extending that fiscal relief through the end of fiscal year 2005 would help strengthen state economies by generating even more business activity, jobs, and wages.

Last year's report was used by advocates in many states to argue against cuts to their state Medicaid programs. We hope this year's report proves to be as useful in efforts to protect Medicaid coverage for the millions of people who rely on it every day. To help with those efforts, we've also updated our Medicaid Calculator to reflect the new fiscal year 2005 Medicaid multipliers. You can use this calculator to determine how many jobs and how much business activity and wages will be lost as a result of cuts to Medicaid funding or how state economies will gain from new investment in Medicaid.

To view our updated report, please follow this link. To use the Medicaid Calculator, click here.

Rachel Klein
Families USA

********************************************************
SPEECH/LANGUAGE DISORDERS
********************************************************
Speech/Language Disorders
Sometimes learning disabilities are disguised as a speech or language disability. Find out about the characteristics and the best practices to support the language or speech delayed student....read more

   More Topics
Assistive Technology and Software Applications

Special Education Assessment

Behavior aned Emotional Disabilities

Disabilities in Special Education

Literacy - Reading and Writing Strategies for LD Students

FAQs For Parents & Teachers

Exceptionalities and Disabilities


And the Report Says.....
Recently released report on special education that has the potential to impact over 6 million children and youth.....read more....read more

Better Than Worksheets!
Use these graphic organizers in your classroom with students with learning disabilities to help to organize information and ensure that learning is more permanent....read more
(thax about.com)

********************************************************
JOINT ACCOUNT NOT SUBJECT TO EXECUTION
********************************************************
Joint Account Not Subject to Execution for Non-Contributor's Debt

Joint accounts are often established for the convenience of one of the account owners, but they can be dangerous. Ask John and Adeline DeStefano, who were featured in last week's Elder Law FAX.

The money in the DeStefano's bank account, to which they had added their daughter as a joint owner, was taken by the bank to cover loans taken out by their daughter and her soon-to-be ex-husband.

The bank justified its action by saying that because the daughter had a unilateral right to withdraw all of the money in the account, the money in the account was subject to her debt to the bank.

How this rule is applied may differ depending upon the facts of a particular situation, however. In another case involving a joint account, the Pennsylvania Supreme Court held that the funds in the account were not available to a creditor who had a court judgment against a non-contributing owner to the account.

In 1994 Ruth Libros opened up a brokerage account at Morgan Stanley Dean Witter. This was a joint account among her, her daughter Joyce Johnston, and her son Joel Sarner. At the time Ms. Libros opened the account, she told her account executive that she wanted to retain full control over the account. She added her son and daughter to her account so that they could make withdrawals if she became incapacitated and so they would own the account immediately on her death.

All funds placed in the account belonged to Ms. Libros. Neither her son nor her daughter ever contributed any funds to the account.

Meanwhile, Joyce Johnston worked for the law firm of Deutsch, Larrimore & Farnish as a bookkeeper. Unbeknownst to her employer, from time to time she was dipping into the law firm's kitty; by the time she was caught and convicted of theft and forgery, she had embezzled $300,000 from the law firm, which obtained a civil judgment against her for that amount.

For some reason -- perhaps in partial payment of restitution for her daughter -- Ms. Libros gave the law firm a check from the joint account for $60,000. Armed with the knowledge that Ms. Johnston was named as a joint owner of the account, the law firm caused a levy of execution on the account.

Ms. Libros intervened in her daughter's case, arguing that none of the money in the account was contributed by either of her two children and that she had never intended to make a gift of any part of the account to them. She convinced the trial court and the appellate court of the rightness of her cause; the Pennsylvania Supreme Court affirmed both courts.

This case arose under the Pennsylvania Multiple-Party Accounts Act. Pursuant to that law, "a joint account belongs, during the lifetime of all parties, to the parties in proportion to the net contributions by each to the sum on deposit, unless there is clear and convincing evidence of a different intent."

On the death of a party, however, the amount in the account "belongs to the surviving party or parties as against the estate of the decedent unless there is clear and convincing evidence of a different intention at the time the account was created."

Looking at the intent of the Multiple-Party Accounts Act, the Pennsylvania Supreme Court opined that the legislature assumed that a person who deposits funds in a joint account does not intend to make an irrevocable gift of the funds to the other parties to the account; and, indeed, does not intend to change his or her ownership of the funds in the account.

Applying this rationale, the supreme court concluded that Joyce Johnston had no ownership interest in the joint account. And, because she lacked an ownership interest in the account, there was nothing therein that the law firm could execute on.

Deutsch, Larrimore & Farnish, P.C. v. Johnson, April 29, 2004
(thax Elderfax)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#63   Thursday, May 20, 2004   
========================================================
I've found a great website for all of you who inquire about how to get Social Security benefits. Also posted on DAC's DAC main.htm main page too!  This man worked for SS so he's put together a nice site. Read this: My website is titled "Social Security Disability Secrets" at http://www.disabilitysecrets.com It's focus is to provide helpful information to individuals who are applying for disability, thinking of applying, or who need to file an appeal after they've been denied (which happens to most people, unfortunately). <---great site....kk-

NEXT
Medicare Drug Discount Card Program Begins: How Will It Affect LTC residents?

http://www.nursinghomeaction.org/govpolicy/246_1274_8269.cfm

CMS Adds Resources to Respond to the Record Numbers of Callers to 1-800-MEDICARE
The Centers for Medicare & Medicaid Services Wednesday announced additional
steps to improve service for Medicare beneficiaries deciding whether a discount card is right for them. This includes adding 400 more customer service representatives to answer calls on the 1-800-MEDICARE hotline and enhancing the "Price Compare" database at: http://www.medicare.gov.

Another resource for Medicare information
The Center for Medicare Education produces a monthly series of Issue Briefs directed to professionals. The briefs are available on the Center website at http://www.medicareed.org.  You can request that print versions be mailed to you or that PDF versions be e-mailed. Best of all they are free.  The most recent brief is on Medicare Savings Programs, and was written by Trish Nemore of the Center for Medicare Advocacy.


AND GRANTS
Nonprofit Technology Proposals Invited for SBC Excelerator Grants:
The SBC Foundation, the chief philanthropic vehicle of SBC Communications, Inc., is accepting applications for its SBC Excelerator technology grants program, which this year will focus on helping nonprofits fully integrate technology into their ongoing operations and community outreach.
http://www.healthinschools.org/grants/ops153.asp

Kraft Foods U.S. Guidelines for Corporate Giving:
As part of Altria Group, Inc., Kraft Foods focused its donations not-for-profit organizations focused on one of three areas: hunger, healthy lifestyles, and access to the arts. http://www.healthinschools.org/grants/ops149.asp

NOT ENOUGH NEWS? HOW ABOUT THIS FROM WRIGHTSLAW:)
How Can I Get the School to Provide an Appropriate Program?
"My son Paul began special education in second grade. He is now in fifth grade. When he entered special education, his reading level was 1.3. After 30 months of special education, his reading level is 2.3. He was falling further behind, not closing the gap." In What Can a Parent Do When the School Balks? follow one parent's journey from emotions to advocacy as she lobbies for the services her son needs. More FAQs or visit their website here: http://www.wrightslaw.com

AND
Section 8 Housing Voucher Programs In Crisis
Public Housing Agency's Forced To Terminate Section 8 Contracts
http://www.indybay.org/news/2004/05/1681303.php

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. NEWS ABOUT KIDS AND MORE
2. RURAL HOUSING PROGRAMS
3. GOOD INFORMATION
4. VA LT. GOV. KAINE APPLAUDS SUPREME COURTS ADA DECISION
5. FED INFO LETTER & GSA AUTO AUCTIONS
6. ADA & IT TRAINING ANNOUNCEMENT
7. THIS, THAT & OTHER NEWS
========================================================
********************************************************
NEWS ABOUT KIDS AND MORE
********************************************************  
Brown v. Board of Education
David Halberstam, Parade Magazine, April 18, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOCbboDaTbafpLKt/
It was the first item listed on the docket for the U.S. Supreme Court’s October 1953 term. Ostensibly it was about the right of a black girl to attend a newer, all-white school only seven blocks from her home instead of an older, all-black school more than a mile away. But Brown v. Board of Education, as the case came to be known, was always about much more than that. At its core was whether state governments could claim the right to sustain “separate but equal” schools and other public facilities, segregating black Americans into a world of far less opportunity and denying them full participation in American life.

CDC's Unspoken Acceptance of Vaccine Additive Raises Furor
Sandy Kleffman, Contra Costa Times, May 2, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IODbboDaTbafpLKt/
Federal officials have added the flu vaccine to the routine immunization schedule for children, but will remain silent about whether parents should request a mercury-free version of the shot. Critics blasted last week's decision, particularly in light of government warnings about other types of mercury exposure.

New Zero Tolerance Study (PDF)
David Richart, Building Blocks for Youth, April 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOEbboDaTbafpLKt/
This new study shows a decrease in suspensions, and an increase in school achievement In the wake of the Columbine high school shooting five years ago (April 20) and other school shootings, many schools across the country toughened up their schools' zero tolerance policies, resulting in more youth suspended, expelled and referred to juvenile court with the harshest impact falling on youth of color. As a follow up to the February, 2003, Building Blocks study that illustrated the disproportionate impact of zero tolerance policies on Kentucky's students of color, this new study, "Northern Lights" released on April 22 shows that this trend can be reversed. This report highlights that out-of-school suspensions can be significantly decreased (over 50%) without compromising academic achievement and shows major increases in school achievement during this same period of time.

IN Bullying: Mother wants to leave SMSD
Jamie Mock, Fort Bend/Southwest Sun, May 3, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOFbboDaTbafpLKt/
The mother says her 13-year-old daughter comes home two to three days a week with ketchup on her clothing and pieces of food caught in her hair. Her children's bus driver called the police on the ride home last month because another student attacked her 14-year-old son. Her son was left with a visible legacy of the attack - a shoe print on his face.

OH Educators Can Feed Violence Problem
Karen Vance, Cincinnati Enquirer, May 6, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOGbboDaTbafpLKt/
Sometimes teachers and administrators contribute to and escalate school violence.

bridges4kids Featured Website: No Disposable Kids (NDK)
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOHbboDaTbafpLKt/
The No Disposable Kids ® program was designed by Starr Commonwealth, a nationally accredited child and family services organization in Albion, Michigan with over 90 years experience in working with troubled and at-risk youth. This unique, even revolutionary program for schools is built around honesty, compassion, respect for others and moral courage. NDK takes a "strength-based" approach that capitalizes on a child's skills and abilities and builds community by encouraging peer mentoring and service to others. Bullying. Racism. Violence. NDK provides tools - and the know-how - to face and overcome issues like these on all levels. Teachers, students, staff, and bus drivers learn the practical, prevention-oriented strategies that create safe, productive environments for learning and working.

OH Fewer Want to be Superintendents
Cindy Kranz, The Cincinnati Enquirer, May 3, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOIbboDaTbafpLKt/
Superintendents are retiring in record numbers, but schools can't fill their positions.

MD Program Catches, Helps City's Truant Students
Lynne Anderson, The Baltimore Sun, May 3, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOJbboDaTbafpLKt/
Center concentrates on why kids miss school. "You see that, they went to school because they knew someone cared," said Sacco. "They knew someone was watching them."

Bullying Surrounds Fat Teens, Study Finds
Lindsey Tanner, Contra Costa Times, May 3, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOKbboDaTbafpLKt/
Overweight adolescents are more likely than normal-weight children to be victims and perpetrators of bullying, a study found, bolstering evidence that being fat endangers emotional as well as physical health.

bridges4kids Featured Resource: HandiNet's Acronym Database
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOLbboDaTbafpLKt/
A searchable database containing hundreds of acronyms and their descriptions.

Download Series: Building Stronger Relationships Between School Personnel and Families in Urban Communities
The National Institute for Urban School Improvement
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOMbboDaTbafpLKt/
The National Institute for Urban School Improvement is pleased to announce a new downloadable series of publications focused on building stronger relationships between school personnel and families in urban communities.

bridges4kids Featured Resource: E-News: The National Institute for Urban School Improvement
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IONbboDaTbafpLKt/
E-News is designed to keep individuals informed of new developments in urban education and inclusive schooling practices in urban schools. In particular, E-News includes brief items of interest around the work of the National Institute and other organizations engaged in similar work, current research, upcoming conferences and events, new online and off-line products and resources, and other news.

bridges4kids Featured Website: The Hamilton Fish Institute on School & Community Violence
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOObboDaTbafpLKt/
Provides information, research, and support to make schools safer for high achievement.

Expert Testimony, Bad Evidence?
CBS News Online, April 21, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOPbboDaTbafpLKt/
You may have heard of Munchausen Syndrome by Proxy. It's the kind of child abuse in which a parent tries to get attention for herself or himself by making his or her own baby sick - often by smothering the infant. This bizarre crime was first discovered by Dr. Roy Meadow, a British pediatrician. And ever since, mothers have been prosecuted in Britain and in the United States based on his theories. But there is now reason to believe that some of Meadow's theories are tragically wrong.
 
No Child Left Behind (NCLB)

Nearly Every School District in America Left Behind
Children's Defense Fund, April 30, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOQbboDaTbafpLKt/
The Children's Defense Fund recently released a detailed analysis comparing the amount of Title I funding each school district in America would receive under the White House's proposed FY05 budget to the amount school districts would receive at levels authorized under the No Child Left Behind Act. The data show how nearly every school district in the country continues to be shortchanged. Some of the largest school districts in the country will be subjected to significant shortfalls in the 2005-2006 school year: Los Angeles, for example, will suffer a $294 million shortfall from what it was promised under NCLB. In New York, the funding gap will be $649 million; in Houston, $78 million; in Seattle, $8 million; and, in Detroit, $119 million. CDF urges the Administration to re-evaluate its priorities and put our nation's children first by keeping its promise to fully fund the No Child Left Behind Act.

The Punishing Truth About No Child Left Behind
William Raspberry, Seattle Times, May 4, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IORbboDaTbafpLKt/
Under the accountability provisions of the No Child Left Behind law, public schools would no longer be able to mask the miseducation of certain minorities by reporting averages and aggregates. They'd have to make sure every group -- virtually every child -- was making good academic progress, or there would be penalties to pay. This is perfect -- unless you run an indifferent school district with incompetent administrators and unprepared teachers fearing to be found out, writes William Raspberry. And that may be the fatal flaw with NCLB: its underlying assumption that school failure is willful, and that if you put the fear of God in the people who run the schools, they'll do their jobs a lot better. A handful might. But for most educators, the penalties make about as much sense as yelling at me for using the wrong fork at high tea with the queen of England. I can't do what I don't know how to do -- what I haven't been taught to do -- and punishment is of no help.

Parenting/Parental Involvement

MI Parents Need More Ways to Communicate With Teachers, Survey Says
EPIC-MRA for Your Child, May 3, 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOSbboDaTbafpLKt/
Michigan parents are very involved in their child’s school (95%), but time and work constraints are limiting their contact with teachers and their participation in the classroom—the frontline of education.

Parent Advocacy Needed Where American Schooling Has Failed Children of Color
Mary Johnson, Teaching to Change L.A., April 2004
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOTbboDaTbafpLKt/
American schools have failed children of color due to a lack of resources, such as, books, high expectations, and a rigorous curriculum, writes Mary Johnson. To help parents become better advocates for quality educational opportunities, for the last three years a group of parents from South Gate and Lynwood, California have started a 13-week parent project to teach parents state standards, policy, and research methods to help them learn how to navigate and advocate for equal access for quality education for all children.

Homeschooled Adults Are Better Citizens
James W. Harris, the Liberator Online at http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOUbboDaTbafpLKt/
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOVbboDaTbafpLKt/
"Politics and government are too complicated to understand." Amazingly, more than *one out of three* adult Americans who were educated in government schools answered "Yes" to that question on a recent survey. However, only 4% of adults who had been homeschooled answered "Yes."

Tools for Handling Loss
James J. Messina, Ph.D., Coping.org
http://bridges4kidsnewsdigest.c.topica.com/maaceqZaa6IOWbboDaTbafpLKt/
Topics include: Introduction & Prologue Tools for Handling Loss, Loss Events in Dysfunctional Families, Stages of the Loss Process, Dealing with Denial, Handling Bargaining Behavior, Anger Workout, Handling Despair, Accepting Change, Letting Go, and Death: The Last Act of Life.
(thax Bridges4kids)

********************************************************
RURAL HOUSING PROGRAMS
********************************************************
Rural Housing Programs - Information Bulletin # 67  5/04

There are many housing programs available for very low and for moderate income persons with disabilities who reside in "rural America," including Home Modifications to make homes accessible and other repairs.  The amount of resources available is based on formulas, and each State receives an annual allocation per program.

Several different programs can be accessed from your county USDA Rural Housing Service offices.  They include single family and multifamily programs.

Single Family Housing:

1.  There is the Home Repair Loan and Grant Program (a/k/a Section 504). 
       
Funds from this program can be used to make your house accessible, as well as for other basic repairs, such as replacement of bathrooms or roofs and other housing needs.

The USDA allocated $62.4 million for loans (FY 2001 and 2002) and another $64.9 million as grants.  More than 21,000 families received these 504 loans and grants. In FY 2004, nearly $35 million were allocated for 504 loans and another $30 million were allocated for 504 grants.

Very low income disabled persons are eligible to receive loans of up to $20,000 at a one percent interest rate over 20 years. If one cannot afford a one percent loan, he/she may receive a $7,500 grant.  According to the USDA webpage, the local Rural Development County Supervisor will make a decision on an application within 30 - 60 days.  See http://www.rurdev.usda.gov/rhs/sfh/brief_repairgrant.htm

2.  The larger programs are the Rural Development Single Family Direct Loan Program and the Guaranteed Loan Program (Section 502)

Under the Direct Loan Program, low-income disabled persons can receive assistance for purchasing a home.  In FY 01 and 02, more than $2 billion dollars were allocated to about 29,500 families.  Nearly half of these loans went to families whose incomes were below 50% of the median for the rural area.

Under the Guaranteed Loan Program families buy homes with loans guaranteed by Rural Development.  This program helps families who might not otherwise be able to make a down payment.  In FY 01 and 02, more than $4.7 billion went to help more than 57,700 families.

Multi-Family Housing:

3.  The largest program is the Rental Assistance Program (Section 521)

Like non-rural "project-based" voucher programs, this program enables persons living primarily in multi-family housing to pay no more than 30% of their income to the multifamily housing owners that received rural funds for new construction or rehabilitation (these are known as Section 515 and 514).  Like "project-based" vouchers, the Rental Assistance vouchers belongs to the units and not the individual.  In FY 2001 and 2002, nearly $1.4 billion were allocated to the Rental Assistance Program for nearly 86,500 units.

Disability advocates should remember that these units are subject to the Rehabilitation Act of 1973, and a reasonable number of the units must be fully accessible to persons with disabilities.  Locations of these units can be obtained from your Rural Development County Supervisor.

Ask her/him to identify Section 515 and 514 multifamily buildings.  Check them out for accessibility, affordability and integration.

    Steve Gold, The Disability Odyssey continues

********************************************************
GOOD INFORMATION
********************************************************
TRANSITION TO COMMUNITY LIVING
Did you miss our recent Web cast, 'Money Follows the Person,' describing how
a Texas pilot program assisted over 3,000 consumers to leave nursing homes for lives in the community? Not too late--go to ILRU's archived Web casts where you will find a link to an audio recording, a transcript of the presentation, and excellent background materials selected by the presenters.
The URL is: http://www.ilru.org/online/archive/2004/03-31-JK.html

ADA: MOVIEGOERS REJOICE
In a victory for moviegoers with disabilities, a federal court ruled against American Multi-Cinema (AMC) for violating the Americans with Disabilities Act in refusing to give priority for companion seats in a sold-out movie screening to the very people that they are designated for: companions of wheelchair users. Read what our ADA specialists have to say about it in our latest Legal E-Bulletin at
http://www.dlrp.org/html/publications/ebulletins/legal/2004/may2004.html

SCI CENTER FOR EXERCISE &PREVENTION: GUINEA PIG ALERT
Want to contribute to the advancement of science? Got a spinal cord injury? The rehabilitation research and training center on SCI/Prevention of Secondary Conditions at the National Rehabilitation Hospital is recruiting people with SCI to participate in two studies. For more information, go to http://www.ilru.org/SCI/library/robotic.htm on robotic-assisted walking and
http://www.ilru.org/SCI/library/cardio.htm on cardiovascular issues.

INDEPENDENT LIVING: LOBBYING FAQ
As Ed Roberts once famously said, "It's easy to tell if a center's doing strong advocacy. Someone from the state is telling them they're not allowed to lobby." Well, you have more latitude than you might think--download our FAQ on lobbying, written by Bob Michaels. The URL is: http://www.ilru.org/ilnet/files/reading/lobbying.html

HEALTH &WELLNESS: CONSUMER-DEFINED 'WELLNESS'
During the last four years, our colleagues at the Research and Training Center on Health, Wellness, and Disability at the Oregon Health Sciences University have conducted valuable research on an array of subjects that are meaningful to the lives of those of us with disabilities. One of our favorites examined how people with disabilities defined wellness. Findings will be familiar to consumers and will provide researchers with a true view of what it means to be healthy and well and disabled in America. For a copy of the report, go to http://www.healthwellness.org/index.htm then click on 'Library' and then on 'Publications.' It is number 3.
(thax M.S.)

********************************************************
VA LT. GOV. KAINE APPLAUDS SUPREME COURTS ADA DECISION
********************************************************
LT. GOVERNOR TIM KAINE APPLAUDS U.S. SUPREME COURT DECISION REGARDING THE AMERICANS WITH DISABILITIES ACT

HIGH COURT RULING UPHOLDS THE RIGHTS OF PEOPLE WITH DISABILITIES

(Richmond) – Lt. Governor Tim Kaine made the following statement today in response to the U.S. Supreme Court decision in the case of State of Tennessee v. George Lane:

“Today’s ruling is a victory for all Americans.  We are all potentially one accident, injury, or illness away from having a disability.  But such a disability should not impede our fair and equal access to our government.  I am glad to see the Supreme Court uphold the Americans with Disabilities Act.

“The Lane ruling is also a reminder that the government should never stand above the laws it creates.  With the accessibility requirements of the ADA, we place a reasonable burden on many businesses.  The burden the government endures under this law should be no less. “A coalition of groups and states, along with the current Bush Administration, filed amicus briefs to the Supreme Court to signal their commitment to the ADA.  As Chairman of the Virginia Disability Commission, I am disappointed that no Virginia brief was ever filed, despite the commission’s unanimous vote on a resolution calling for such a brief and a direct request to the Attorney General’s office for such a filing.

“Virginia has nothing to fear from a law that requires government services to be offered to all citizens in a fair manner.  Today’s ruling is an affirmation that we should continue to hold ourselves to the highest standard in order to ensure that all Virginians have equal access to public buildings and services.”
(thax B.G.)

********************************************************
FED INFO LETTER & GSA AUTO AUCTIONS
********************************************************
NATIONAL WORLD WAR II MEMORIAL DEDICATION
America's World War II veterans have waited 59 years for a national memorial commemorating their service and sacrifice. Their wait is now over. The National World War II Memorial in Washington, DC opened on April 29th and a dedication ceremony will be held on Saturday, May 29, 2004.

The Memorial Day weekend celebration on the National Mall will culminate an 11-year effort to honor America's World War II generation. The memorial was authorized by Congress in 1993. Construction began in September 2001 after several years of fund raising and public hearings.

The official dedication celebration will run over Memorial Day weekend 2004 from May 27 through May 30. The events include a World War II Reunion exhibition on the National Mall, an interfaith celebration at the Washington National Cathedral, and an entertainment salute to WWII veterans from military performing units.
To learn more, visit http://www.wwiimemorial.com.

FISHING IS FUN FOR EVERYONE
As summer approaches and the kids out of school in just a few weeks, it will be a perfect opportunity to take the kids and grandkids fishing. Anyone can quickly learn to fish at any age. Become a part of the 50 million children and adults in America who enjoy the sport.

Get handy fishing tips at: http://www.pueblo.gsa.gov/cic_text/misc/fishing/fishing.htm.
You'll find out what equipment you'll need, what kind of bait to use, how to cast and tie knots, and where to get more information.

VACATION TRAVEL INFORMATION
With warmer weather finally here, you're probably itching to go on vacation. Whether your travels take you near or far, here are some helpful websites to make your next trip as smooth as possible.

Before you fly out into the wild blue yonder, check out the Federal Aviation Administration's Air Traffic Control System Command Center You can get information on general airport delays across the country. Although the information is not flight-specific, you can find out about overall departure or arrival delays, weather-related delays/closures, and more. Learn more at
http://www.fly.faa.gov/flyfaa/usmap.jsp.

For those planning a road trip, you can get traffic, highway construction, and road closure information for any state at: http://www.fhwa.dot.gov/trafficinfo/index.htm

Be sure to take the scenic route on your next trip! Check out America's Scenic Byways at http://www.byways.org/. America's Byways are a distinctive collection of American roads, their stories and treasured places. They are roads to the heart and soul of America. There are 96 such designated Byways in 39 states. You can order a FREE map of America's Byways, including photos and descriptions of each Byway. Place your order online at: http://www.byways.org/map_request.html

GOVERNMENT CARS FOR SALE
GSA Fleet Vehicles Sales is about to enter its peak sales season of pre-owned U.S. Government vehicles. Between May and September, GSA Fleet will sell 30,000 vehicles at auction locations nationwide. These auctions are open to the general public although you must be 18 years or older in order to register for a sale or bid on a vehicle. In addition, unlike most other auctions, there are no buy fees added to the vehicle sales.

GSA Fleet's website contains further information about upcoming sales, locations, vehicles, and sales terms and conditions. You can also register to receive free e-mail notifications about upcoming sales at locations of your choosing.
For more information, visit http://www.autoauctions.gsa.gov.

********************************************************
ADA & IT TRAINING ANNOUNCEMENT
********************************************************
ADA & IT Information Center for the Mid-Atlantic Region
TRAINING ANNOUNCEMENT!
May 19, 2004

The ADA & IT Information Center for the Mid-Atlantic Region is pleased to announce our upcoming training schedule.  Our professional and experienced trainers are sure to broaden your knowledge about the Americans with Disabilities Act (ADA) and/or the Americans with Disabilities Act Accessibility Guidelines (ADAAG). 

If you have additional questions, please contact Rachel Margolis at the ADA & IT Information Center.
Phone: 800-949-4232 (voice / TTY). 301-217-0124 (voice / TTY)
Email: adainfo@transcen.org

1. Basic ADAAG Training                  
June 22-24, 2004
Comfort Inn Conference Center – Bowie, Maryland

Trainer: Mark Derry, Eastlake, Derry & Associates, LLC.   
Registration deadline: June 7, 2004
Registration Fee: $150.00

Tell me more!
Basic ADAAG is the essential training for anyone preparing to give ADA accessibility information to the public. This training enhances understanding of the principles of accessibility and the requirements of the Americans with Disabilities Act.    Participants will also be introduced to accessibility surveys. Participants are provided with a copy of 28 CFR Part 36, which contains the ADAAG, as well as other guidance material. A detailed itinerary is provided at the end of this email for your convenience.   

Hotel Information
If you wish to stay at the hotel, discounted sleeping rates are available at the Comfort Inn for $91.80 under the name ‘ADA Eastlake.’ Please book your sleeping room by June 5th for this discounted rate.

Comfort Inn Conference Center
4500 Crain Hwy.
Bowie, MD 20716
Phone: (301) 464-0089
Fax: (301) 805-5563

2. Basic ADA Training: Back to the Basics!
July 13, 2004
9:30am-4:00pm
Holiday Inn - York, Pennsylvania

Trainer: Kathleen Desmond Porter, Training and Organization Development Director, ADA & IT Information Center
Registration deadline: June 29, 2004
Registration Fee: $50.00

Tell me more!
Our Basic ADA training covers all five titles of the Americans with Disabilities Act. If you are looking to gain a strong foundation of ADA basics, this is a great training for you! Learn about how the ADA affects employers, employees, businesses, state / local governments, telecommunications, and more!

Hotel Information
Discounted sleeping rooms are available at the Holiday Inn for $79.00 under the name ‘ADA Information Center.’ Please book your sleeping room by June 25th for this discounted rate.

Holiday Inn - York I-83 & Rt 30
334 Arsenal Road
York, PA 17402
Phone: (717) 845-5671 (voice / relay)
Fax: (717) 845 - 1898

3. Advanced ADAAG Training / How to Conduct an Accessibility Survey
Sept 28-30, 2004
Comfort Inn Conference Center– Bowie, Maryland

Trainer: Mark Derry, Eastlake, Derry & Associates, LLC.
Registration deadline: September 10, 2004
Registration fee: $150.00

Tell me more!
Advanced ADAAG is an higher level training for those with previous training and experience with architectural accessibility.  This training explores ADA requirements in  great detail. Participants will conclude the training with a hands on experience conducting an accessibility survey.  

Hotel Information
Please contact the hotel directly to reserve sleeping rooms. Discounted rates are available under the name ‘ADA Eastlake’ for $91.80. Please reserve your room by August 27, 2004 to receive this discounted rate.

Comfort Inn Conference Center
4500 Crain Hwy.
Bowie, MD 20716
Phone: (301) 464-0089
Fax: (301) 805-5563

HOW TO REGISTER:
Please contact our office via email, fax, or phone ready and provide the following information.

Training Name / Date:
Your name:
Title:
Organization:
Address:
Phone:
Fax:
Email:
Please be specific and note any accommodations that you will require to participate in the training (e.g. alternate format materials, interpreter services, dietary restrictions, etc.):

(thax K.G.)

********************************************************
THIS, THAT & OTHER NEWS
********************************************************
Seniors confused over health-care plans
http://www.thejournalnews.com/newsroom/051804/a0118senioroptions.html

Panel Finds No Evidence to Tie Autism to Vaccines
http://www.nytimes.com/2004/05/19/science/19autism.html?ex=1085951544&ei=1&en=616e4b5af0c9d0fd

Afghan, Iraq Vets Flood VA System
http://www.cbsnews.com/stories/2004/05/17/health/main617912.shtml

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#62   Monday, May 17, 2004   
========================================================
Breaking News: Supreme Court Upholds Rights Under Title II of ADA
In a 5-4 ruling 5/17/04, the Supreme Court ruled in favor of the rights of people with disabilities to sue for money damages under the Americans with Disabilities Act (ADA). ADA Watch previously joined other disability organizations in filing a brief advocating in support of George Lane and others in this case. The brief is available at: http://bazelon.org/issues/disabilityrights/Lane/thornburgh.pdf

Statement of Senator Tom Harkin (D-IA) on the Supreme Court Ruling in Tennessee v. Lane

Today the Supreme Court issued a rule in the case of Tennessee v. Lane.

The respondents in the case included a man who was forced to crawl up two flights of stairs to attend his court hearing and a court reporter that could not make a living because courthouses were inaccessible to her. 

The Court was to decide whether these individuals can sue the state under the Americans with Disabilities Act (ADA) and be compensated for the humiliation and loss that they experienced.  Senator Tom Harkin (D-IA) was lead sponsor of the ADA in the Senate and at the time of passage, he chaired the Subcommittee on the Handicapped, later renamed the Subcommittee on Disability Policy.

"Today, the Supreme Court decided in Tennessee vs. Lane that a person with a disability who is denied access to a courthouse may sue for damages under the ADA.  The Court's majority limited its analysis of Title II to access to courthouses."

"As the lead sponsor of the ADA in the Senate, I am pleased that the Court recognized the need for the ADA and the 'pervasive unequal treatment' of people with disabilities in the administration of public services.  I am also pleased that the Court upheld the statute as it applies to access to the courthouse. However, I am concerned that the Court failed to uphold it more broadly.  This is a big step forward for Mr. Lane, but could leave millions of others with disabilities many steps short of full participation and access."

AND
Somebody was asking me about a stair-lift not long ago but I don't remember who. So here you go: A friend in the realty business has a $7,000 new stair lift in a property about to go on the market. The person for whom it was installed died before using it.  The company would like to sell it or get a tax write-off. (so free thru nonprofit group) It's on a first come, first served basis.  The stair lift is located at 3432 King Street, and the contact person is Sally Z. phone 703-517-2849.  The buyer or recipient should arrange for the lift's removal.  Thanks very much for your assistance.

NEXT
Behavior Drugs Lead in Sales for Children
http://www.nytimes.com/2004/05/17/business/17drug.html?ex=1085782149&ei=1&en=c8a8478c11589d9e

Personally, I think too many kids are overmedicated so as to not have to spend the time in properly disciplining them. With single parent families or both spouses working I contend parents turn to drugs to control their children and I think it's a dangerous precedent to initiate. That's my opinion anyway and I do have experience with children. Drug companies are out to sell drugs as treatments for high profits and not particularly as cures. Just my thoughts... kk-

Vermont senators explain stance on special education bill
http://www.reformer.com/Stories/0,1413,102~8862~2150113,00.html


Cholesterol-lowering drugs do miracles in treating Multiple Sclerosis 
http://newsfromrussia.com/science/2004/05/14/53922.html

Want to get rid of those nagging charge card invitations in your mail? Just dial this number: 1-800-5-OPTOUT

You've got to read our last item....it makes you think. It also happens in many ways to helpless adults....

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. HOUSE SEEKS TO PARE ADMINISTRATIVE COSTS IN AID TO DISABLED
2. IDEA REAUTHORIZATION PASSES SENATE
3. HIDDEN COSTS OF DEPRESSION FOR SENIORS
4. NEW MANUFACTURERS ADDED TO AT BOOK
5. BANKRUPTCY RISING AMONG ELDERLY
6. NATIONAL HOUSING JUSTICE MEMORIAL DAY, MAY 26
7. VOICES IN ACTION - YOUTH VIOLENCE SYMPOSIUM
8. "SARA" -- YOU MUST READ THIS
========================================================
********************************************************
HOUSE SEEKS TO PARE ADMINISTRATIVE COSTS IN AID TO DISABLED
********************************************************  
CQ TODAY MIDDAY UPDATE
Published by Congressional Quarterly and CQ Today
www.CQ.com

Thursday, May 13, 2004 - 2:10 p.m.

HOUSE PANEL SEEKS TO PARE ADMINISTRATIVE COSTS IN AID TO DISABLED

A grant program that helps states provide wheelchairs, communication materials and other assistive devices for disabled individuals would be restructured so that less federal money is spent on administrative costs, under a bill approved Thursday by a House Education and the Workforce Subcommittee. The bill (HR 4278), sponsored by Howard P. "Buck" McKeon, R-Calif., chairman of the 21st Century Competitiveness Subcommittee, seeks to focus the 16-year-old grant program on providing money to purchase assistive technology. It was approved by voice vote. Early funding by Congress was intended to cover the administrative costs necessary to create a long-running program, while this bill would shift the focus toward direct purchases. "Our goal is to help states get more assistive technology directly into the hands of individuals with disabilities," McKeon said. "This new focus will expand the reach of the state programs by moving it away from support of administrative activities and emphasize the importance of getting technology itself."
(thax M.S.)

********************************************************
IDEA REAUTHORIZATION PASSES SENATE
********************************************************
IDEA Reauthorization Passes Senate

Reauthorization of the Individuals with Disabilities Education Act, S.1248, passed the Senate yesterday by a vote of 95-3, an overwhelming bipartisan agreement.  Approximately 6.7 million children with disabilities now receive services under the IDEA in U.S. schools.

According to the Associated Press, the reauthorization has the first major changes in special education law in seven years, aiming to get help earlier to struggling children, give teachers more freedom to discipline students and reduce tensions between parents and schools.

The House version, approved more than a year ago, differs from the Senate plan in student discipline, measuring of student progress, attorney fees and other areas.  Democrats have opposed the appointment of negotiators to reconcile the House and Senate versions until they gain more assurances that their views will be considered.

Senate deliberations included:

- Attorneys' Fees.  All attempts to cap parent's attorneys' fees were thwarted.  The availability of attorneys' fees to parents remains the same. The amendment conforms the IDEA to other civil rights laws, allowing school districts to collect fees if a court finds that the parents' claim is frivolous or groundless or brought with improper purpose.  Senators Gregg, Enzi and Grassley's amendment allows State education agencies and local education agencies to seek fees in the following two circumstances:
1. A prevailing party who is a State educational agency or local educational agency against the attorney of a parent who files a complaint that is frivolous or without foundation
2. A state educational agency or local educational agency against the attorney of a parent or parent if the parent's complaint was presented for any improper purpose such as to harass or to cause unnecessary delay or needless increase in the cost of litigation

- Participation in the National Children's Study.  Senator Clinton's amendment will require the Department of education to participate in the long-term child development study authorized under the Children's Health Act of 2000 to determine the relationship between environmental health factors and the development of disabilities in childhood.

- Homeless, Foster and Children in Transition.  Senator Murray's amendment will make it easier for schools to provide disabled homeless and foster children with services and will smooth the transition for all disabled children, including children with parents in the military, who move to new schools.

- Funding.  Senator Gregg's amendment authorizes appropriations that will increase discretionary federal funding with the goal of paying for 40% of the costs of providing services under IDEA by 2011.

- Paperwork Reduction.  Senator Santorum's Amendment will authorize 15 states to participate in pilot demonstration projects to reduce the amount of paperwork associated with special education.  The amendment includes a specific provision that states may not waive civil rights protections and makes clear that the paperwork reductions may not impair the right of a child to receive a free appropriate public education or infringe upon any procedural safeguards.

Failing Amendment:

- Mandatory Full Funding.  Senators Harkin and Hagel submitted an amendment that would have provided for mandatory funding increases of $2.2 billion each year over the next six years in order to reach Congress' 1976 promise to reimburse states for 40% of the costs associated with IDEA.  The approved more than $2.2 billion funding increase each year for 7 years is only optional.  Senators Jeffords and Leahy from Vermont opposed the bill because it failed to provide a mechanism for mandatory full funding. When the law was first passed, Congress promised to pay 40%, but actual federal spending is only 18.6%.  State and local governments must make up the difference.

On Wednesday, May 12, Senators Harkin, Hagel, Jeffords, Murray, Kennedy, Carper, Baucus, and Corzine spoke passionately about the need to assist local school districts with the costs associated with special education implementation.  On Thursday, Senator Dayton admonished the Senate for failing to adopt the Harkin-Hagel amendment. On both days the Senators gave compelling speeches about priorities and the failure of Congress to live up to its promise.

The Senate bill strives to improve the early identification of children with special needs, reducing the number of students, particularly minorities, who are improperly labeled as disabled. The bill also encourages mediation in disputes between parents and schools and gives the education secretary more power to hold states accountable.

The bill tries to give teachers more classroom control by allowing children with special needs to be disciplined like other students, provided their misconduct is not a result of their disability. The House bill goes further, freeing schools from considering a disability in determining discipline.

Critics say the bill leaves key issues unresolved, including the definition of a ``highly qualified'' special-education teacher.
(thax jfa)

********************************************************
HIDDEN COSTS OF DEPRESSION FOR SENIORS
********************************************************
Hidden Costs of Depression for Seniors

Tue May 4,11:49 PM ET

TUESDAY, May 4 (HealthDayNews) -- Depressed senior citizens in the United States require the equivalent of $9 billion worth of unpaid help each year to do daily activities.

The burden of that assistance is carried by the depressed seniors' spouses, children and friends and represents a huge, unrecognized cost of depression, says a University of Michigan and VA Ann Arbor Healthcare System study.

Even moderately depressed seniors require many more hours of help doing everyday activities than seniors with no depression, regardless of other health problems they may have.

The researchers estimated that it would cost society $9 billion a year if the family and friends who take care of depressed seniors were paid the wages (about $8.23 an hour) of a home health aide worker. That total means depression is second only to dementia in the national annual cost for informal caregiving.

For this study, researchers analyzed data from 6,651 people over the age of 70 from across the country and found 18 percent of them reported four to eight depressive symptoms within the previous week. Another 44 percent reported one to three depressive symptoms.

Of the seniors who had many depressive symptoms, 38 percent reported receiving informal care from family or friends. That figure was 23 percent among seniors with few depressive symptoms and 11 percent among seniors with no depressive symptoms.

"People with depressive symptoms also had a significantly higher likelihood than others of needing help with tasks such as dressing, bathing, eating, grocery shopping, taking medicines, paying bills and using the telephone," study author Dr. Ken Langa, an assistant professor of general medicine, said in a prepared statement.

"Even those with just a few depressive symptoms were more likely to need help with these everyday activities than those without signs of depression," Langa said.

The study appears in the May issue of the American Journal of Psychiatry.
(thax Proaging)

********************************************************
NEW MANUFACTURERS ADDED TO AT BOOK
********************************************************
I am attaching an updated press release on my book Assistive Technologies: Expanding a Universe of Opportunities for People with Disabilities. To my knowledge, the book has the most comprehensive list of AT manufacturers ever published. The editorial content is equally important.

People working in the public and private sectors should have this book. I believe the book is a great resource for people needing to know about AT products. Please tell your friends about the book.

Contact: John M. Williams (703-404-9557)                                                                                                                                            
JMMAW
Howard McClintic (202-312-2913)               
Cindy Hughes (703-307-2666)

New Manufacturers Added to AT Book: Expanding Its Value

Washington, DC - With the addition of 22 manufacturers of Assistive Technology products the publishers of Assistive Technologies: Expanding A Universe of Opportunities for People with Disabilities have expanded the most comprehensive list of assistive technology manufacturers worldwide ever published (www.atn-ctcf.org). 

"The book's goal is to fill a vital need among employers and employees with disabilities looking for assistive technology products that are used in the workplace and in other areas to increase independence among people with disabilities worldwide," says the book's author John Williams, who believes these products are great equalizers for people with disabilities. He has written about disability issues and assistive technology products for 25 years.

Expanding the list of AT manufacturers monthly is a goal of the publishers, Assistive Technology News and Concurrent Technologies Corporation Foundation (http://www.ctcfoundation.org), who intend to keep the list current.

"By updating the list regularly, we add value to the book and guarantee the public and private sectors that they have access to the most current information in this field," says Howard McClintic, executive director, CTC Foundation. McClintic says a section on bionics will be added to the book.

The book lists more than 550 assistive technology manufacturers in the United States, Canada, Europe, Australia, South America and Asia. Employers looking for information on products benefiting speech impaired, blind, visually impaired, deaf, hearing impaired, physically challenged, cognitively-challenged and mobility challenged employees will discover it in the book.

With millions of aging employees with disabilities requiring assistive technology to maintain their productivity and efficiency, and millions of working age people with disabilities unemployed, this book provides employers with a one-stop shopping source in the field of assistive technology products.  Employers will find information on voice recognition systems, text-to-speech products, Braille products, keyboards, low vision products, hearing products, environmental control products, and other products to increase independence and employment opportunities for people with disabilities.  

The contents include: summaries of federal legislation passed on disability areas since 1968; recent United States Supreme Court decisions on the Americans with Disabilities Act; 12 columns on assistive technology products used in various environments; an overview of assistive technology today; articles written by representatives from Microsoft, IBM, Kurzweil Educational Systems, Deque and Oracle on their corporate philosophies in providing accessible products in assistive technology areas; a chapter on United Nations' activities in providing on-line accessibility to people with disabilities worldwide; and definitions dealing with assistive technology and disability areas. 

The book is published online, in print and in digital format (CD). Access to the web version of the book is available through a protective password. A sample of the book online and an order form can be seen at www.atn-ctcf.org,             

The price for the on-line version and the two published formats mentioned above in $99. Twenty percent discounts are available if you order by May 31, 2004. Larger discounts are available for larger orders. A 30% discount is available for schools k-college students, teachers and administrators.  To order either by check or credit card contact CTC Foundation at 202-312-2913.

The CTC Foundation (www.ctcfoundation.org) was established five years ago with the primary goal of mainstreaming niche technologies. The Foundation wants to see AT more widely used in local communities where there are a community of persons with disabilities, with foundation and/or corporate support.  Contact Howard McClintic at (202) 312-2913 or mcclinth@ctcgsc.org for more information.

For information regarding advertising and sponsorship of the AT book and the soon to be launched Assistive Technology News web program contact Cindy Hughes at: clhughes@strategicoutreach.com.

********************************************************
BANKRUPTCY RISING AMONG ELDERLY
********************************************************
Bankruptcy Rising Among Elderly Americans

More and more older Americans are drowning in debt and turning to bankruptcy court for relief.

Although older Americans account for a small proportion of total personal bankruptcy filings, they are the fastest-growing group in bankruptcy. About 82,000 Americans 65 or older filed for bankruptcy in 2001, up 244% from 1991, according to the Consumer Bankruptcy Project, a study done at Harvard.

The United States Department of Justice, which runs the federal bankruptcy trustee program, released a study that painted a grim picture of the future for many older Americans.

According to the report, the average gross monthly income of an elderly debtor, $1544, is more than one-third below the average for Chapter 7 debtors ($2354). And for the average elderly debtor, Social Security benefits are the main source of income.

"Although the elderly are less likely to file chapter 7 bankruptcy than younger people, a significant number of them do file each year. The number of elderly filers is likely to grow in the coming years," the Justice Department report concludes.

The Justice Department found that most elderly debts have very high concentrations of credit card debt -- not, as one might expect, high medical expenses.

A recent report from Demos, a New York-based public policy research group, found an alarming increase in credit card debt among older Americans.

"Conventional wisdom suggests that this segment of the population -- with lifetimes of financial experience, an over 80% homeownership rate and a generational ethos of thrift -- would be immune to the record debt increases of the 1990s," the report notes.

The Demos report, "Retiring in the Red," found that self-reported credit card debt among seniors age 65 and over increased 89% to $4041, between 1992 and 2001.

Among the report's other key findings:

* Seniors between 65 and 69, presumably the newly retired, reported a staggering 217% increase in credit card debt to $5884 over the same period.
* About 20% of households over 65 are in "debt hardship," with at least 40% of their income committed to debt payments.
* Having medical insurance -- or not having it -- made a major difference in credit card debt. Families in the 55 to 64 age range, for instance, had seen a credit card debt increase of 169% if they had no health insurance, but only 37% if they had health insurance.
* Credit card debt among "Transitioners," those aged 55-64, jumped 47% to $4088 over the last decade. In fact, the average credit-card indebted family in this age group spends nearly one-third of its income on debt payments.

The Employee Benefit Research Institute found that American families with a family head age 55 or older had approximately the same level of debt payments relative to income and of debt levels relative to assets in 2001 as they did in 1992.

That's the good news. The bad news is that there has been an increase in the percentage of heavily indebted families -- defined as those with debt payments exceeding 40 percent of income -- especially for family heads in the two oldest groups (ranging from 5 to 10 percent of all near elderly and elderly families).

In terms of retirement security, EBRI's Dallas Salisbury noted that, on the whole, the new data are positive that most older families did not appear to be overburdened by debt in 2001. But he warned: "This changing nature and level of family debt has obvious and serious implications for the future retirement security of many Americans. The major implication is more families having at risk what for many families is their most important asset: their home."
(thax Elderfax)

********************************************************
NATIONAL HOUSING JUSTICE MEMORIAL DAY, MAY 26
********************************************************
Greetings!


Several national grassroots organizations and individual social justice people have declared May 26, noon your time, National Housing Justice Memorial Day.

Activists concerned with housing justice issues are encouraged to gather at their regional HUD (Housing and Urban Development) offices on May 26th at noon your time, to protest the attacks on the Section 8 program and demand justice and accountability!

If you are interested in getting hooked up with organizers in your region please email me for local/regional contact people.  If you are available to assist with regional organizing please let me know. 

Also, we are looking for activists in the Washington, Oregon, Idaho, Alaska region to organize the Seattle HUD protest.

Please do let me know if you can actively organize in your region and for additional instructions on use of the attached flyer and press release, and please only talk to fellow activists who believe in housing justice!

Thank you!

For equal rights and justice

Becca Vaughn
Chair-NCIL Housing Committee
DRACH

1-800-443-2207
1-785-233-5072-fax
bvaughn@tilrc.org

********************************************************
VOICES IN ACTION - YOUTH VIOLENCE SYMPOSIUM
********************************************************

VOICES IN ACTION - Youth Violence Prevention Symposium
September 5-8, 2004
Hilton Alexandria Mark Center, Alexandria, VA

Workshop and Roundtable Discussion Proposals are now being accepted for the VOICES IN ACTION - Youth Violence Prevention Symposium!  If your organization, business, or agency has a violence prevention and/or intervention program that they would like to share with youth leaders, educators, professionals, government officials, and college representatives, then submit your proposal today!

Workshops will be held on Monday, September 6 from 10:45 -11:45 a.m. and 1:00 - 4:30 p.m. and Tuesday, September 7 from 1:00 - 2:30 p.m.  Roundtable discussions will be held on Tuesday, September 7 from 2:45-4:15 p.m.


What is VOICES IN ACTION - Youth Violence Prevention Symposium?

Why should you participate?

This conference is intended for everyone who is concerned with youth violence on the local, state and national levels!  Attendees will represent all states and community sizes, so your message will be spread across the country to a variety of audiences!   Here is your chance to connect with youth and adult leaders and share your organization's mission and programs that address youth violence.

For more symposium information and forms, visit http://www.fccla.com/fcclastop/whatsnew/whatsnew.html.  Postmark deadline for the Workshop and Roundtable Discussion Proposal is June 1, 2004.

Interested in reaching even more attendees?  Exhibit!


The Exhibitor Registration and Information Form is available on our Web site as well!

Questions? 

Contact Annie Krysl, STOP Project Coordinator at 703-476-4900 or by email at: akrysl@fcclainc.org.

VOICES IN ACTION - Youth Violence Prevention Symposium is sponsored by STOP the Violence - Students Taking On Prevention, Family, Career, and Community Leaders of America, Inc. (FCCLA) and the U.S. Department of Justice Office of Juvenile Justice and Delinquency Prevention.

Annie Krysl
STOP Project Coordinator
FCCLA, Inc.
1910 Association Dr.
Reston, VA  20191-1584
703.476.4900 - phone
703.860.2713 - fax
www.fcclainc.org
akrysl@fcclainc.org
FCCLA:  The Ultimate Leadership Experience

********************************************************
SARA -- YOU MUST READ THIS
********************************************************
*~*~*Sarah*~*~*

My name is Sarah
I am but three,
My eyes are swollen
I cannot see,
I must be stupid
I must be bad,
What else could have made
My daddy so mad?
I wish I were better
I wish I weren't ugly,
Then maybe my mommy
Would still want to hug me.
I can't speak at all
I can't do a wrong
Or else I'm locked up
All the day long.
When I awake I'm all alone
The house is dark
My folks aren't home
When my mommy does come
I'll try and be nice,
So maybe I'll get just
One whipping tonight.
Don't make a sound!
I just heard a car
My daddy is back
From Charlie's Bar.
I hear him curse
My name he calls
I press myself
Against the wall
I try and hide
From his evil eyes
I'm so afraid now
I'm starting to cry
He finds me weeping
He shouts ugly words,
He says its my fault
That he suffers at work.
He slaps me and hits me
And yells at me more,
I finally get free
And I run for the door.
He's already locked it
And I start to bawl,
He takes me and throws me
Against the hard wall.
I fall to the floor
With my bones nearly broken,
And my daddy continues
With more bad words spoken.
"I'm sorry!", I scream
But its now much too late
His face has been twisted
Into unimaginable hate
The hurt and the pain
Again and again
Oh please God, have mercy!
Oh please let it end!
And he finally stops
And heads for the door,
While I lay there motionless
Sprawled on the floor

My name is Sarah
And I am but three,
Tonight my daddy
Murdered me.
(Anonymous)

There are thousands of kids out there just like Sarah. And you can help.

Please pass this poem on because as crazy as it might sound, it might just indirectly change a life. Hey, you NEVER know. Please forward if you are:

*~*~*AGAINST CHILD ABUSE *~*~*

This poem also reminds one of the fight of Terri Schindler Schiavo which no person, disabled or not, should ever have to endure such acts. You can read more of her story here: www.terrisfight.com  or www.zimp.org/documents

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#61   Thursday, May 13, 2004   
========================================================
Hey, we're fast approaching DAC's 5th year Anniversary in June. It sure doesn't seem that long ago and the amount of readers has grown by leaps and bounds. I originally envisioned reaching only Virginia residents but we've surpassed that years ago. It must be true "to be careful what you wish for" but I'm happy everyone has enjoyed our news and growth. I may have my computer down for a few days for computer upgrades but if everything goes well we should be uninterrupted. So if you write and don't get a response soon you'll know why:)

NEXT
Free Electric Wheelchairs for Seniors
Wishes on Wheels provides power wheelchairs to non-ambulatory senior citizens 65 and older at NO cost if they qualify. The power chairs are provided to those who can't walk or propel a manual wheelchair in their home or independent living center who meet the qualifications of the program. Call 800-823-5220 or visit their website at: http://www.threewishes2.com

"Senate Passes Family Opportunity Act!"
"The Senate just passed with a committee substitute S. 622, the Family Opportunity Act, a Grassley-Kennedy-Baucus bill to amend title XIX of the Social Security Act to provide families of disabled children with the opportunity to purchase coverage under the Medicaid program for such children."

Disability Gardening (why not?) read more:
http://www.neffpots.com/disability.htm

Bookshare.org offers 17,000 royalty free texts
http://www.eschoolnews.com/news/showStoryts.cfm?ArticleID=5057

Essays wanted for new book on autism - Deadline: all essays are to be received by August 15, 2004. Parents, People with Autism, Grandparents, Siblings, Friends, and Professionals Share Their Wisdom.
http://www.educationnews.org/essays-wanted-for-new-book-about.htm

Group gives states, fed poor marks for women's health
http://www.cnn.com/2004/HEALTH/05/06/womens.health.ap/index.html

Finding a Writing-Related Job Online
By Greg A. Knollenberg
Article Located at: http://www.writerswrite.com/journal/dec97/gak3.htm

9 Students at School for Deaf Allege Abuse and Sue Nuns
http://www.nytimes.com/2004/05/12/education/12students.html?ex=1085352830&ei
=1&en=fb739f5181377783

DON'T FORGET -- WORLD OF POSSIBILITIES DISABILITIES EXPO read our last story.....

Much more news ahead so read, enjoy and comment if you wish:)

Keith-

========================================================
1. TECHNICAL ASSISTANCE & TRAINING SPECIALIST
2. BROWN V. BOARD OF EDUCATION
3. NCAHB UPDATE HOMEBOUND DEMONSTRATION CRITERIA
4. OCD "OBSESSIVE COMPULSIVE DISORDER
5. FREE TUTORING AVAILABLE
6. FAIR HOUSING -- ACCESSIBLE SIDEWALKS
7. DISTURBING ADA DECISION
8. WORLD OF POSSIBILITIES DISABILITIES EXPO
========================================================
********************************************************
TECHNICAL ASSISTANCE & TRAINING SPECIALIST
********************************************************  
Technical Assistance & Training Specialist

Adaptive Environments

Full-time position for a federally funded project based in a 25-year old non-profit organization. The New England Americans with Disabilities Act (ADA) & Accessible IT Center provides outreach, training and technical assistance to target audiences. Ideal candidate will have knowledge and experience with disability laws, guidelines and standards as well as strong information technology skills and knowledge of the IT industry. Experience with state-of-the-art accessibility in information technology including websites, software, E-learning, & multimedia is strongly preferred. Position requires excellent organizational & communication skills and the ability to travel throughout New England. Salary Range $30,000-$38,000 plus benefits.

Essential Functions:
1. Provide technical assistance on accessible IT and the ADA through a regional 800 number, email and fax.
2. Record all communication on standardized forms and input data in a timely way.
3. Plan, coordinate and present ADA & accessible IT information at trainings throughout New England.
4. Plan and implement an annual calendar of exhibits throughout New England to promote public awareness of the ADA and accessible information technology.
5. General marketing of the New England ADA & Accessible IT Center services.

Essential Qualifications:
1. Good organizational and interpersonal skills.
2. Excellent verbal communication skills including clarity and patience.
3. Strong research and writing skills.
4. Commitment to professionalism evidenced by attention to accuracy, reliability and perseverance.
5. Minimum of an associates degree or IT certification.
6. Ability to manage in-house IT needs including computers, software and telecommunications.
7. Interest and commitment to civil rights for people with disabilities.

Send cover letter and resume by May 28, 2004 to:
Oce Harrison, Ed.D., Project Director
Adaptive Environments
374 Congress St. Suite 301
Boston, MA 02210

For more information visit our website www.NewEnglandADA.org or call
617-695-1225 X27 or email inquiries to: oharrison@AdaptiveEnvironments.org

Adaptive Environments (www.AdaptiveEnvironments.org) is committed to a diverse workforce and affirmatively solicits applicants with disabilities and/or from multi-cultural communities.
(thax HireAbilities)

********************************************************
BROWN V. BOARD OF EDUCATION
********************************************************
Brown v. Board of Education - Information Bulletin # 66   5/04

  May 17, 2004 marks the 50th anniversary of the Brown v. Board of Education decision in which the Supreme Court held that school districts violated the Fourteenth Amendment by racially segregating children in schools.

    What follows is a review of segregation of children based on disability.

    The latest data from the U.S. Department of Education, which annually collects this data state by state and submits it to Congress, presents the following data for the 5,594,431 students between the ages of 6 and 18 with disabilities:

* A composite of "All Disabilities" shows that more than 1,236,373 children 22% of the total with disabilities remain in segregated settings, i.e., they are either entirely in "Separate Schools and Facilities" or spend more than 60 percent of their time "Outside Regular Classes," in separate classes for children with disabilities.  (These are the definitions used by the U.S. Dept. of Education.)

* The flip side shows that only 2,742,219 less than half of all children with disabilities are "integrated" in their schools, i.e., they spend less than 21 percent of their time Outside Regular Classes or, in clearer terms, they spend more than 79% of their time in "regular" classes with children who are not disabled.

* The middle 29% are children with disabilities who spend between 21- 60% of their school hours "Outside Regular Classes," presumably in "resource rooms" only for children with disabilities.  Obviously, the more time they spend "OUTSIDE regular classes," i.e., closer to 60% than 21% of time, the more they are segregated.

    A snap shot by specific disability classification shows:

* For children who have only an "orthopedic impairment"(these children have no other disabilities), 30.2% are in segregated settings (i.e., spend more than 60% of their time outside regular classes).

* For children who have either only a "hearing impairment," 37% are segregated and for children who have only a "visual impairment," 27.6% are segregated.

* By far the most segregation occurs for children classified as having "Mental Retardation."  57.3% of this population are segregated.

A breakdown by State b not local school districts and by disability, graduation rates, drop out rates, etc.,can be found at:
http://www.ideadata.org/PartBDataMeeting2004.asp   
Just click on your State.

    School and education advocates have for too long been primarily parents of individual disabled children.  As with housing and Olmstead issues, the SCHOOL segregation of children with disabilities in schools and educational settings must become an issue that goes far beyond the direct participants.  A truly inclusive society and educational system can and should integrate children with disabilities.

    While education is a "local" issue and you local school districts should be held accountable for segregating children with disabilities, your State Department of Education can and should as a policy issue review why such segregation exists in your local school district.  Advocates should review the extent of disability segregation school district by school district.

    Disability advocates must make education more than an individual child's issue; we must organize around education.  Pretend every child with a disability is your own; would you accept a segregated educational system for your child?

    Tell your school boards and state educational officials that Jim Crow education for children is NOT acceptable, whether based on race or disability.

    Steve Gold, The Disability Odyssey continues

********************************************************
NCAHB UPDATE HOMEBOUND DEMONSTRATION CRITERIA
********************************************************
CMS Instructions for Homebound Exception Demonstration

In a move that signals that CMS has given priority to the implementation of the 3-state demonstration that lifts the homebound requirement for permanently disabled beneficiaries, it has issued detailed systems directions to its contractors on how to implement the demonstration.  The demonstration will last for two years and essentially waive the homebound requirement for persons who otherwise qualify for Medicare home health if: their physician certifies they have a permanent and severe, disabling condition that is not expected to improve, they are dependent in 3 ADLs for life, require skilled nursing more than medication management for life, require daily attendant care, require an attendant or technology assistance to leave the home and does not work for pay outside the home.  The manual outlines a process intended to minimize the impact of accepting such patients on the home health agency and specifies provider education on the program. The effective date of the instruction is October 2004 and can be found at: http://www.cms.hhs.gov/manuals/pm_trans/R3DEMO.pdf
(thax C.A.)

********************************************************
OCD "OBSESSIVE COMPULSIVE DISORDER
********************************************************
John C. Dvorak (Disability-Labeler) for PC Magazine
(re: Mr. Dvorak's OCD article)

Dear friends of those with disabilities, As well as helping others with disabilities such as me keep their rights and housing, I also read articles online which belittle those with disabilities and make fun of those who suffer from them.

Please read this article where John C. Dvorak a columnist from PC Magazine denigrated and belittles disabled those who suffer from OCD. I shall make every effort to 'spread the word' to every single disability organization, which I advocate for; aware of his ‘wit’ and the outrageous fact that he believes it is ‘okie-dokie’ to, blame viruses that "We are all susceptible" to... on disabled OCD office workers... Let John know how you feel discuss this article in thePC Magazine  forums.

Get this when I confronted him in the forum rather than defend his view, he pulled the old: "I got a relative w/OCD" - Oh, how we have all heard this one before... These wonderful disability assisting and advocating organizations judge for themselves as to the veracity of his 'claims.'  This man must be exposed for the ‘disability lie spreading’ person that he really is. Read the 'keywords' carefully, "these people" etc, "click happy people start the next BIG virus" etc. John Dvorak believes 'these people' (people with OCD) will LAUNCH the war, (not be the victims) of the potential meltdown of the Net itself.... 

Mr. Dvorak uses generalizations that we in the disabled community have all heard like this: And if OCD people fit in well in any sort of environment, it's the modern office environment where the ailment may actually be a benefit and lead to rapid promotions. Many with this ailment are geniuses in their own way and work harder than others to compensate for the OCD issues. God forbid we should actually ‘benefit from our illness?”  Here is the article:
================================================
OCD and the Cycle of Virus Doom 
April 26, 2004
By John C. Dvorak
Website URL: http://www.pcmag.com/print_article/0,1761,a=125376,00.asp

An estimated 3.3 million Americans alone have obsessive compulsive disorder, or OCD, and more attention is being paid to the problem than ever before. At least two hit TV shows have main characters who exhibit the problem (Monk and Law & Order: Criminal Intent). The latest iterations of e-mail–based viruses exploit people in the office who have OCD and that's why there is no way that client-based initiatives to stop virus spreading can ever work. Ever. In fact, the virus problem will just get worse. 

********************************************************
FREE TUTORING AVAILABLE
********************************************************
FREE TUTORING AVAILABLE ON NEW WEB SITE

The Supplemental Educational Services Quality (SESQ) Center launched a free Web site (www.tutorsforkids.org
) to help parents of children attending public schools “in need of improvement” take advantage of new, free tutoring opportunities provided by the No Child Left Behind Act of 2001.

Tutorsforkids.org provides information and tools to help parents, educators, policymakers, and program providers ensure that eligibile children get the free, extra academic help they need. Tutorsforkids.org, and other services provided by the SESQ Center, help parents to identify and select local providers to meet their needs, educators to inform parents about their options and make sure they are receiving high quality services, policymakers implement the program and evaluate its effectiveness, and new and potential providers enter the “market” and improve their services. The SESQ Center was established in late 2003 through a grant to the American Institutes for Research (AIR) from the Office of Innovation and Improvement of the U.S. Department of Education (www.ed.gov/about/offices/list/oii/index.html
).

AIR (www.air.org
) is an independent, not-for-profit, social and behavioral research organization that engages in education research, development, evaluation, analysis, training and technical assistance, communications, and assessment.
(thax M.S.)


********************************************************
FAIR HOUSING -- ACCESSIBLE SIDEWALKS
********************************************************
MEMPHIS AREA APARTMENT COMPLEXES FOUND TO VIOLATE FEDERAL ACCESSIBILITY LAW

First Time Federal Court Issues Opinion on Accessible Routes for Individuals with Disabilities

        WASHINGTON, D.C.-The Justice Department today announced that a federal district court in Tennessee ruled that the designers and builders of two Memphis-based apartment complexes violated the Fair Housing Act by failing to provide accessible sidewalks for persons with physical disabilities.

        The decision issued by Judge Bernice Donald of the U.S. District Court for the Western District of Tennessee resolves a contested question of federal disability law; whether a multi-family housing complex needs to provide only vehicular access or must build pedestrian access as well.  This decision is the first time a court has addressed the issue.

        The defendants, the Richard and Milton Grant Company; J. Richard Grant; Milton Grant; John Gillentine; Parker Estes & Associates; and Henry Hart Engineering, planned and built Wyndham Apartments and Camden Grove Apartments without accessible sidewalks from the apartment units to the street and on-site amenities.  The defendants claimed that accessible walkways were not required under federal law because the complexes were designed and built for automobile access only.

        This case was originally brought by the Memphis Center for Independent Living, a non-profit service provider.  The Justice Department intervened in federal court.

        In addition to ruling that accessible sidewalks needed to be provided, the court also held that several features of the apartment units failed to meet the requirements of federal accessibility law.
(thax B.G.)

********************************************************
DISTURBING ADA DECISION
********************************************************
8th Circuit Court Rules Congress Lacked Commerce Clause Authority to Prohibit Fees for Access Under the ADA 

Analysis by Doug Kendall, founder and executive director of Community Rights Counsel, an ADA Watch/NCDR coalition partner based in Washington, D.C.   

By a 2-1 ruling (written by Morris Arnold (Bush I), joined by Roger Wollman (Reagan), dissent by Richard Arnold (Carter)), the Eighth Circuit held in Klingler v. Department of Revenue that Congress lacked Commerce Clause authority under the Americans With Disabilities Act (ADA) to prohibit a $2 fee imposed by the State of Missouri upon individuals with disabilities seeking windshield placards authorizing the use of reserved parking spaces.  

Title II of the ADA prohibits discrimination against people with disabilities. Pursuant to authority delegated to it by Congress, the Department of Justice has issued regulations (28 C.F.R. § 35.130(f)) that prohibit fees that require disabled individuals to pay for their right to reasonably equivalent access. 

A class of Missourians with disabilities sued in federal court arguing that Missouri’s placard fee violated the ADA. In violation of the general rule, the Eighth Circuit skipped over the statutory question of whether, in fact, Missouri’s placard fee violated the ADA (calling this question hard) and proceeded directly to what it termed a “reasonably straightforward and determinative” question under the Commerce Clause.

Critical to the court’s analysis of the Commerce Clause issue was the determination of whether the state’s sale of the placard to disabled individuals constituted economic activity (this “economic/non-economic” inquiry was critical to the Supreme Court’s analysis in both Lopez and Morrison). 

While recognizing that that such a sale can “perhaps be classified as ‘economic’ in a sense,” the court held that “the relevant question seems to be whether the regulated activity is commercial in the sense of being closely connected to some national commercial market.”  Applying this newly-minted test to the placard fee, the court held that the “non-profit revenue collection for state government” cannot be deemed economic activity. 

The only precedent the court cites for this remarkably narrow interpretation of “economic” activity is a dissent from en banc rehearing in United States v. McFarland, 311 F.3d. 376, 396 (5th Cir. 2002). 

Incredibly, the court cites the dissent from McFarland without ever noting that it is a dissent, not a majority opinion, and even states that “[w]e agree with the Fifth Circuit    The Court also questioned whether a $2 annual placard fee would substantially affect interstate commerce. 

Specifically rejecting analogies to Heart of Atlanta Motel and Katzenbach, the court held that: “racially exclusive policies at restaurants and hotels presented an insuperable barrier blocking the ability of many people to complete economic transactions at those establishments. 

The nominal placard fee, in contrast, is unlikely to deter any significant number of people, who would obtain placards if they were free, from purchasing them and thus acquiring the enhanced ability to engage in economic transactions that the placards might afford.” But, as the dissent points out, this analysis is completely unpersuasive. 

The difference between making it more difficult for the handicapped to get into a store and barring them altogether is one of “degree rather than kind.”  Put another way, what if instead of barring blacks, the Heart of Atlanta Motel charged blacks $.50 more a night. 

By the Eighth Circuit’s analysis, it would appear that Congress could not prohibit this form of discrimination under its Commerce Clause power without evidence that a substantial number of potential black hotel guests would be deterred by this nominal charge. 

The same need for specific Congressional findings would apparently apply to a requirement that a wheelchair bound individual pay a quarter for using a handicapped ramp. The appropriate inquiry under the Commerce Clause is whether the class of activities regulated by Congress would, in the aggregate, have a substantial affect on interstate commerce. 

If states around the country could charge fees to disabled individuals to defray the cost of providing equal access, it would plainly have a substantial impact on interstate commerce.   It should not matter that any particular fee, standing alone, might have a relatively slight impact on interstate commerce. 

That is the rule of Wickard v. Filburn, which applied wheat production quotas to wheat intended wholly for use on the farm, is that Congress may regulate one farmer’s trivial home grown production of wheat if it can show that home grown wheat production in the aggregate has a substantial impact on interstate commerce in wheat.  

The Supreme Court went out of its way in Lopez and Morrison to reaffirm the viability of Wickard. Many of President Bush’s nominees – including Jeffrey Sutton, William Pryor, Brooks Smith, Janice Rogers Brown, William Myers and Victor Wolski – have expressed disturbingly narrow views of federal power under the Commerce Clause. 

The Klingler case provides a compelling example of why such views are so problematic and the range of federal protections potentially at risk.  It also represents another in a long series of court defeats (almost exclusively at the hands of judicial “conservatives”) that have defanged the ADA. Richard Arnold's dissent states that "the State of Missouri has made it more costly for certain disabled individuals to gain convenient access to places of business where commercial activity affecting interstate commerce is taking place.

Congress has prohibited such state action by statute, and the prohibition has been made explicit by regulation. Automobiles and department stores are the very stuff of interstate commerce. For these reasons, I respectfully dissent. I would affirm the judgment of the District Court."
(thax ADAwatch)

********************************************************
WORLD OF POSSIBILITIES DISABILITIES EXPO
********************************************************
THE EVENT OF THE YEAR IS ALMOST HERE!

We have exciting news about our upcoming Expos. Some of the features include:
• Free continuous accessible shuttle transportation from the Ravens Stadium
parking lot to the Baltimore Convention Center click on  http://expo.caringcommunities.org
• Special parking rate, only $5.00 per vehicle at the lot
• 48 informative workshops ranging from childrens issues such as parents rights, positive behavioral supports, and inclusion, through adult issues like housing, transportation, and supported employment and much much more
• Local agencies and support groups
• Free benefits planning and help desk
• Product demonstrations
• Exhibitors and attendees from across America (and outside the U.S.A.)
•Meet and Greet Marylands Disabilities Champions(dignitaries will be making special appearances)
• Able Arts plays
• Art Exhibits
• Strolling entertainers including jugglers, clowns and magicians
• Raffle and giveaways (autographed Ravens jersey and more)
• Radio and television personalities invited
• Celebrities and mascots
• Free wheelchair rentals and repair services
• First aid station on site
• Personal care attendents

We are still offering FREE expo passes in bulk amounts. Please call us or reply back with the amount of passes needed for you or your agency to distribute. Please also help us to spread the word by announcing our Expos on your websites and newsletters.

We appreciate all your support and look forward to seeing you!

Mona Freedman, RN
Executive Director

Info about the Expo:
Caring Communities Inc. is pleased to announce that we will be hosting two of the largest and most anticipated disabilities events in the Mid Atlantic Region! The WORLD OF POSSIBILITIES Disabilities Expos will be held at the Baltimore Convention Center June 25-27, 2004 in Baltimore, MD and at the Dulles Expo Center in Chantilly, VA October22-24, 2004.

These premier consumer expositions, which are free to the public, are dedicated to improving the lives of children and adults with disabilities, their families and caregivers, as well as health care and education professionals. WORLD OF POSSIBILITIES will allow an opportunity for an anticipated 6-10,000 attendees to explore a vast array of products and services such as: assistive and adaptive technology, durable medical equipment, computer software, mobility products, living aids and more-all conveniently displayed to see, touch, and compare in a One-Stop Shopping experience. Caring Communities, Inc. is a non-profit 501(c)(3) organization which enhances the ability of families of children with disabilities ages birth to 21 in Maryland, DC and VA to access appropriately trained respite care providers.

Caring Communities, Inc. offers quality respite care training and maintains a registry of trained respite care providers called the Caring Network. Expo proceeds from WORLD OF POSSIBILITES will go directly to serving children with disabilities and their families. Please visit http://www.caringcommunities.org for more information or for free expo passes. Caring Communities phone number is:
1 866 227-4644.

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC ACTION ALERT News V4-#60   Wednesday, May 12, 2004   
========================================================
I have 2 ACTION ALERTS that must be acted upon before Friday the 14th. First I've  some information from our Homeless Intervention Program regarding Section 8 housing.  This is also an e-mail regarding advocating to your Congressional Representatives for Section 8 vouchers.  Literature I have received indicates the Administration's FY2005 proposal would cut more than $1 billion in Section 8 program and the new proposed Flexible Voucher Program will target higher-income households, raise tenant rates, encourage time limits on assistance and eliminate policies that target vouchers for those with disabilities.  To Read a great synopsis of this go to www.tacinc.org and look for Opening Doors publication or try this
link: http://www.tacinc.org/index/admin/index/_uploads/docs/ACF10D7.pdf

AND
"Please support the Alzheimer's Association and become a co-sponsor of Senate Bill 333, The Elder Justice Act." (read below)
(thax B.R. & B.K.)

================
Call to Action
Urge your Representative to join a letter calling for full funding of the Section 8 program in 2005. Call 1-888-818-6641.

For the past three weeks, we've been working to stop the Administration's sudden attack on current (FY2004) voucher funding.  But at the same time, we must keep working to halt the Administration's planned cuts and changes to the voucher program in 2005, which would lead to 250,000 families, seniors, and people with disabilities losing their affordable housing next year alone.

To help, 6 Members of Congress (3 Democrats and 3 Republicans) are inviting all Representatives to join them in sending a letter to the House Appropriations Committee that expresses support for housing vouchers, and opposes the President's 2005 plan. The letter urges full funding for the voucher program in 2005 and expresses alarm that significant changes are being proposed for the program that have not been approved by the authorizing committees.

The letter is being circulated by Representative Nydia Velazquez (D-NY) with Democratic Representatives Jerrold Nadler (NY) and Robert Menendez (NJ), and Republicans Christopher Shays (CT), John McHugh (NY), and Patrick Tiberi (OH). The letter will be sent to the Chair and Ranking Member of the House Appropriations Committee, Representatives Bill Young (R-FL) and David Obey (D-WI).

TAKE ACTION TODAY:
Call your Member of Congress toll free at 1-888-818-6641 and ask to speak with the person who deals with housing. Tell him or her:

"I am very concerned about funding for housing vouchers in 2005.  The Administration plans to cut housing vouchers and turn the program into a block grant, which would be disastrous for low income families, seniors, and others struggling to afford a place to live.  If the President's plan goes through, we would lose [NUMBER] vouchers in our community alone (Data estimating how many vouchers each local public housing authority will lose if the Administration's 2005 proposal is approved can be found at www.centeronbudget.org/3-17-04hous-states.htm.) (Explain the impact these cuts will have in your community and, if appropriate, include an update on the 2004 voucher funding cuts in your area.)

Six Representatives-3 Democrats and 3 Republicans-are collecting signatures for a letter calling on Congress to protect the voucher program in the 2005 appropriations process.  Will your boss join this letter?" (A copy of the letter is at www.nlihc.org.)
If the answer is yes, ask the staff to contact Julie Okoniewski in Ms. Velazquez's office at 225-2361 or Jordan Press in Mr. Shays's office at 225-5541 BY CLOSE OF BUSINESS FRIDAY, MAY 14, to sign on. 

If the answer is maybe or no, ask whether there is any information you can get them to help make a decision. Resources are available at: www.nlihc.org or www.cbpp.org/housingvoucher.htm#Implementation. The deadline for signing on to the letter is the close of business on Friday, May 14.

NOTE:
If your Member of Congress is one of the six listed above who is originating the letter, call and thank him or her for supporting housing for people with low incomes.

If your Member of Congress is Representative Bill Young (R-FL) or David Obey (D-WI), you don't need to ask them to sign the letter, since it will be addressed to them.  However, it is crucial that you call them and urge them to support the voucher program.  The letter is going to Mr. Young and Mr. Obey because, as chair and ranking member of the House appropriations committee, they have tremendous input into how the committee spends its funds.  Explain the importance of housing vouchers in your district, and urge the Representative to fully fund the housing
voucher program in 2005 and to make sure that the program remains intact.

Report the results of all calls to Katie Fisher at Katie@nlihc.org or 202-662-1530 x222. And contact us if your Member of Congress has a question you don't have an answer to. Thank you!

NEXT
Dear friends,


The Alzheimer's Association needs your help today.  Please contact Virginia's two U.S. Senators, John Warner and George Allen and urge them to: "Please support the Alzheimer's Association and become a co-sponsor of Senate Bill 333, The Elder Justice Act."  Please encourage everyone in your e-mail address book to join our efforts to encourage the Senators to become co-sponsors of this vital legislation.If you e-mail, fax or write to Senators Warner and Allen, please use the subject line "I support the Alzheimer's Association and urge you to co-sponsor Senate Bill 333."

Senator John Warner

United States Senate
225 Russell Senate Office Building
Washington, D.C. 20510-4601
telephone:  202-224-2023
email:  senator@warner.senate.gov
 
Senator George Allen
United States Senate
204 Russell Senate Office Building
Washington, D.C. 20510-4604
telephone:  202-224-4024
email: Jason_Money@allen.senate.gov
[or contact your local state representatives]

For your information, Senate Bill 333, The Elder Justice Act, represents the first comprehensive effort at the federal level to address the issues of elder abuse, a problem that is increasing in scope and is well documented in Virginia.  It contains provisions for necessary research, for responding to the needs of victims, for training of responders, and for holding offenders accountable.  This is bi-partisan legislation.  At http://www.elderjusticecoalition.org/legislation.htm you can learn more about the Elder Justice Act.

If you would like more information, please contact me at:


Ian Kremer
Public Policy Director
Alzheimer's Association, National Capital Area
ian.kremer@alz.org

Thank you,

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#59   Monday, May 10, 2004   
========================================================
Finally, in Virginia we have a state budget. All it needs is Governor Warners signature which I'm sure it will get. Some items of interest are provided in my 1st story provided by Maureen Hollowell who has been keeping a keen eye on this budget fiasco. All you advocates did a very good job at keeping the heat on and although we didn't get everything we did pretty well considering. Now go register to VOTE if you haven't already:)

NEXT
For those who support volunteer-based tutoring or mentoring as part of a strategy to keep kids in school, safe during non-school hours, and headed toward jobs and careers.....

There is still time to register for the Tutor/Mentor Leadership Conference
being held in Chicago on May 17 and 18. Workshops on tutoring, mentoring, fund raising, volunteer recruitment, gang prevention, evaluation, etc. are intended to provide ideas that any program can use for constant improvement.  With this conference we're launching an eConference Overlay. This allows people who cannot come to Chicago to participate in the conference and network with some of the people who attend the conference. It starts May 14 and continues till May 19. 

You can review the workshops of the conference and econference at
www.tutormentorconference.bigstep.com. 

Group discounts and scholarships are available. Contact me directly for details.

Daniel F. Bassill
President
Cabrini Connections
Tutor/Mentor Connection312-492-9614

A DISABILITY RESOURCE
Having seen your website, Parents of Near Drowns, I commend all those who attempt to help improve the lives of the disabled. I also have a disability (Cerebral Palsy) and my book has been internationally read and used as a tool to encourage many who are suffering--physically, socially and/or emotionally. Their family and friends often find insight, direction and solace as well. Please take a moment and read about it at: http://www.bitterorbetter.walton.com. Upon request, an e-book format is also available at no charge, sent directly into your Inbox.
Kind regards,
Paul Haigazian

AND NEW NAME BETTER BENEFITS FOR VA CHILDREN
FAMIS and FAMIS Plus offer uninsured children of moderate to low-income families comprehensive medical benefits, including doctor's visits, hospital care; drugs, dental care, and eye care. Families may apply for FAMIS or FAMIS Plus by calling toll-free 1-866-87FAMIS (1-866-873-2647), or by visiting their local Department of Social Services office.  For more information about FAMIS or Cover the Uninsured Week please visit, www.famis.org.

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. MEDICAID RELATED BUDGET UPDATES (VA ONLY)
2. US SENATE TO EXPAND MEDICAID ELIGIBILITY 4 DISABLED CHILDREN
3. NEW DISABILITY POINT PERSON AT WHITE HOUSE
4. 3RD ANNUAL JUVENILE JUSTICE SUMMIT
5. AUTISM: BEST PRACTICES
6. MAY ADA NEWS & INFO
7. MAY INFORMATION SUMMARY
========================================================
********************************************************
MEDICAID RELATED BUDGET UPDATES (VA ONLY)
********************************************************  
Advocates,

The following budget item descriptions are from the General Assembly's web site.  In some cases I have shortened the descriptions.  The budget items below are those related to Medicaid Waiver services.  All budget amendments can be seen at -

http://leg2.state.va.us/WebData/04amend5001.nsf/Conf%20Agy?OpenForm&Start=30&Count=30&Expand=36&Seq=2

The General Assembly has agreed to provide funds for the following:
105 new DD Waiver slots
700 new MR Waiver slots
180 new MR Waiver slots in 2005 depending on "capacity"
160 new MR Waiver slots to get people out of training centers (institutions)
300 new slots for a new day support Waiver for people with MR
5% increase in personal care rates
small increase in MR Waiver provider rates.
These items are described below.

Maureen Hollowell

105 DD WAIVER SLOTS
This amendment provides funding for a total of 105 new DD waiver slots for disabled individuals living in the community by the end of the 2004-06 biennium. Language that made this increase contingent upon passage of the Governor's tax proposal is eliminated in order to ensure that additional DD waivers will be provided.  (Item 326 #13c)

700 MR WAIVER SLOTS
Add 700 new waiver slots by the end of the 2004-06 biennium for individuals living in the community. (Item 326 #15c)

180 MR WAIVER SLOTS
By July 1, 2005, the Department of Medical Assistance Services, in consultation with the Department of Mental Health, Mental Retardation, and Substance Abuse Services and Community Services Boards, shall determine whether sufficient capacity exists to expand the Mental Retardation (MR) Waiver Program to 880 slots in fiscal year 2006. In the event the agencies determine that sufficient capacity exists to absorb the additional 180 MR waiver slots, the Department shall develop a plan to meet the needs of 180 new individuals. (Item 326 #15c)

160 MR WAIVER SLOTS TO GET PEOPLE OUT OF TRAINING CENTERS
Funding for 160 MR waiver slots for individuals residing in state mental retardation training centers.  (Item 326 #15c)

300 SLOTS FOR A NEW DAY SUPPORT WAIVER FOR PEOPLE WITH MR
For the second year of the biennium budget (beginning July 2005) there would be a new Waiver for day support services.  Contingent upon approval by the Centers for Medicare and Medicaid Services, DMAS is directed to develop such waiver in coordination with DMHMRSAS, and affected constituents. The Department shall have the authority to enact emergency regulations under § 2.2-4011 of the Administrative Process Act to effect this provision.  This amendment provides $2.9 million from the general fund in the second year and matching federal Medicaid dollars to create a new Day Support Waiver program for 300 individuals with mental retardation who are living at home and are on the waiting list for mental retardation waiver services. Day support services include a variety of training, assistance, support, and specialized supervision provided in a nonresidential setting to increase self-help, socialization, and adaptive skills. This initiative, in addition to the expansion of the Mental Retardation waiver program by 700 slots, will provide services for almost 1,000 individuals with mental retardation who are living in the community.  (Item 326 #19c)

INCREASE IN MR WAIVER PROVIDER RATES
Out of this appropriation, $500,000 from the general fund and $500,000 from nongeneral funds the first year and $4,700,000 from the general fund and $4,700,000 from nongeneral funds the second year shall be used to increase the rates paid for the community-based Medicaid mental retardation waiver program.  This amendment provides a modest rate increase on July 1, 2004, and a three percent increase on July 1, 2005, for the rates paid to providers of Medicaid mental retardation waiver services to allow providers to keep pace with the inflationary costs of providing services.  (Item 326 #12c)
 
STOP TO PLANNING FOR NEW "CHRONIC CARE CONDITIONS" WAIVER
This amendment directs DMAS to restore the elderly case management services and abandon efforts to seek a Research and Demonstration 1115 Waiver for the management of chronic care conditions of elderly and disabled persons. No change in funding is required.  (Item 326 #3c)

STOP TO CHANGES TO THE AIDS WAIVER
This amendment modifies language in the introduced budget which would amend, terminate and/or combine the Medicaid Elderly and Disabled Waiver and the AIDS Waiver programs. It would ensure that eligible AIDS waiver recipients continue to receive necessary services, such as nutritional supplements and case management services, whether the AIDS Waiver remains as a separate program or is combined with the Elderly and Disabled Waiver program.  (Item 326 #4c)

05/10/04 -- UPDATE

Today the General Assembly finalized their expenditures for the budget.  105 new DD Waiver slots, 700 new MR Waiver slots, 160 new MR Waiver slots designated for people to leave training centers, and 300 MR slots for some sort of day support program (this still needs to be clarified)

For FY 2006 a process should be put in place for DMAS to absorb an additional 180 MR Waiver slots.

More information after I have time to review the budget in more detail.
(thax M.H.)

********************************************************
US SENATE TO EXPAND MEDICAID ELIGIBILITY 4 DISABLED CHILDREN
********************************************************
CQ TODAY MIDDAY UPDATE
Published by Congressional Quarterly and CQ Today
www.CQ.com

Thursday, May 6, 2004 - 2:02 p.m.

Today in Washington

SENATE VOTES TO EXPAND MEDICAID ELIGIBILITY FOR DISABLED CHILDREN

The Senate passed a bill by voice vote today that would allow states to permit middle-income families to "buy into" Medicaid to gain coverage for disabled children. The bill (S 622) would allow families earning up to 250 percent of the federal poverty level ($47,125 for a family of four) to gain Medicare coverage for the often substantial health care costs of their disabled children. Charles E. Grassley, R-Iowa, and Sen. Edward M. Kennedy, D-Mass., sponsored the bill, which would cost $7 billion over 10 years. A companion bill (HR 1811) in the House, sponsored by Republican Pete Sessions of Texas, has yet to be considered by the Energy and Commerce Committee. Advocates say many families must turn down promotions, refuse new jobs and takes other steps to keep their income low enough to maintain Medicaid eligibility. The private insurance that working parents have is often too limited or the co-payments become too costly for families who have a disabled child.
(thax M.S.;)

********************************************************
NEW DISABILITY POINT PERSON AT WHITE HOUSE
********************************************************
"New Disability Point Person at White House"

The White House shares the following announcement about Tracy Justesen becoming Associate Director for the White House Domestic Policy Council:

Tracy R. Justesen recently joined the White House staff as Associate Director for the Domestic Policy Council.  Tracy will handle the President's New Freedom Initiative and issues important to individuals with disabilities.  He comes to the White House after serving as an Attorney in the Civil Rights Division of the Department of Justice.  He served as a technical advisor to the President's Commission on Excellence in Special Education and as the President and Chief Executive Officer of one of the nation's premier centers for independent living.

Tracy will return to his position as an attorney with the Department of Justice upon completion of this assignment to the White House. 

He holds a Master of Science in Education, a Juris Doctorate, and an LL.M. in international law with a focus on civil rights issues affecting individuals with disabilities.  He also holds an Honorary Doctorate for his public service.  Tracy may be reached by email at: TJustesen@opd.eop.gov.
(thax jfa)

********************************************************
3RD ANNUAL JUVENILE JUSTICE SUMMIT
********************************************************
The Third Annual Juvenile Justice Summit is scheduled for Thursday, May 13, 2004 at Virginia Union University. Registration, conference information, and directions can be found on the PEATC website (www.peatc.org).

Funding from Parents and Children Coping Together (PACCT) and the Department
of Mental Health, Mental Retardation and Substance Abuse Services, we will be able to waive the $55 registration fee for family members who also attend the Understanding Special Education workshops to be held  at the summit.

Attendance is a must for parents and personnel unfamiliar about how the youth and disabilities services systems, juvenile justice system, and special education can be powerful assets in achieving more positive outcomes for youth who are currently or potentially involved in the juvenile justice system.

Topics include
Understanding Juvenile Justice in the State of Virginia
Best Practices for Keeping Children in School
Prevention and Improvement of Juvenile Justice Outcomes
Getting Help for Your Child with Disabilities in Detention, Department of Correctional Education and the Criminal Justice System
Pre and Post Transition Strategies from Detention & Incarceration to School and Home
Improving Educational Outcomes for Children with Disabilities in Foster Care and Juvenile Justice Systems

Understanding Special Education.
Lt. Governor Tim Kaine will be the luncheon speaker.
Please let parents and professionals in your community know about this exciting event.

Cherie Takemoto
Executive Director

Cherie Takemoto
Executive Director
Parent Educational Advocacy Training Center (PEATC)
6320 Augusta Dr. Suite 1200
Springfield, VA 22150
www.peatc.org
(thax D.M.)

********************************************************
AUTISM: BEST PRACTICES
********************************************************
Autism: Best Practices
With the inclusional model, it's important to be able to meet the needs of all of your students. Find out how you can help the autistic student. If he/she hasn't been formally diagnosed, have a look at the diagnostic checklist....read more

Learning Disabled?
What you need to know is all right here! Characteristics, best practices and some important advice. Learn more. Remember......most learning disabled children have average or above average cognitive abilities!...read more

Believe In All of Your Students!
"You have to remember, no kid wants to be out of control. They're not bad kids; they just do bad things," she said. "Generally, when you get to see a picture of their whole life, you understand them a lot...read more
(thax about.com)

********************************************************
MAY ADA NEWS & INFO
********************************************************
(list shortened because other news is old)

Differentiated Instruction

May 11, 2004
Ohr Kodesh Congregation
Chevy Chase, MD
This seminar is sponsored by the Board of Jewish Education and presented by Dr. Karen Gazith, Director of Educational Services at the Bronfman Jewish Education Centre in Montreal. For more information, contact Lenore Layman at 301-255-1952 or e-mail lenore@bjedc.org

5. National ADA Symposium and EXPO!

May 11 - 13, 2004
Kansas City Hyatt Regency
Kansas City, MO
The National ADA Symposium is hosted by the network of Disability & Business Technical Assistance Centers (DBTACs). For more information, visit http://www.adaproject.org

6. Ask the Department of Justice

TELECONFERENCE
May 18, 2:00 p.m. Eastern Time
Speaker: John Wodatch, Chief-Disability Rights Section, US Department of Justice
Bring your tough questions regarding a specific aspect of the Title II or Title III provisions of the ADA or any of the enforcement activities DOJ has undertaken over the past year. For more informaiton or to register, call the ADA & IT Information Center at 1-800-949-4232 V/TTY or visit http://www.adainfo.org/resources/#distance

7. How to Determine Essential Requirements for Students with Disabilities

90-minute Interactive Audio Conference
May 19, 2004
1:00 - 2:30 PM Eastern Time
Those who determine appropriate accommodations for students with disabilities must consider both the disability-related limitations and the integrity of the curriculum. This balance can be especially difficult when reviewing requests for course substitutions or assessing the appropriateness of technical standards in a course of study that includes practical demonstration of skills. Ascertaining whether a course or a technical standard is essential to the program of study is a crucial step in determining what, if any, accommodations can be made.

Registration price per listening site -- no matter how many people are in the room -- is $249. Can’t make the date? Why not order the CD package instead? In it, you'll receive all of the handouts, as well as the entire 90-minute speaker and Q&A session on CD.   

For more information or to register, visit http://www.thompsoninteractive.com/index.asp or call toll-free: 1-800-925-1878 (please be sure to mention your priority code: FNMK32002).

8. Creating Inclusive Middle and High Schools

May 25, 2004
9:30 a.m. - 2:30 p.m.
The Meeting House
Columbia, MD
Douglas Fisher, Ph.D. will present this workshop for families, educators, and administrators. For more information, visit http://www.howard-autism.org/

9. Partners Building Bridges

May 25-27, 2004
Gallaudet University Kellogg Conference Center
Washington, DC
This national training conference is for state coordinators and related professionals serving individuals who are deaf, deaf-blind, hard of hearing, and late deafened. For more information, visit http://www.rcep6.org/Events%20Calendar/txt0504.htm

10. National Disability Mentoring Day: Career Development for the 21st Century

October 20, 2004
Disability Mentoring Day (DMD) is designed to enhance internship and employment opportunities for people with disabilities by bringing them together with employers for a day of job shadowing and other hands-on career exploration activities. For more information, visit: http://www.dmd-aapd.org/

11. EASI Online Learning Opportunities

Equal Access to Software and Information (EASI) offers a variety of online courses, clinics, and webcasts on accessible information technology for people with disabilities. Check it out at: http://www.rit.edu/~easi/index.htm

NEWS AND RESOURCES

12. “Defense Department Named Employer of the Year”

Readers of Careers and the Disabled magazine have chosen the Defense Department as public-sector employer of the year. Read this Pentagram article at DCMilitary.com: 
http://www.dcmilitary.com/army/pentagram/9_16/national_news/28636-1.html

13. Raytheon Signs on to EEOC “Referral Back” Program

The U.S. Equal Employment Opportunity Commission (EEOC) announced that Raytheon, a global technology industry leader, has signed on to the EEOC's "referral back" program in seven geographic areas, including the Baltimore-Washington metropolitan area. Under this program, an individual who has filed a discrimination charge may elect to utilize the employer's existing alternative dispute resolution (ADR) program. Read the EEOC’s press release: http://www.eeoc.gov/press/4-21-04.html

14. “Cirque Du Soleil to Pay $600K to Settle HIV-Bias Allegations”

Cirque du Soleil, Inc. has agreed to pay $600,000 to settle a complaint brought by a performer who alleged he was fired because he is HIV-positive. Read this article in the Business and Legal Reports: http://hr2.blr.com/Article.cfm/Nav/5.0.0.0.29663

15. ICDR Reports on Mobility Devices and Technology

The Federal Interagency Committee on Disability Research has two new reports available on its web site.  The Interagency Working Group on Assistive Technology Mobility Devices “Report on Assistive Technology Mobility Devices (ATMDs)” and “Within Our Reach - Findings and Recommendations of the National Task Force on Technology and Disability” are posted at: http://www.icdr.us/pubs.html

16. Family sues Nazareth (PA) YMCA

A family of a son who is mentally retarded has filed a lawsuit against the Nazareth YMCA. The family claims that the YMCA’s policy, which requires people with cognitive disabilities to be accompanied by an aide, is discriminatory. Read this article in the Morning Call online: http://www.mcall.com/news/local/all-a1_5ymcasuitapr20,0,2493963.story?coll=a11-newslocal-hed

17. “Lawyer's Disability Spawns Aid Bill”

The experiences of a Tennessee lawyer spurred the introduction of a bill that would expand the au pair program to allow foreign students to work in the U.S. providing people with disabilities with personal assistance. Read this article in the Tennessean: http://www.tennessean.com/nation-world/archives/04/04/50418585.shtml?Element_ID=50418585

18. DOJ and IRS Accuse National Audit Defense Network of Tax Scams

The civil case, filed Tuesday in Las Vegas by the Justice Department and Internal Revenue Service, accused the National Audit Defense Network (NADN), a group of related companies and 13 individuals, of selling phony home-based Internet businesses that promise thousands of dollars in tax credits under the Americans with Disabilities Act (ADA). This article is in the Washington Post (registration required):
http://www.washingtonpost.com/ac2/wp-dyn?node=admin/registration/register&destination=register&nextstep=gather&application=reg30-business&applicationURL=http://www.washingtonpost.com/wp-dyn/articles/A12915-2004Apr14.html

19. Fair Housing Act: DOJ Sues District of Columbia

The Department of Justice sued the District of Columbia for violating the Federal Fair Housing Act by refusing to allow four group homes for children with disabilities to open. Each group home would have served the needs of six abandoned or neglected children. Read the Department of Justice press release:
http://www.usdoj.gov/opa/pr/2004/April/04_crt_244.htm

20. “Making Government Accessible - Online”

Federal Computer Week recently partnered with San Francisco-based SSB Technologies Inc. to evaluate the degree to which a select sampling of the Bush administration's e-government initiatives were accessible to people with disabilities. Read this article at FCW.com: http://www.fcw.com/fcw/articles/2004/0419/feat-access-04-19-04.asp

21. Preparing for College

Many resources on the Internet can be used to help high school students with disabilities prepare for college. A new DO-IT publication guides students through a set of preparatory experiences. Some of the resources included are good for parents and teachers to take a look at, too. Check it out at http://www.washington.edu/doit/Brochures/Academics/cprep.html

22. “Could Brain Implants Liberate Students with Disabilities?”

Human trials are set to begin on an interface involving chips implanted in the brain that one day might enable students with severe disabilities to communicate effectively and even learn in a traditional classroom setting. Find this article in the eSchool News: http://www.eschoolnews.com/news/showStoryts.cfm?ArticleID=5003

23. “UB Grant Focuses on Assistive Technology”

The University at Buffalo's Rehabilitation Engineering Research Center on Technology Transfer, or T2RERC, has received a $4.75 million five-year grant to research, evaluate, transfer and commercialize assistive devices for persons with disabilities. Read the article in the Buffalo Business First: http://buffalo.bizjournals.com/buffalo/stories/2004/04/19/daily38.html?jst=b_ln_hl

24. “Apple to Embed Assistive Technology Into New Versions of OS X”

Read this article in the “IT Toolbox”: http://crm.ittoolbox.com/news/dispnews.asp?i=113499&t=99
(thax K.G.)

********************************************************
MAY INFORMATION SUMMARY
********************************************************
REFLECTIONS FROM A DIFFERENT JOURNEY:  The subtitle of this new book edited by Stan Klein and John Kemp (with a forward by Marlee Matlin) is “What Adults with Disabilities Wish All Parents Knew.”  What a wonderful journey you will have as you travel through the thoughts presented by the 39 ordinary adults who happen to have been born with or developed a disability during their developmental years.  I included this book in last month’s newsletter, but read it after publication.  It is an extraordinary collection of essays, and I urge everyone to order a copy and not only read it, but share it with friends and colleagues.  You can find it on line through Amazon or http://www.disabilitiesbooks.com/index.html

CALL FOR SUBMISSIONS: The Association on Higher Education and disability (AHEAD) is soliciting articles for an anthology about first-year college students with disabilities. The purpose of the book is to educate prospective college students with disabilities, parents of students with disabilities, university personnel, and transition specialists in K-12 education, through the voices of current and former college students. The book will focus on two major issues: the experience of graduating from high school and going to college; and life during the first year of college as a student with a disability. Fictional short stories, essays, poetry, photographs and art about college experiences are welcome. The deadline for submissions is June1, 2004. http://www.ahead.org/publications/anthology.html 

UNITED WE RIDE: The Department of Transportation, with its partners at the Departments of Health and Human Services, Labor and Education, are launching United We Ride -- a new five-part initiative-- to break down the barriers between programs and set the stage for local partnerships that generate common sense solutions and deliver A-plus performance for everyone who needs transportation.  For more information, go to http://www.fta.dot.gov/CCAM/www/index.html

SEEKING PEOPLE OF ALL AGES WITH INTELLECTUAL OR DEVELOPMENTAL DISABILITIES: The Beach Center on Disability at the University of Kansas is seeking people to respond to a survey about using technology.  The survey is at http://survey.ablelinktech.com/QuestNet/bcstart.asp

THE DISABILITY RIGHTS TOUR: The National Coalition for Disability Rights is conducting the 2004-2005 Campaign for the Human Rights of People with Disabilities, a nationwide bus tour and concert series. The Disability Rights Tour will include six anchor events in major cities, numerous other state and local events and will conclude in Washington, DC in 2005, on the 15th anniversary of the ADA. Artists who have teamed with Active Music on previous events have included Stevie Wonder, Bonnie Raitt, Bruce Springsteen, Willie Nelson, Crosby Stills & Nash, Joan Baez, Judy Collins, Melissa Etheridge, Natalie Merchant, Robin Williams, Whoopi Goldberg and many others. Events will feature musical performances as well as the work of disability rights photographer Tom Olin. Olin’s photographs, which have been displayed at the Smithsonian, provide a powerful visual history of the disability community’s struggle for human rights. Events will also include disability town meetings and children's ADA poster contests.  For information, go to http://www.adawatch.org 

THE 2004 INAUGURAL DISABILITY PRIDE PARADE:  This event will be held in Chicago, Illinois, on Sunday, July 18, 2004, with Yoshiko Dart serving as the official Grand Marshal for the parade. Information and registration forms are available at: http://www.disabledandproud.com/forms.htm

START ON SUCCESS (SOS) MARKS 10TH ANNIVERSARY:  The National Organization on Disability’s school-to-work transition program, Start on Success (SOS), marked its 10th anniversary and this spring’s graduation of its 1,000th student during a ceremony held at The Library of Congress in Washington, D.C. on April 15. Beginning with three pilot internships, SOS has expanded to 19 sites in five states.  Most programs are collaborations between inner city high schools and nearby universities, hospitals or corporations. For more information contact NOD at (202) 293-5960 or www.nod.org. 

DISABILITY MATTERS WITH JOYCE BENDER: An international talk radio shows with real-time captioning focused on the employment and empowerment of people with disabilities. Hear prominent disability leaders senior executives from the private sector every Tuesday from 2:00pm - 3:00 pm Eastern Time on www.voiceamerica.com.

PUBLICATIONS & MEDIA RESOURCES & RELEASES

FIRST COMPREHENSIVE STUDY OF WEB SITE ACCESSIBILITY: The Disability Rights Commission (DRC) commissioned the Centre for Human Computer Interaction Design at City University, London, to conduct a study, which included evaluation of 1,000 representative web sites, seeking information from 700 organizations and 400 web site developers, etc. The 56-page report -- "The Web: Access and Inclusion for Disabled People" is available in printed, PDF, audio, Braille, and other formats from the DRC at http://www.drc-gb.org   For suggestions on how to make a web site more accessible, go to Seven Easy Steps Toward Web Site Accessibility: http://kpope.com/seven/index.php TOPIC:  Technology/Accessibility 

NEW COLLECTION OF SPINAL CORD INJURY ESSAYS:  “From There to Here” edited by Gary Karp and Stanley D. Klein, Ph.D. Presents 45 personal accounts of individuals adjusting to life after a spinal cord injury. Available from by calling 888-850-0344 x 209 or on the web at www.newmobility.com. (click on the “bookstore” button on the left)

RSDSA Patient Resource Directory Updated:  The RSD Syndrome Association recently released the 2nd edition of In Pain, Out of Work, Can't Pay the Bills, a directory of services for low-income patients, is now on the web. Go to http://www.rsds.org/4/resources/out_work/out_of_work_2.html

WEB SITES

Useful Websites on Disability Topics and Issues:

Education Related
http://www.heath.gwu.edu/ The HEATH Resource Center, located at The George Washington University Graduate School of Education and Human Development, is the national clearinghouse on postsecondary education for individuals with disabilities. Support from the U.S. Department of Education enables the clearinghouse to serve as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at American campuses, vocational-technical schools, and other postsecondary training entities.

Employment Related
www.diversityworld.com Diversity World
www.worksupport.com Information, resources and research about work and disability issues
www.ibm.com/able IBM's Accessibility Center Web Site with information on News, Guido Corona's Blog, Accessibility, Products, and much more.
http://www.eop.com/cd.html Careers and the Disabled
www.usbln.com The web page for the Business Leadership Network
www.earnworks.com A free service to connect employers with disability staffing agencies
www.jan.wvu.edu The Job Accommodation Network
http://www.hireabilities.org/ The web page for the new organization by and for emerging professionals with disabilities, HireAbilities

General Information & Resources
www.aapd-dc.org  American Association of People with Disabilities
www.nod.org National Organization on Disability
http://www.halftheplanet.org Half the Planet Foundation
http://www.disabilityresources.org Disability Resources on the Internet
http://www.naric.com/ National Rehabilitation Information Center (NARIC)

Government
http://www.disabilityinfo.gov  Federal website of disability-related government resources
http://www.grants.gov  Federal website providing information on federal government grants
http://www.socialsecurity.gov/work Federal website providing information on returning to work for individuals receiving Social Security based on disability.

Internet Disability Job Boards
http://www.jobaccess.org http://jobs.hiredisability.comwww.recruitability.orghttp://www.business-disability.com/Job_Seekers/job_seekers.asp
(thax M)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#58   Tuesday, May 04, 2004   
========================================================
I get lots of snail mail sent to me almost daily from organizations, groups or what have you with brochures of their orgs., etc., but never a note on what they want me to do with this information.  I'm glad to promote your cause, group or business but from now on if you don't send me a letter of what you'd like done or better yet, write up your own promotion, I simply will not try to figure out what you want me to do. I have lots of information to sort through now without having to figure out what you want posted.  Fair enough?  This will save us all time and be best for you too. Thank you.

Here are some interesting sites:

Keeping track of Medicaid waivers

The National Assoc. of State Medicaid Directors keeps track of waiver programs.  This is a very informative website that contains all sorts of information, data, and statistics.  It also contains data on children enrolled in MR/DD 1915c waivers by state, age and program.  http://www.nasmd.org

The Center for Personal Assistance Services
The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the United States. Personal assistance services (PAS) refer to help provided to people with disabilities to assist them with tasks essential for daily living. These tasks include bathing, dressing, getting around, toileting, eating, shopping, remembering things, and other activities. PAS, along with assistive technology such as wheelchairs, text readers, and hearing aides, help people with disabilities to participate in activities at home, at work, and in the community. http://www.pascenter.org 


Walgreen’s Contributions
Walgreens Co. awards grants in program areas concerning Health and Human Services, Education, Civic and Community, and Arts and Culture. Within these categories, health and education are a major priority.
http://healthinschools.org/grants/ops143.asp

Aetna Foundation Regional Community Health Grants Program:
The 2004 Aetna Foundation Regional Community Health Grants Program focuses on reducing racial and ethnic disparities in health care. Aetna will provide up to $2 million to support programs to reduce disparities through this Request for Proposal. http://healthinschools.org/grants/ops142.asp

The Center for Health and Health Care in Schools (CHHCS) http://www.healthinschools.org 


AND
For folks who are lost in the maze of alphabet soup, HandiNet has an online Acronym Database to help you find what all those initials mean! http://www.handinet.org/Alphasoup/alphasoup.asp
At present, there are just shy of 800 different acronyms in the database.  
(thax W.K.)

DON'T FORGET
Medicaid Waiver Workshops, May 7 & 8
May 7: Medicaid Waiver Workshop at the Endependence Center of Northern
Virginia from 12:30 - 3 p.m. For information, contact the ENDependence Center of Northern Virginia (ECNV) at 703-525-3268 or TTY 703-525-3553. To register, call 866-323-1088. May 8: Medicaid Waiver Workshop at the Chantilly Library from
10:30 - 1pm. For information, contact Kathy May at 703-532-3214. To register, contact the Fairfax County Public Schools' Parent Resource Center at 703-204-3941. Registration is limited.

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. PUBLIC HEARING ON COMPUTERIZED VOTING SYSTEMS, MAY 5TH
2. CDBG AND HOUSING
3. CELEBRATE COMMUNICATION, MAY 22, WITH NVRC
4. BRIDGES4KIDS
5. AccessWorld MAGAZINE FOR BLIND, FREE ONLINE
6. JOB - VIOLENCE PREVENTION SPECIALIST
7. DRUG HELPS KIDNEY DISEASE -- PLUS MORE STORIES
========================================================
********************************************************
PUBLIC HEARING ON COMPUTERIZED VOTING SYSTEMS, MAY 5TH
********************************************************  
Electronic touchscreens make voting independently and secretly a reality for people with disabilities.  The addition of a voter verified paper ballot, an uncertified and untested idea, jeopardizes voting independence, is inaccessible to people with disabilities and is discriminatory.  The Election Assistance Commission is holding its first public hearing on May 5th on the Use, Security and Reliability of Computerized Voting Systems. It’s vitally important that we demonstrate by our attendance that we care about voting rights!  Seating for the hearing is at a premium and you must call me to register for a spot.  If you find your attendance plans change, notify me ASAP so I can make your space available for someone else who wants to attend.  Angela Katsakis, AAPD, 202-457-0046 x25.  The hearing agenda is at the end of this email and as an attachment.

The Election Assistance Commission hearing will be:
What: Public Hearing on Use, Security and Reliability of Computerized Voting Systems
When: May 5th, 9am-4pm with an hour lunch break
Where: EPA Building
1200 Pennsylvania Ave, Room 3000
Rachel L. Carson Great Hall Ariel Rios North Building
Washington, DC


Via Metro:
Federal Triangle Metro Stop, on the blue and orange lines

You can s
ubmit written testimony of any length by Wednesday, May 5, 2004.  Send it to testimony@eac.gov.  

While email is preferred, it can be mailed to the following address: 
US Election Assistance Commission, 1225 New York Ave, NW, Suite 1100, Washington, DC  20005

Suggestions for testimonial format are as follows: double spaced, with an executive summary, highlight the important points, and details of the testimony, in that order as a recommended format. 

There will be a sign language interpreter and some set aside seating for people with disabilities.  Bring ID and arrive early. 

At this writing, it’s not certain that C-span will broadcast the hearing.  The EAC needs advocates to email to the following addresses requesting that they broadcast the hearing.  Send your emails to dceditor@c-span.org and eschweiger@c-span.org  to request the broadcast of the May 5th EAC hearing.   

Angela Katsakis
Disability Vote Project Coordinator
AAPD (American Association of People with Disabilities)
1629 K Street, NW, Suite 503
Washington, DC  20006
1-800-840-8844 (V/TTY)

VOTE AS IF YOUR LIFE DEPENDS ON IT, BECAUSE IT DOES.

(thax M.C.)

********************************************************
CDBG AND HOUSING
********************************************************
CDBG and Housing - Information Bulletin #65, 5/04

    Nationally, about $3.5 billion dollars were spent nationally under HUDS's federal Community Development Block Grant (CDBG) program in each of the past three fiscal years (01, 02 and 03).  A breakdown of the $3.5 billion shows:

nearly $1 billion went each year for "housing;"
a little less than $1 billion went for "public improvements"
(including street improvements, sidewalks and removal of architectural barriers); and
another $500 million went for "public services" (including services for the disabled, rental housing subsidies, and security deposits).

    A number of people have asked how their local and State officials have ACTUALLY SPENT the CDBG funds that your communities received -- show me
where the money went.'

    HUD has available the actual expenditures for each of FY 01 and FY 02 by grantee (either YOUR local and/or State housing offices) throughout the country.  This information is very important for disability advocates for a number of reasons:

    1.  If CDBG funds were used for construction and/or rehabilitation of housing (whether single-unit or multi-unit and whether privately or publicly owned - it does not matter), there MUST be AT LEAST 5% accessible units and they MUST accept section 8 vouchers OR be affordable to SSI recipients.  You should know where these houses are located and check them out.  They probably are listed in your Consolidated Plans.
    2.  If the "public improvement" and/or "public services" funds were used for streets and sidewalks, they better be fully accessible.  Same for every type of "public improvement."
    3.  If the CDBG funds did not go for disability issues, you should inquire about it and find out why they did not.
    4.  Getting this information for the past few years, gives you a lot of ammunition in your fight this and next year.  If the disability community was shortchanged in the past, force your officials to make it up.  Remember they must have Consolidated Plans for the allocation of CDBG funds, and they must have two public hearings before these Plans can be approved.

Here is how to find out how YOUR CDBG funds were actually expended.
Step # 1- go to
http://www.hud.gov/offices/cpd/communitydevelopment/budget/disbursementreport
s/index.cfm 
Step # 2 at the bottom of that page is a map; click on your state. 
Step # 3- then click on your city.  A "Use of CDBG funds by [the name of your city]" will appear.
Step #4 - there are two separate years in PDF format.  These are actual disbursements.  Under the Activity Group, you will find "HR" for housing, "PI" for public improvements, and "PS" for public services.

    The expenditure of CDBG funds is discretionary and your local housing professionals and politicians could expend 100% of the CDBG funds on "accessible,
affordable, integrated" housing -- IF you are at the table and you are applying sufficient pressure.  They could use these funds to make your cities and counties a model for the disability community IF the disability community made CDBG funds a disability issue.

        Steve Gold, The Disability Odyssey continues

Back issues of other Information Bulletins are available online at: http://www.stevegoldada.com with a searchable Archive at this site.

********************************************************
CELEBRATE COMMUNICATION, MAY 22, WITH NVRC
********************************************************
Celebrate Communication, May 22

The Northern Virginia Resource Center for deaf and Hard of Hearing Persons will its second Celebrate Communication event at George Mason University's Center for the Arts on Saturday, May 22, from 10 am to 3 pm.  Co-sponsored by the Helen A. Kellar Institute for Human DisAbilities, this will be a day of discovery for everyone in the community - hearing, hard of hearing, and deaf - with exhibits and demonstrations of the many resources available to improve communication for people who struggle with deafness and hearing loss.  Seniors, children, parents, friends, families and colleagues will have a wealth of information to choose from on topics such as Cochlear Implants, Hearing Aids, the ADA, Government and County Services, American Sign Language and Cued Speech, Access at the Kennedy Center, and Hearing Dogs.  Presentations will be given by the Virginia Assistive Technology System, by hearing dogs from Fidos for Freedom, and by experts in the field of assistive technology.  The Lions Club will be offering free vision and hearing screenings in their mobile van.  Celebrate Communication will also be a fun day, with arts and crafts, activities for children, snacks, door prizes and raffles.  Food will be available from Bion's Grill, and morning coffee will be provided by Starbucks.
(thax DS News)

********************************************************
BRIDGES4KIDS
********************************************************
Read the bridges4kids News Digest online!  http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeebboDaTbafpLKt/

National News

CO Later Best for Learning?
Amy Bounds, Daily Camera, March 15, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zefbboDaTbafpLKt/
Denver Public Schools is considering starting high schools at 9 a.m. instead of 7:30 a.m., ending the day at 4:15 p.m. Sleep researchers are urging school districts to start high school classes later to reduce the number of exhausted, cranky teens. Not getting enough sleep puts teens at risk for falling asleep behind the wheel, keeps them from concentrating in class and leaves them feeling depressed and irritable, researchers have found.

A Principal's Experience with the Raise Responsibility System
Mary Lou Cebula, Ed.D., Principal, Central School, Warren, New Jersey
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zefbboDaTbafpLKt/
Last April (2003), I started a new life journey that has dramatically changed who I am as a principal as well as who I am as a person. I was completing my fifth year as an elementary public school principal.

WA Schools' Water Fails Lead Testing
Deborah Bach, Seattle Post-Intelligencer, April 30, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zegbboDaTbafpLKt/
The first six Seattle public schools to have their water tested all exceeded federal limits for lead -- with dangerous levels found at dozens of drinking fountains.

Supporting At-Risk Students (PDF)
Project For School Innovation, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zehbboDaTbafpLKt/
Lowell Middlesex Academy was founded in 1989 as a dropout prevention program. Over the years LMACS has developed a number of specific practices that consistently help them to support at-risk students and help them gain the social, emotional, and academic skills they need to succeed in school and in life. These practices are outlined in a new book called Supporting At-Risk Students that is part of the Project For School Innovation (PSI) "By Teachers For Teachers" series of books. Read the introductory chapter here.

PA Philadelphia District Seeks Ways to Boost Teacher Attendance
Susan Snyder, Philadelphia Inquirer, April 23, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeibboDaTbafpLKt/
On average, about 6% of Philadelphia's public school teachers are absent daily--a higher rate than the state's overall average in 2001-02 and chief executive officer Paul Vallas wants to do something about it. [Free registration/login required to view this article.]

bridges4kids Featured Website: Discipline without Stress, Punishments or Rewards
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zejbboDaTbafpLKt/
How Leaders, Teachers, and Parents Promote Responsibility. Marvin Marshall details his Raise Responsibility System - a simple and amazingly effective approach that promotes responsibility, self-discipline, and learning.

Using a Discipline System to Promote Learning
Marvin Marshall, Phi Delta Kappan, March 4, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zekbboDaTbafpLKt/
On returning to the classroom after 24 years, Marvin Marshall struggled to maintain discipline. In Part 1 of this article, he describes how his frustration led him to develop a system -- incorporating the ideas and strategies of Stephen Covey, William Glasser, Abraham Maslow, and others -- that would promote responsible behavior by internally motivating students. In Part 2, Kerry Weisner describes the positive changes in her students' behavior and learning after she implemented Mr. Marshall's program in her classroom.

Child Abuse & Neglect Media Handbook (PDF)
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zelbboDaTbafpLKt/
Child Trends has just published this free, handy booklet to help journalists improve their coverage of child abuse and neglect stories. The handbook includes basic facts on child abuse and neglect and foster care, as well as quick references to sources of information that can help journalists develop a deeper understanding of the complex issues related to child welfare. Even though the handbook was originally targeted at journalists, it should be of interest to anyone who wants to learn where to find more information about one of society's most troubling problems.

PA Prom-bound? There's an Exam
Dan Hardy, Philadelphia Inquirer, April 30, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zembboDaTbafpLKt/
To head off underage drinking, the West Chester district will require alcohol screening before students can enter. Stung by students being drunk at school dances, the West Chester Area School District announced yesterday that it would require junior- and senior-prom-goers to be screened by alcohol-detection devices. [Free registration/login required to view this article.]

Tools For School Improvement Planning
Annenberg Institute for School Reform
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zenbboDaTbafpLKt/
This helpful website contains observation protocols, focus group samples and questions, surveys, questionnaires, and other techniques to help examine specific school-improvement concerns. In the tools section, is a database of new and innovative tools used throughout the country, organized into school-improvement focus areas.

Our Children Left Behind (OCLB) Email Group
Our Children Left Behind (OCLB) is dedicated to ensuring that the rights of students with disabilities are not compromised during the reauthorization of the Individuals with Disabilities Act (IDEA). We have developed a new Yahoo!Group for the distribution of our commentary & action alerts. You can subscribe by visiting http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeobboDaTbafpLKt/ or by sending an e-mail to OurChildrenLeftBehind-subscribe@YahooGroups.com.

bridges4kids Featured Website: Alliance for Healthy Homes
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zepbboDaTbafpLKt/
The Alliance for Healthy Homes was founded in 1990 as the Alliance To End Childhood Lead Poisoning. Our name change in July of 2003 reflects the expansion of our work on lead poisoning prevention to address other housing-related health hazards.
bridges4kids Featured Website: Community Environmental Health Resource Center
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeqbboDaTbafpLKt/
The Community Environmental Health Resource Center (CEHRC) is a project of the Alliance in collaboration with community leaders from across the country. CEHRC helps community organizations identify health hazards in homes and document substandard conditions to achieve changes in policies and practice in high-risk communities.

Hip Hop Takes a Hit
Stanley Crouch, New York Daily News, April 23, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zerbboDaTbafpLKt/
Black women are starting to fight rap's degrading images. You never know in America. Just when you think something bad is going to go on far longer than it should, signs of its being brought to a sudden halt appear. Nelly, a rapper from St. Louis who is notorious for his hedonistic rap videos and dehumanizing images of black women, has been stopped in his tracks by a group of concerned young women from Spelman College and young men from Morehouse College, two historically black schools in Atlanta.

What We Sing, We Remember Forever!
EducationNews.org, April 13, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zesbboDaTbafpLKt/
In 1962 a former primary grade teacher and mother of three preschool children was washing dishes and talking to her youngest son to keep him nearby and occupied as she completed her task. She had been tutoring beginning and remedial reading students for years, but was still surprised by what she learned in that conversation with her 4 year old. For more information, visit http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zetbboDaTbafpLKt/

MO Schools Stuff Backpacks With Food so Kids Don't go Hungry
Heather Hollingsworth, Associated Press, April 15, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeubboDaTbafpLKt/
For poor students who eat most of their meals at school through government-subsidized breakfast and lunch programs, weekends and holidays can mean going hungry. So the St. Joseph School District, with the help of the local arm of America's Second Harvest, has started sending home backpacks filled with canned fruit, cereal bars and other single-serving foods.

UK Study: Schools Cutting Soda Lower Obesity
Emma Ross, Associated Press, April 22, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zevbboDaTbafpLKt/
School programs discouraging carbonated drinks appear to be effective in reducing obesity among children, a new study suggests — the first research to document that such programs work.

bridges4kids Featured Website: The Success for All Foundation (SFAF)
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zewbboDaTbafpLKt/
"We are the nation's most comprehensive and effective school-restructuring program for the education of our children in reading, writing, mathematics, and the social sciences."

American Education Ignores Its Brightest Young Minds
EducationNews.org, April 13, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zexbboDaTbafpLKt/
For many of our most brilliant youngsters, school is a purgatory of boredom and lost opportunities. The new book, Genius Denied, calls for a major shift in thinking for teachers, administrators and policy-makers, and encourages school reform that focuses on attending to the educational needs of every student. The book outlines specific steps that students, parents, educators, mentors, patrons and policy-makers can take to make the system work - or to work around the system - in order to help gifted students achieve their potential.

MI Smart Kid? Skip High School
MIRS, April 23, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeybboDaTbafpLKt/
It's always been assumed that dropping out of high school is a bad thing, but a West Michigan lawmaker has a new twist on the drop out situation with the state picking up the tab.

Craving a Taste of Their Heritage
Amy Argetsinger, Washington Post, April 26, 2004
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zezbboDaTbafpLKt/
Black students attending historically white institutions are finding a sense of belonging through an exchange program at Howard University.

bridges4kids Featured Website: The National Association of State Medicaid Directors (NASMD)
http://bridges4kidsnewsdigest.c.topica.com/maacdfraa6zeAbboDaTbafpLKt/
A very informative website that contains different types of information, data, and statistics. It also contains data on children enrolled in 1915c waivers by state, age and program. Also, includes information on 1915b and 1115 Waivers. This group is a bipartisan, professional, nonprofit organization of representatives of state Medicaid agencies. The primary purposes of NASMD are: to serve as a focal point of communication between the states and the federal government, and to provide an information network among the states on issues pertinent to the Medicaid program.

********************************************************
AccessWorld MAGAZINE FOR BLIND, FREE ONLINE
********************************************************
AccessWorld, the American Foundation for the Blind's technology magazine is now a free, web-only publication. Objective evaluations of both assistive technology and the accessibility of mainstream products are the centerpiece of AccessWorld. This is the place to read unbiased reviews of screen readers, screen magnifiers, optical character recognition (OCR) systems, video magnifiers, personal data assistants (PDAs), cell phones, electronic voting machines, music production software, and more.

AccessWorld will continue to offer the in-depth coverage of assistive technology it's become known for, while adding new features such as "e-mail this article to a friend" and "printer-ready" options.  In addition, readers who are blind or visually impaired can download "braille embosser-ready" files that have been translated and formatted to be sent directly to their braille printers.  Previous issues dating back to January 2000 are also available online.

Be sure to sign up to receive AccessWorld Extra, the e-mail newsletter produced by AccessWorld staff in each of the six months when AccessWorld is not published. When you sign up for AccessWorld Extra, you are also added to the list of people who receive e-mailannouncements when a new issue of AccessWorld is posted.

The May issue, which you can read at: http://www.afb.org/accessworld
(thax C.A.)

********************************************************
JOB - VIOLENCE PREVENTION SPECIALIST
********************************************************
Greetings--

Below is information on a job opening at University Health Services (University of Wisconsin-Madison) for a Violence Prevention Specialist.  This person will develop strategies and activities that address primary violence prevention, especially sexual assault and relationship violence prevention, through a broad-based, cultural-change approach. 

Please share this with others you think may be interested.  If you have questions, please contact me at the above email address.  Thanks for your assistance.

Daña Alder

By the time she reaches her senior year, one in eight female students at the University of Wisconsin-Madison has been raped. 

University Health Services is working with students, staff and faculty across campus to prevent sexual assaults and other forms of violence on campus.  Join our Campus Community Partnerships Team in the role of Violence Prevention Specialist and you will be in a key position to create primary prevention initiatives and services that will lead to real change in the campus culture. 

You have: A minimum of a Bachelor’s degree and preferably a Master’s in any one of a range of relevant specialties, such as community health, social work, health promotion, women’s studies, or community organizing.

Your experience includes: a minimum of one year of full-time, professional work in primary prevention, preferably in violence prevention or student services.  You've worked with college students in some capacity and understand student cultures and student community organizing.  You also have a strong theoretical and practical understanding of violence issues and creative ideas to address primary violence prevention.

We have: a dynamic environment, good pay (minimum of $36,475 to start), good benefits, and the chance to work with people across campus who are committed to violence prevention.

For an electronic posting with complete information on the position and information on applying, visit:  http://www.ohr.wisc.edu/pvl/pv_046960.htmlDo not FAX or email applications.  The deadline for applying has been extended to May 14, 2004.

Direct inquiries to Daña Alder at: dalder@wisc.edu

Daña Alder
Manager         
Campus Community Partnerships Team
University Health Services
University of Wisconsin-Madison
1552 University Avenue, Room 108
Madison, Wisconsin 53726
608/265-4901
fax: 608/262-4701
http://www.uhs.wisc.edu(thax SafeYouth)

********************************************************
DRUG HELPS KIDNEY DISEASE -- PLUS MORE STORIES
********************************************************
New drug helps with chronic kidney disease
http://www.medicalnewstoday.com/index.php?newsid=7806

State: Gov. Bush begins Medicaid test
http://www.sptimes.com/2004/04/30/State/Gov_Bush_begins_Medic.shtml

Access Now Home Page
http://www.adaaccessnow.org/

Asperger's- Answer, but No Cure, for a Social Disorder That Isolates Many
http://www.nytimes.com/2004/04/29/national/29SYND.html?ex=1084226060&ei=1&en=26c9241a8efbea54

Study shows Lou Gehrig's disease prevalent among veterans
http://www.cnn.com/2004/HEALTH/conditions/04/29/veterans.als.ap/index.html

Researchers show cystic fibrosis defect in mice corrected with turmeric extract
http://www.eurekalert.org/pub_releases/2004-04/yu-rsc042304.php

Seniors search for options after handing over keys
http://www.kansascity.com/mld/kansascity/news/local/8508180.htm?1c

Exhibit Examines Nazi Use of Eugenics
http://www.npr.org/features/feature.php?wfId=1848311

Can Curry fight cystic fibrosis?
http://www.cbsnews.com/stories/2004/04/22/health/main613258.shtml

Gel Delivers Healing Genes to Weak Lungs
http://www.betterhumans.com/News/news.aspx?articleID=2004-04-13-2
(thax R.N. & C.A.)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#57   Thursday, April 29, 2004   
========================================================
Well, it looks like our VA legislators have FINALLY come up with a state budget.  Some legislators were whining about losing money from their regular jobs so I suppose they figured they may as well get their legislative jobs finished. It's about time and hopefully the state budget will be passed by next week. Time will tell... and me too:)

Medicare-Approved Drug Discount Cards Begin June 2004
To obtain information about Medicare-Approved companies in your area and to find out if you are eligible for the $600 credit or to answer any questions you have, you can:
A) Call 1-800-MEDICARE (1-800-633-4227). Hearing-impaired/TTY users should call 1-877-486-2048.
B) Visit www.medicare.gov on the Internet. Select "Prescription Drug and Other Assistance Programs."

NEXT
Harvard is offering free tuition for students that have a family income below $40,000.  For information go to
http://adm-is.fas.harvard.edu/FAO/index.htm

Here's an interesting site for all you cyber sleuth's. You might be interested in the link to corrupt judges and organized crime all the way to Washington.
http://www.judicialterrorism.com/

AND

New Web Site on Disaster Preparedness for Persons with Mobility Impairments

The University of Kansas' Research and Training Center on Independent Living has created a new Web site called "Nobody Left Behind: Disaster Preparedness for Persons with Mobility Impairments" http://rtcil.org/NLB_home.htm The site features ongoing research by the Center on the effectiveness of local emergency management plans in addressing the needs of persons with mobility impairments. 

"Disability Matters" with Joyce Bender
An international talk radio show with real-time captioning focused on the employment and empowerment of people with disabilities. Hear prominent disability leaders and senior executives from the private sector every Tuesday from 2:00pm - 3:00 pm Eastern Time on www.voiceamerica.com
(thax DS News)

NEXT
For those suffering cancer from asbestos induced cancer:
Title: Mesothelioma Cancer Advice
Text: Advice on mesothelioma, asbestos induced cancer, lawsuits, mesothelioma law firms, attorneys and treatment.
Link: http://www.mesothelioma-online-advice.com


And another good resource:
http://www.guardianship.org/ -- National Guardianship Association

In our 1st story read "Letters to the editor" that were sent in regarding a comment from Brian Weigand with WLNI radio, 105.9 FM on March 28, 2004, calling the disabled a "freak show."  Mr. Weigand seems to be out of touch with reality and I invite anyone else to write newspapers in the Lynchburg, Virginia area or call the station. Remember that Lynchburg was very much involved in the "eugenics" movement and no doubt people like Weigand with their ignorance were part of those favoring eugenics. Here's a link that discusses the meeting these so called "freaks" were referring too.  http://www.wlni.com/forums/3209  Incidentally the station refuses to give out tapes of the show.

I just happen to have the radio station info if you'd care to contact them:)
Format: Lynchburg's ONLY FM Talk Radio Station! Talk radio is the # 1 format in the nation, capturing over 14% of the over 12 population from 6 a.m. to midnight. It is the fastest growing format in America.Power 6,000 Watts, 24 hours a day. Coverage 50 Miles in all directions, covering Lynchburg, Amherst, Appomattox, Bedford, Campbell, Nelson, and Rockbridge.

Contact
WLNI Radio
P.O. Box 11798
Lynchburg, VA 24506
Phone (434) 845-5463
Fax (434) 847-5709
Comment Line (434) 845-3927
Toll free (888) 881-8851
Morningline call in 6:10 AM - 9AM (434) 846-8255
Email: wlni@aol.com
http://www.wlni.com/
105.9 FM

Much more news so read, enjoy and comment if you wish:)

Keith- 

========================================================
1. DISABLED FREAK SHOW DOESN'T BODE WELL
2. 7500 EYE DOCTORS OFFER FREE EXAMS
3. CHILDHOOD DEPRESSION AWARENESS DAY
4. SPECIAL ED - THE TEASER, LIAR, BULLY
5. FEDERAL HOME MODIFICATION FUNDS FOR ACCESSIBILITY
6. RESPONDERS NEEDS FOR DISABLED
========================================================
********************************************************
DISABLED FREAK SHOW DOESN'T BODE WELL
********************************************************  
I was the last caller to speak with Mr. Weigand on the "Freak show" I am including two letters to the editor that we are sending to the Lynchburg News and Ledger. Dana Jackson

http://www.wlni.com/forums/3209/
+++++++++++++++++++++++++++
Letter of the Editor:

This is in regard to the comment from Brian Weigand with WLNI radio, 105.9 FM on March 28, 2004.

I was the caller that called back to talk on the comment of people with disabilities attending the open forum for City Counsel at Heritage High being called a "Freak Show"

I was one of the people at the open forum using a wheelchair and do not consider myself a "Freak".  I question if Mr. Weigand has come up to the 21st Century.

People with disabilities are allowed out of our houses, allowed to work and allowed to speak when we want.  At the open forum there were 30 or so people with CASA and at least 6 spoke.  Every time they spoke they had all the people with CASA there stand up.  Were they also a freak show.  

I was there as an advocate for what I feel is right, NOT FOR ANYONE TO FEEL SORRY FOR ME.  I hold a full time job and have been an efficiency expert.  I have offered the City my services free of charge to do an efficiency study. I made this offer to Kimball Payne, the City Manager but he seemed under the impression that it would be a conflict of interest.  I don't know how.

I believe that anyone with Mr. Weigand's total lack of regard for people's feelings should not be allowed on the air.  At the very least he owes all people with disabilities an apology for being behind the times and not aware enough to apologize in the first place.


Dana Jackson
+++++++++++++++++++++++++++++
News and Advance Editor,

I would like to hear Brian Weigand with WLNI radio, 105.9 FM, apologize on the air for being rude, inconsiderate, and flat out unprofessional.

My name is Dr. Rob Jarvis and I have been a person with a disability for eight years.  It has taken me a little while to get going again, not only physically, but also socially.  I have been getting out into the public more and more, I have been employed for nine months, and I have been involved in the city of Lynchburg as an advocate for people with disabilities.  I have spoken at City Council three or four times and have helped and encouraged other people with disabilities to become more active in their community.  I have felt very privileged and honored in doing this.  This past year has been the best year of my life!

Wednesday morning, April 28, 2004, I called into WLNI radio, 105.9 FM, to ask a question about the General Relief Program to Dr. Michael Gillette who is running for City Council and Brian Weigand, who is one of WLNI's DJs, referred to people with disabilities as "freaks"!  I was very disappointed and discouraged to hear this type of  language from what I thought was a well-respected, businesslike, and professional radio talkshow, I guess I was wrong.  I called Brian to confirm that I had heard correctly and he said "the public budget hearing at Heritage High School was a 'freak show'"! I responded "that isn't even nice" his response "I wasn't trying to be nice"!!  How about just being professional!

Dr. Rob Jarvis
Community Action Specialist
Lynchburg Area Center for Independent Living
500 Alleghany Ave., Suite 520
Lynchburg, VA  24501
434-528-4971

********************************************************
7500 EYE DOCTORS OFFER FREE EXAMS
********************************************************
7,500 Eye Doctors Across the Country Offer Free Eye Exams for Eligible Seniors With Diabetes

EyeCare America Partners With Department of Health and Human Services for May's Healthy Vision Month

SAN FRANCISCO, April 26 /PRNewswire/ -- Diabetic retinopathy is a leading cause of vision loss among adults in the United States. It causes up to 24,000 new cases of vision loss each year. Early detection, timely treatment and appropriate follow-up care can reduce the risk of blindness by 95 percent, even for people with established and significant diabetic retinopathy.

In honor of Healthy Vision Month taking place in May 2004, EyeCare America, the public service foundation of the American Academy of Ophthalmology, encourages seniors to take advantage of its Diabetes EyeCare Program. This year-round program offers eye exams and up to one year of treatment at no out-of-pocket cost to qualified patients.  To see if you, a loved one or a friend, is eligible to receive a referral for an eye exam and care, call 1-800-272-EYES (3937), 24 hours, seven days a week, year round. All eligible callers receive a referral to one of EyeCare America's 7,500 volunteer ophthalmologists.

"A significant percentage of the millions of patients with diabetes are at risk of losing their eye sight," stated C.P. Wilkinson, MD, Committee Chairman of EyeCare America's Diabetes EyeCare Program. "Those with diabetes can prevent blindness through annual dilated eye exams. I am honored to be part of a program that helps provide access to important medical eye care to people in need."

Healthy Vision Month is a national campaign sponsored by the National Eye Institute and the National Eye Health Education Program. The focus of Healthy Vision Month 2004 is to reduce visual impairment due to diabetic retinopathy. Millions of people with diabetes are at risk of developing diabetic retinopathy, a leading cause of blindness.  EyeCare America is a partner in the U.S. government's national effort to reduce visual impairment due to diabetes.

"I saw the doctor twice and will see him again in a year. He's very nice a real star in my book! I am happy that you recommended him to me," said Jeanette Nini, an EyeCare America patient.

Facts About Diabetes and Eye Disease (1)
--  Hispanics have three times the risk of developing type-2 diabetes as whites, and they also have a higher risk of complications
--  Twenty-five percent of blacks between the ages of 65 and 74 have diabetes.
--  Approximately 6.3% of the US population, has diabetes. An estimated 13 million have been diagnosed, but one-third are unaware that they have the disease.
--  Everyone with diabetes is at risk for developing diabetic retinopathy, the most common form of diabetic eye disease.
--  People with diabetes are 25 times more likely to lose vision than those without the disease.
--  The longer a person has diabetes, the more likely is he or she to have retinopathy.
--  In its early stages, diabetic retinopathy usually has no warning signs. Over time, however, the vision blurs and everyday tasks become more difficult. Vision lost cannot usually be regained.
--  With timely treatment, 95% of those with significant diabetic retinopathy can be saved from substantial vision loss.

EyeCare America's Diabetes EyeCare Program (DEP) promotes annual, dilated eye exams for seniors with diabetes. DEP raises awareness about diabetic eye disease, including diabetic retinopathy, provides free diabetic eye disease educational materials and facilitates access to eye care.

People eligible for a referral through the program receive a comprehensive, medical eye exam and up to one year of treatment with no out-of-pocket cost for any disease diagnosed during the initial exam. Volunteer ophthalmologists accept Medicare and/or other insurance reimbursement as payment in full.

EyeCare America's Diabetes EyeCare Program is designed for people who:
--  Have diabetes 
--  Are US citizens or legal residents
--  Are age 65 and older- Have not seen an ophthalmologist in three or more years 
--  Do not have eye care insurance through an HMO or the VAF

For a Diabetes EyeCare Program referral, those interested may call 1-800-272-EYES (3937) toll-free, 24 hours a day, seven days a week, 365 days a year.
(thax Proaging)

********************************************************
CHILDHOOD DEPRESSION AWARENESS DAY
********************************************************
Here are a couple of May health observance days that may be of interest to SafeYouth list members who deal with issues such as bullying and related where a child's mental health is a priority. On NMHA's website, they offer activity suggestions to help make the most of these observances, also.

From NMHA.. Tuesday, May 4, 2004, is Childhood Depression Awareness Day:
http://www.nmha.org/children/green/index.cfm

Also from NMHA, May is Mental Health Month:
http://www.nmha.org/may/index.cfm

From Freedom From Fear (FFF).. Wednesday, May 5, 2004, is National Anxiety Disorders Awareness Day during which some 1,000 clinics, offices, and others around the country will be offering free screenings and referral services for persons with anxiety and depressive disorders:
http://www.freedomfromfear.org/commread.asp?id=64

********************************************************
SPECIAL ED - THE TEASER, LIAR, BULLY
********************************************************
The teaser, liar, bully......
They're in your classroom and their inappropriate behaviors are often a call for help. Find out how you can effectively deal with some of the more challenging students in your classroom or at home!...read more

No Child Left Behind
Melissa Jamula receives a standing ovation for her comment "Until the federal government provides "adequate resources for every child" it should not impose sanctions". Read more about the meeting held by Congressmen on No Child Left Behind....read more

Supporting Autistic and Mentally Disabled Students
Clearly defined goals with appropriate consequences will be your best strategy when changing behaviors of severely handicapped children/students. Find out how you can establish and implement goals successfully - remember patience is essential! Support Autism Month this April!...read more
(thax about.com)

********************************************************
FEDERAL HOME MODIFICATION FUNDS FOR ACCESSIBILITY
********************************************************
Federal HOME MODIFICATION Funds for Accessibility
Information Bulletin # 64
(4/04)

Advocates should know that federal funds are available to achieve accessibility via home modification. Specifically, under the HUD funded HOME Investment Partnership Program ("HOME") and the Community Development Block Grant ("CDBG"), federal funds can be allocated and used to implement or expand a home modification program in your communities to increase housing accessibility. These federal funds can be allocated either to home owners or renters who have disabilities.

Both HOME and CDBG funds are allocated annually to cities and counties which have the requisite number of people. (Your State Housing Agency may also receive HOME and CDBG funds to allocate to less populated geographic areas.)

The grantees of HOME and CDBG funds (whether your city, county or State) have DISCRETION regarding how they will allocate these funds. HUD has explicitly authorized Home Modification as a reimbursable "rehabilitation" function under both federal programs.

The decision regarding how these funds are actually allocated is up to your local and/or State officials - and you. As you know, the public officials must develop a Consolidated Plan listing how these funds will be used. Therefore, if disability advocates want and need a Home Modification program in their communities, you must be active players in your local Consolidated Plan process.

You must understand the politics of and become active in your Consolidated Plan development and allocation. Remember that the officials hold two public hearings a year before the Consolidated Plan can be approved or implemented! My bet is that in most areas of the country, the disability community has not made either their voices or their needs heard in this process.

These public hearings present a great opportunity for organizing, and you can WIN. You can have a Home Modification program so persons with disabilities can remain in their own homes and apartments and not be unnecessarily institutionalized.

If your local and/or State housing officials don't believe these funds can be used for Home Modification to achieve accessibility, you should cite 24 Code of Federal Regulations section 92.206(a)(2) (HOME funds may be used "to make essential improvements, including... improvements necessary to permit use by persons with disabilities") and 24 Code of Federal Regulations section 570.202(b)(11) (CDBG funds may be used for "improvements designed to remove...  architectural barriers that restrict the mobility and accessibility of ... disabled persons.")

(For low-income persons in rural areas, the USDA's Rural Housing Service provides up to $7,500 to make a dwelling accessible; contact your Rural Development County Supervisor. A separate USDA/RHS Information Bulletin will come out shortly.)

Steve Gold, The Disability Odyssey continues Back issues of related HOME and CDBG Information Bulletins (see ## 14, 16, 51,52, 60 and 61) are available online at http://www.stevegoldada.com with a searchable Archive at this site.

Steve Gold, The Disability Odyssey continues

Back issues of other Information Bulletins are available online at
http://www.stevegoldada.com

********************************************************
RESPONDERS NEEDS FOR DISABLED
********************************************************
To All,

Will people with disabilities be part of a homeland security emergency response program? Is anyone working in this area to ensure PWDs are included in national emergency programs? Who are they? These questions will be answered tomorrow and the press release appearing below will tell you where to learn this information. Tune in and participate!!!!!!!!!!!!!!! This will be a great show.

John Williams
------------------------------------------------------------------------------------------------------------------------

TVWORLDWIDE.COM                                                                                            PRESS RELEASE


HomelandDefenseTV.com to Webcast Town Meeting on Training First Responders to Address Needs of the Disabled 
Worldwide Webcast Event to Feature Presentations and Panel Discussion
Friday, April 30, 2004,1 PM ET

For Immediate Release

Wednesday, April 28, 2004
Contact: Nate Karle                                         
TV Worldwide.com, Inc.
nkarle@tvworldwide.com
www.tvworldwide.com
(703) 961-9250   Ext. 222

Chantilly, Va. – TVWorldwide.com, a fast-growing web-based global TV network and streaming video service provider, announced that its HomelandDefenseTV channel (www.homelanddefensetv.com) will webcast a town meeting on the needs of the disabled in emergency situations and strategies for protecting such individuals -- including the establishment of a curriculum to train first responders. The free webcast will feature presentations and discussion by a panel of experts. The Homeland Defense TV channel was recently launched in partnership with Homeland Defense Journal, Homeland Defense Radio and The University of Findlay’s Center for Terrorism Preparedness. The webcast will also provide insight concerning the readiness of the Department of Homeland Security, as well as other state and federal agencies, in ensuring the safety of persons with disabilities. The live online audience will be able to ask questions of the presenters via e-mail - - providing a fully interactive forum for sharing of information. It is requested that questions submitted by e-mail be done as far in advance as possible in order to ensure that they can be addressed during the live webcast. The HomelandDefenseTV.com event will be available live and archived in fully accessible format using the captioned video streaming of TVWorldwide.com's "webcapting" SM process. The event will be simulcast on AT508.com (www.at508.com) , TV Worldwide’s Internet TV channel for the community of people with disabilities with emphasis on assistive tecnology.  The webcast will originate from the studios of TV Worldwide in Chantilly, Virginia and invited guests include: Daniel Sutherland, Officer for Civil Rights & Civil Liberties at the Department of Homeland Security, Eric L. Qualkenbush, Director of the University of Findlay’s Center for Terrorism Preparedness, Michael L. Webber, Adjunct Instructor and Consultant at the University of Findlay’s Center for Terrorism Preparedness, and Bill Brobst, Adjunct Instructor at University of Findlay’s School of Environmental and Emergency Management. John Williams, a renowned columnist on disability issues and Ms. Elizabeth Davis, consultant to the National Organization on Disability for emergency preparedness initiatives will also serve on the panel. Mr. Dave Gardy, CEO of TV Worldwide, will host the show.  "As a long-time developer of streaming media content for the community of people with disabilities, we are excited about producing a webcast on such an important national policy discussion to create awareness on this issue that will lead to tangible training solutions," commented Dave Gardy, Chairman and CEO of TVWorldwide.com.  "We are pleased that the first live webcast event on Homeland Defense TV will also address the needs of the community of people with disabilities.”  The live webcast will begin at 1 PM ET at www.homelanddefensetv.com , www.at508.com and at www.tvworldwide.com . Participants should have the latest version of either Windows Media Player or Real Video Player installed prior to the event and should log on by 12:45 PM (ET) on April 30th. The live webcast will be made available as an archived file, shortly thereafter and will be hosted for one full year at HomelandDefenseTV.com and at AT508.com. 

About HomelandDefenseTV.com

Homeland Defense TV provides informational programming and e-learning opportunities on homeland defense topics for government and corporate security personnel, first responders and interested citizens. The programs of homelanddefenseTV.com, a venue for interactive streaming media e-learning courses, seminars, conferences and meetings, are sponsored by the University of Findlay School of Environmental and Emergency Management (SEEM), Homeland Defense Journal and Homeland Defense Radio. In addition to streaming video and audio, the site features relevant printed material and links to sites that provide additional information. HomelanddefenseTV.com is a content-rich, comprehensive source of knowledge about homeland defense, safety and security or emergency preparedness and response

About TV Worldwide

As a leading global Internet broadcasting and streaming media company, TV Worldwide ( www.tvworldwide.com ) is developing a network of video channels that is an affiliation of community-based Internet television stations, each underwritten by a strategic partner, "aimcasting" SM to targeted demographic audiences worldwide. TVWorldwide.com works with strategic partners to develop the latest in live and archived state-of-the art video streaming content applications. TVWorldwide.com was recently named one of the streaming video industry's "Hottest Streaming Companies” by Streaming Magazine, www.streamingmagazine.com, and CEO Dave Gardy was honored by the magazine as one of the 50 Most Influential People in Streaming Media. Mr. Gardy currently serves as the president of the International Webcasting Association (IWA).                           

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#56   Thursday, April 22, 2004   
========================================================
Every once in a while we get a special plea that is much different from the ordinary typical help requests that we receive daily. Today I have a request for a little 5-year-old girl named Amelia, who has multiple chemical sensitivity (MCS).  Amelia is in need of a playmate(s) or penpal perhaps so she can socialize like every other little girl. If you live in the Boston, Mass., area or have a child that would like to correspond with Amelia, then please read our first story to learn more. Good luck Amelia, hopefully you'll have a yard full of kids to play with soon:)  [Come on Jodie, you know of some kids don't you?]

NEXT
In my last newsletter I mentioned that our Virginia Legislators snuck a bill through prohibiting the use of discounted Canadian drugs for those who cannot afford high priced drugs.  This bill was signed by Governor Warner.  Please read today's article "Law may hurt aid for disabled" by Cynthia T. Pegram from the Lynchburg News & Advance.  Go here:  http://www.newsadvance.com/servlet/Satellite?pagename=LNA%2FMGArticle%2FLNA_BasicArticle&c=MGArticle&cid=1031775017151&path=!frontpage

AND
Do you know of someone in need of a FREE computer?  Here's another source for you to check out: Click here: Freebyte.com - Free Computers

WHAT ABOUT THIS
Isn't it a shame that we can help countries all over the world but yet we still have children going hungry in our own back yards?  Read our 2nd story about how children must take food home from school to get a nightly meal or weekend dinner. Maybe we should stop telling other countries how to live until we figure it out for ourselves.  Just a thought...    
 
NEXT
Medical Information (from the Oprah Show)
From the show Radical Medical Makeovers

Battling Parkinson's Disease
Ray Farkas, who was diagnosed with Parkinson's Disease, had a surgical procedure called DBS* or Deep Brain Stimulation. His doctor was Dr. Chris Kalhorn of Georgetown University Hospital. For more information, visit: www.georgetownuniversityhospital.org

Treating Tourette Syndrome
Jeff Matovic also was treated with DBS*; his operation was performed at the University Hospitals of Cleveland. For more information, visit www.uhhs.com

* For more information on Deep Brain Stimulation, visit www.offcentertv.com

FINALLY
Apparently New Jersey still hasn't learned how to help those vulnerable persons in need.  I received this from a reader today. 

This is so upsetting!! We have another victim, no 911 was called! Did you read this story? The little boy told his teacher about the abuse. Did the State think he was a liar? Again, and again, and again, THE STATE CAN NOT SUBSTANTIATE THE ABUSE!  WHAT IS WRONG WITH EVERYBODY? Our kids get abused over and over again and DHS can never substantiate it until its too late. The same happened to Danielle for God sakes and Danielle couldn't talk! This little boy could and still nobody listened!!! http://www.thnt.com/thnt/story/0,21282,949326,00.html

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. LITTLE GIRL NEEDS A FRIEND
2. KIDS TAKE FOOD HOME FROM SCHOOL
3. NEW WEB RESOURCES
4. EMPLOYMENT FOR LATINOS W/DISABILITIES CONF. IN JULY
5. THIS, THAT AND OTHER NEWS
6. 4 SMALL GRANT OPPORTUNITIES
========================================================
********************************************************
LITTLE GIRL NEEDS A FRIEND
********************************************************  
Hello my community:

I'm writing to ask for your help for a little girl who is sick and lonely and needs some contact with other people (and her mother, too, for that matter).

I have been in touch with a woman named Sarah whose 5-year-old daughter, Amelia, has multiple chemical sensitivity (MCS). She lives in Brookline, Mass. Because of Amelia's disability, the other parents in Sarah's life have abandoned her (i.e., that if Amelia gets sick they don't want to see it or have their kids be around her -- not because of not wanting to make Amelia sick, but because of fear and ignorance -- like maybe they'll "catch it," which, of course, with MCS, is not possible).

This leaves Amelia with no other kids to play with, no socialization. She is bored and lonely and missing out on an important part of her development.

If you know of families in the Boston area who don't use scented personal care products, would you please pass this e-mail or information along to them? Maybe they could just speak to Sarah, and if possible, arrange a play date with Amelia. Or, if you know of other families in Brookline or the greater Boston area who have MCS, would you please pass this info along to them?

Thank you very much. Sarah (the parent) can be contacted at: samoma@gis.net or 617-739-1676. Please put "Sharon contacted me" or "Play date for Amelia" or something descriptive in the subject line, so she knows that it's not spam.

Thank you so much.
-Sharon

Sharon Wachsler
www.sharonwachsler.com
Writer, Humorist, MCS & Disability Educator, Dog Trainer
Check out my collected humor columns at www.abilitymaine.org

********************************************************
KIDS TAKE FOOD HOME FROM SCHOOL
********************************************************

Kids taking food home from school
'A little bit of love and a little bit of food'

From: CNN.com

ST. JOSEPH, Missouri (AP) -- On a recent Friday, about two dozen children went to the Noyes Elementary School office in what has become a weekly ritual at a growing number of schools: picking up backpacks of food so they won't go hungry over the weekend.

The children don't like to talk about being hungry, said Joyce Starr, who runs the backpack program. So teachers rely on other clues. "One of the things that we notice is sometimes in the lunchroom, kids who eat their lunch real quick. They are hungry," Starr said.

There are some children who are sorry when the weekend comes. "They say, 'I hate it because I've got to go home.' Or they get sick here at school and don't want to go home," Starr said. "So we kind of know that school is a safe place and they know we care about them and of course we try to feed them, too."

For poor students who eat most of their meals at school through government-subsidized breakfast and lunch programs, weekends and holidays can mean going hungry. So the St. Joseph School District, with the help of the local arm of America's Second Harvest, has started sending home backpacks filled with canned fruit, cereal bars and other single-serving foods. Similar programs serving thousands of children have started in more than a dozen other cities in the last few years.

At Noyes Elementary, where two-thirds of the students get subsidized lunches, 10-year-old Mimi Ho was lugging home two backpacks to help feed her three siblings along with five cousins temporarily staying at her home. The fifth-grader said she eats some of the food and gives some of it away -- particularly the applesauce, which she doesn't like. All the food is gone before Sunday.

It's good to get the backpack of food, the girl said, but as is typical of children getting such help, she struggled when asked to elaborate. "It's sort of hard to explain?" she said and paused. "It's sort of really, really hard to explain?"

Backpack program began in Arkansas

Called Backpack Buddies, the St. Joseph program served about 40 students when it started in January 2003 and has since grown to serve 140 students. But America's Second Harvest of Greater St. Joseph said the need is as much as 20 times greater. St. Joseph sits in the middle of an agricultural area and the poverty rate in the school district has increased during the past few years as several industries have left.

The Chicago-based headquarters of America's Second Harvest is trying to raise the money to help more of its 214 affiliated food banks and food rescue groups offer the program.

Last week, the Hasbro Children's Foundation, which is a charity of Hasbro Inc., the Pawtucket, Rhode Island-based toy maker, approved a $95,000 grant to help America's Second Harvest with a national backpack pilot program.

The idea of sending home food in backpacks originated with the Arkansas Rice Depot, a Little Rock-based statewide food bank, after a school nurse at an inner city school asked for help because students were coming to her with tummy aches and dizziness. The children weren't sick -- they were hungry, said Laura Rhea, president and chief executive officer of the food bank.

The food bank started giving out food at the nurse's school in spring 1995 and the program spread. The food bank now serves about 12,000 students in 339 schools, with some of the schools sending food home with youngsters during the week in addition to the weekend.

Besides feeding the youngsters, the food bank provides soap and other personal care items that the schools can slip into the children's backpacks.

Rhea said the food deliveries have been credited with improving grades, school attendance and self-confidence. "You give these children a little bit of love and a little bit of food and you stand back and watch how they amaze you," she said.

But the concept didn't expand nationally until the Roadrunner Food Bank in Albuquerque, New Mexico, decided to do something similar in spring 2001. That food bank, which now provides backpacks to about 1,500 schoolchildren, helped promote the idea.

Recent survey results from Second Harvest show at least two dozen of its affiliates have started offering the backpack program or something similar. And many more said they would do the same if they had the money.

Food bank and school officials say it's important the funding remain stable because students quickly grow to rely on the backpacks. The St. Joseph food bank learned that lesson when one youngster moved to a new school and waited patiently for a backpack during his first Friday. He burst into tears when a school employee told him the school didn't hand out backpacks, said Nicholas Saccaro, executive direction of America's Second Harvest of Greater St. Joseph.

"It's just so tough," Saccaro said. The food bank began delivering a lone backpack to the child's school.
(thax safeyouth)

********************************************************
NEW WEB RESOURCES
********************************************************
American Public Health Association (APHA)
The Health Disparities Community Solutions database  details projects and interventions that address health disparity challenges in our communities. These interventions have been reported by a wide range of groups from across the country, including city and state departments of public health, non profits, and academic think tanks.  (April 2004)

Bazelon Center for Mental Health Law (BCMHL)
As the effectiveness of Medicaid’s home- and community-based waivers becomes increasingly evident, it’s also become clear that Washington should take the lead to help states use the waiver process to serve children with mental health needs. Medicaid Waiver Can Help States Serve Children explains why the waiver process is underused nationally and why access to home- and community-based services for children remains limited.  (February 2004)

Center for Studying Health System Change (CSHSC)
Confidence in the ability of market competition to spur the expansion of high-quality, affordable health care is waning. As the belief that market forces can stimulate greater efficiency fades, health care leaders in 12 communities across the country are reconsidering the idea of government intervention in the health care system. A conference entitled Can Market Competition Cure an Ailing Health System??? explored this idea, and web casts are available for each session. (March 2004)

Center on Budget and Policy Priorities (CBPP)
As part of its fiscal year 2005 budget, the Administration again proposed providing a refundable tax credit to individuals and families for the purchase of health insurance in the individual market. Administration’s Proposed Tax Credit for the Purchase of Health Insurance Could Weaken Employer-Based Health Insurance discusses the potential drawbacks of such a plan. (April 2004)

Commonwealth Fund

Unequal Access: Insurance Instability Among Low-Income Workers and Minorities explores why low-income minority workers had higher uninsured rates and greater insurance instability than had been previously documented. According to the report, most low-income adults worked during the four years studied, but many had only intermittent job-based coverage or none at all. (April 2004)

Health care for children in the United States is appallingly bad, according to Quality of Health Care for Children and Adolescents: A Chartbook. The extensive report includes chart sections on the effectiveness of pediatric care; patient safety; racial, ethnic, and other disparities; and more. Most importantly, the report provides an examination of the capacity for improvement in this critical area of health care. (April 2004)

KaiserEDU
Developed by the Kaiser Family Foundation, kaiserEDU gives health policy students and faculty easy access to data, literature, news, and developments regarding major health policy topics and debates. While kaiserEDU.org is targeted to the academic community, it provides a wealth of information that can be used as an integral part of an educational program, as an additional source for independent research, or as background material for a variety of audiences. (March 2004)

Kaiser Family Foundation
The Kaiser Women's Health Survey was designed to better understand how the health care system is working for women in terms of health coverage, access to services, and in meeting their health needs. The resulting 2001 Kaiser Women's Health Survey and Issue Briefs present an in-depth look at health care access challenges faced by low-income women and women of color, as well as women's roles in family health care decision-making and coordination. (March 2004)

New Kaiser Family Foundation Survey Shows Seniors Confused about Medicare Rx Drug Law argues that seniors are confused about the  Medicare prescription drug debate and the resulting prescription drug law. While about two-thirds of seniors reported following the debate closely, just 15 percent said they understood the new drug law very well, and almost seven in 10 didn’t know that it was passed and signed into law. (February 2004)

Kaiser Network
Kaiser’s live call-in show, Ask the Experts, recently focused on racial and ethnic disparities in health care. A web cast and transcript of the session are available. (April 2004)

Kaiser Family Foundation and Health Affairs
"Outlook for Health Spending," the first report resulting from a continuing Health Affairs and Kaiser Family Foundation partnership, has leading health policy experts examining new projections of future health care spending, including implications of the new Medicare prescription drug benefit. This partnership will publish a series of Web exclusives to speed dissemination of critical health care data. Web casts and related links are part of the package. (February 2004)

National Association of Community Health Centers (NACHC)
Thirty-six million Americans some of whom actually have health insurance coverage   lack access to basic medical care because they live in communities where there is an acute shortage of health care providers. A Nation’s Health at Risk describes who and where those people are, why having a regular provider is so important, and how the national initiative to expand community health centers has helped meet this pressing need. (March 2004)

National Small Business Association (NSBA)
Association Health Plan legislation will raise insurance rates argues that health insurance costs for small businesses will rise and the number of uninsured will increase by over one million, if federal Association Health Plan (AHP) legislation is enacted. Find out how and why in this press release. (April 2004)
(thax familiesusa)

********************************************************
EMPLOYMENT FOR LATINOS W/DISABILITIES CONF. IN JULY
********************************************************
Employment for Latinos with disabilities focus of July conference

The third national conference on "Bridges to Employment for Latinos with Disabilities" is July 14-16 in  Chicago' -- conference organizers call it a  "national forum about issues concerning disabled Latinos and employment." For more information or to register, go to
http://www.proyectovision.net/english/bridges/index.html

Conference sponsors include the World Institute on Disability, through Proyecto Visión, its National Technical Assistance Center for Latinos with Disabilities, and the Chicago-based Committee for the Integration of Latinos with Disabilities. Proyecto Visión is funded by the Department of Education's Rehabilitation Services Administration and based in Oakland. To visit the project's website in Spanish, go to http://www.proyectovision.net/index_spa.html the English-language version is at http://www.proyectovision.net/  The Proyecto Visión Listserv , which you can sign up for on the site, offers discussions of topics concerning Latinos with disabilities and their families, with emphasis on employment and training opportunities.

Proyecto Visión  also involves Access Living  in the Metropolitan Chicago area and the Harlem Independent Living Center. The Central Coast Center for Independent Living, based in Salinas, California, is also part of Proyecto  Visión; it specializes in services to disabled agricultural and migrant worker. Rehabilitation International provides technical assistance.

The July conference offers "two days of workshops, panels and roundtable discussions conducted by employment specialists and representatives of Latino, disability and government organizations/agencies," say sponsors. "Conference sessions will focus on job training opportunities and job openings in the Chicago and Midwest regions; resume writing; interview preparation; networking; financial support for higher education; individual development accounts; benefits; transitions from benefits to employment; current legislative acts; government programs available to disabled Latinos, and more."  Sessions will be available "in English or Spanish, reflecting demand," say organizers
(thax AcessE)

********************************************************
THIS, THAT AND OTHER NEWS
********************************************************
A Surprising Result in Lung Cancer Fight
http://www.nytimes.com/2004/04/22/health/22LUNG.html?ex=1083622254&ei=1&en=62ae845909273ff1

National Black Newspaper of the Year
http://www.sfbayview.com/042104/difficultyear042104.shtml

Congress asked to reverse proposed Section 8 cuts President’s plan would eliminate assistance
http://atlanticville.gmnews.com/news/2004/0423/Front_Page/029.html

Study links lawn chemicals to cancer in dogs
http://www.msnbc.msn.com/id/4797699/

JuneauEmpire.com: Opinion: Aging population means greater need for transit 04/20/04
http://www.juneauempire.com/stories/042004/opi_transit.shtml

Type 2 Diabetics should have cholesterol lowering drugs say doctors
http://www.medicalnewstoday.com/index.php?newsid=7438

Fresh case pushes polio campaign a year back
http://cities.expressindia.com/fullstory.php?newsid=81973

Medtronic Recalls Two Implantable Heart Devices 
http://story.news.yahoo.com/news?tmpl=story&cid=571&ncid=751&e=5&u=/nm/20040416/hl_nm/health_medtronic_recall_dc

********************************************************
4 SMALL GRANT OPPORTUNITIES
********************************************************
1. Sound Partners for Community Health Grants:
The Sound Partners for Community Health program aims to increase public awareness of specific health issues, and the grants aim to facilitate citizens¹ involvement in making decisions affecting health care. The program brings together public broadcasters and community organizations to solve problems around local health and health care issues.

http://www.healthinschools.org/grants/ops138.asp

2. Skin Cancer Foundation Public Awareness Grants:
Sunproof America Public Awareness Grants Program¹s will be open to all U.S.
non-profit organizations that play a role in educating their constituencies and/or the general public about skin cancer prevention, early detection and effective treatment.

http://www.healthinschools.org/grants/ops139.asp

3. Target Community Giving Program:
Target¹s Community Giving Program is a store-based grant initiative that supports projects in the arts, reading, and family violence prevention. The latter project area includes funding for parenting education, crisis nurseries, family counseling, after-school programs, support groups, and abuse shelters.

http://www.healthinschools.org/grants/ops140.asp

4. NPower and AT&T Wireless Technology Grants:
The AT&T Wireless Community Connections Award announces the availability of
funds to support nonprofits using wireless technology to expand the reach and impact of their services. AT&T Wireless is interested in supporting projects that have the power to be models for other nonprofits, contributing new knowledge and understanding to the sector about how to use wireless technology.

http://www.healthinschools.org/grants/ops141.asp
(thax Safeyouth)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#55   Monday, April 19, 2004   
========================================================
DAC was very disappointed to learn that Governor Warner signed HB 632   thereby making it unlawful to assist in the procurement and purchase of Canadian drugs at discounted prices in Virginia.  This bill was snuck through the General Assembly without ANY community meetings or constituent input.  Is this considered representation?  NO!  This is considered payback time to the pharmaceutical companies that line politicians pockets. There is a way around this, however, and DAC will tell you what it is.  Read this part of the law:

"Unless otherwise specifically authorized by law, any person who, for compensation, knowingly assists another in unlawfully procuring prescription drugs from a pharmacy or other source he knows is not licensed, registered or permitted by the licensing authority of the Commonwealth, any other state or territory of the United States, or the United States, is guilty of a Class 1 misdemeanor and, upon a second or subsequent conviction, a Class 6 felony."

Well, DAC does nothing for "compensation" and some states DO allow purchase of prescription drugs at discounted prices to the U.S. If Virginia wants to challenge me in court, then so be it, but I'll still tell you where and how to purchase lower priced drugs for free.  Who knows if you buy in state or out of the country?  We don't know nor will the state:)  New Hampshire has a site that will lead you to accredited Canadian drugs. Read this "
New Hampshire governor unveils state Internet link to Canadian pharmacy" at: http://www.cbc.ca/cp/world/040405/w040556.html

N.H. Gov. Craig Benson on Monday (today) unveiled a link on the state's official website to a Canadian pharmacy that exports cheaper drugs to the United States. "I will not stand by and watch our seniors overpay for lifesaving medication," he said. "The pharmaceutical industry has balanced their books on the backs of seniors for too long." David Minnis, spokesman for the New Hampshire Pharmacists Association, said the governor is "putting the state at risk," echoing criticism last week from the Food and Drug Administration.

What risks?  No deaths have been associated with Canadian drugs.  It's all about MONEY, MONEY, MONEY at your expense!  For a look at cheaper drugs go here: www.state.nh.us/governor  or try this http://www.canadadrugs.com/ which is the link from Governor Benson's website.  I hope this helps all in need and to our Virginia Representatives I say "pooh".... maybe you should start listening to Gov. Benson.

One more site to try: http://www.medcenterstore.com/newsroom/view/16  and if my friend who sent me a list of safe Canadian Pharmacies would do so again, as I misplaced the other one, I'd certainly appreciate it:)

NEXT
A reader sent me this great new website.  I've already posted it to DAC's link page.

Hi Keith,
I came across a new website today, WatchingJustice.org.  It was just launched yesterday.  It's a non-partisan, watchdog website that monitors the U.S. Department of Justice.  There's a page on the ADA, thought you might be interested.  Here are the relevant links:
Main page:
http://www.watchingjustice.org/index.php
About Watching Justice:
http://www.watchingjustice.org/about/index.php
Americans with Disabilities page: http://www.watchingjustice.org/issues/subIssue.php?docId=74

Thanks for a great newsletter!

And I thank you for sharing this information:)  Keith...

AND
Read our 1st story to call members of Congress April 21st, and tell them to get their priorities straight and make a responsible budget.

Our 2nd story tells about the second annual "New Freedoms Award" which DAC did receive a nomination too last year.  Pick your favorite group, org, or person and nominate them.

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. CALL CONGRESS APRIL 21ST
2. AWARDS ANNOUNCEMENT
3. FDA RECALL OF FAULTY PATIENT LIFTS
4. REVERSE MORTGAGES CAN HELP WITH LONG TERM CARE EXPENSES
5. FUNDRAISER -- DONATIONS
6. DAILY HEALTH NEWS
7. REFORM REPRESENTATIVE PAYEE SYSTEM
========================================================
********************************************************
CALL CONGRESS APRIL 21ST
********************************************************  
We've been following this battle for some time, and we now have the opportunity to join with many groups in a coordinated effort to tell Congress to get its priorities straight. Wednesday, April 21st has been designated as the day to call your Representative and Senators.

Tell your members of Congress to: Include responsible limits on future tax cuts! As we have mentioned in past alerts, the Senate passed a budget that restores rules restraining the deficit by requiring any new tax breaks to be offset. Make sure the final budget includes the responsible limits included in the Senate version! These “pay-as-you-go” rules mandating offsets would make it much harder for Congress to pass permanent tax breaks that will disproportionately benefit those in upper income brackets while crippling our ability to support Medicare, Social Security, and future health insurance expansions. (For more information on the budget and pay-as-you-go, please read the Legislative Update in the April edition of Health Action.) Call your Members of Congress toll-free at 1-888-508-2974 on Wednesday between 9:00 AM and 5:00 PM Eastern Time and urge them to pass a fair and responsible budget! (thax familiesUSA)

********************************************************
AWARDS ANNOUNCEMENT
********************************************************
I would like to introduce you to the New Freedom Foundation.  We are a nonprofit organization that is committed to inspire the creation of new freedoms and improve the quality of life for those people who have a disability through educational programs, public awareness campaigns, research grants, and scholarships. 

Our flagship program, the New Freedom Awards, gives formal recognition to the extraordinary, the innovative and the inspiring.  If you know a person or organization that should be considered for one of our 18 awards, you can enter a nomination on our website until May 1, 2004. For additional information, please visit our website at http://www.newfreedomawards.com 
Thanks you 
New Freedom Foundation 
(thax J.W.)

********************************************************
FDA RECALL OF FAULTY PATIENT LIFTS
********************************************************
FDA Announces Nationwide Recall of Faulty Patients Lifts

The Food and Drug Administration recently announced that Moving Solutions Inc., of Downers Grove, Ill., is recalling its patient lifts because of a faulty design. The recall involves all FAABORG model battery operated patient lifts distributed by Moving Solutions. Some 856 lifts have been distributed throughout the United States.

Facilities should stop using these lifts until the problem is corrected. The FDA has received one report of death related to the failure of the bolt in this model lift.  FDA is monitoring the firm's action, which constitutes a Class I recall, to make sure that all facilities which use these lifts are adequately notified of the problem and to make sure that no more products are distributed.  For more information, go to
www.fda.gov/bbs/topics/news/2004/NEW01032.html or call 1- 888-INFO-FDA.
(thax DS News)

********************************************************
REVERSE MORTGAGES CAN HELP WITH LONG TERM CARE EXPENSES
********************************************************

STUDY SHOWS THAT REVERSE MORTGAGES
CAN HELP MANY WITH LONG-TERM CARE EXPENSES

SAN FRANCISCO - A new study by The National Council on the Aging (NCOA) shows that using reverse mortgages to pay for long-term care at home has real potential in addressing what remains a serious problem for many older Americans and their families.

In 2000, the nation spent $123 billion a year on long-term care for those age 65 and older, with the amount likely to double in next 30 years. Nearly half of those expenses are paid out of pocket by individuals and only 3 percent are paid for by private insurance; government health programs pay the rest.

According to the study, of the 13.2 million who are candidates for reverse mortgages, about 5.2 million are either already receiving Medicaid or are at financial risk of needing Medicaid if they were faced with paying the high cost of long-term care at home. This economically vulnerable segment of the nation's older population would be able to get $309 billion in total from reverse mortgages that could help pay for long-term care. These results are based on data from the 2000 University of Michigan Health and Retirement study.

"There's been a lot of speculation whether reverse mortgages could be part of the solution to the nation's long-term care financing dilemma," said NCOA President and CEO James Firman. "It's clear that reverse mortgages have significant potential to help many seniors to pay for long term care services at home."

According to the study, out of the nearly 28 million households age 62 and older, some 13.2 million are good candidates for reverse mortgages. "We've found that seniors who are good candidates for a reverse mortgage could get on average $72,128.  These funds could be used to pay for a wide range of direct services to help seniors age in place, including home care, respite care or for retrofitting their homes," said Project Manager Barbara Stucki, Ph.D. "Using reverse mortgages for many can mean the difference between staying at home or going to a nursing home."

The study is part of the NCOA's National Blueprint for Increasing the Use of Reverse Mortgages for Long-Term Care due to be published in June. The blueprint will offer new insights into the potential market for reverse mortgages along with recommendations for administrative action, regulatory changes, consumer protections and demonstration programs.  The study results were announced at a press briefing at the American Society on the Aging/National Council on the Aging joint conference here.

Reverse mortgages are a special type of loan allowing people aged 62 and older to convert equity in their home into cash while they continue to live at home for as long as they want. Eighty-one percent of households in the U.S. with homeowners age 62 and older own their own homes and many own them free and clear.

Seniors can choose to take the cash from a reverse mortgage as a lump sum, in a line of credit or in monthly payments. If they choose a lump sum, for example, Stucki said that they could pay to retrofit their home to make kitchens and bathrooms safer and more accessible -- especially important to those who are becoming frail and in danger of falling. If they choose a line of credit or monthly payments, an average reverse mortgage candidate could use the funds to pay for nearly three years of daily home health care, over six years of adult day care five days a week, or to help family caregivers with out-of-pocket expenses and weekly respite care for 14 years. They could also use it to purchase long-term care insurance if they qualify.

"Up until now, though, most these seniors have not tapped the equity in their homes -- estimated at some $1.9 trillion -- to pay for either preventive maintenance or for services at home," noted Peter Bell, executive director of the National Reverse Mortgage Lenders Association. Noting that the average income of men aged 65 and over is $28,000 and $15,000 for women, he added, "This study shows that unlocking these resources can help millions of 'house rich, cash poor' seniors purchase the long-term care services they feel best suit their needs."

The National Council on the Aging, with the support of both the Centers for Medicare and Medicaid Services (CMS) and the Robert Wood Johnson Foundation, is laying the groundwork for a powerful public-private partnership to increase the use of reverse mortgages to help pay for long-term care. The ultimate goal of the Use Your Home to Stay at Home program is to increase the appropriate use of reverse mortgages so that millions of homeowners can tap home equity to pay for long-term care services or insurance. For a fact sheet on reverse mortgages, please go to www.ncoa.org and visit our press room.
           
Founded in 1950, The National Council on the Aging is a national voluntary network of organizations and individuals dedicated to improving the health and independence of older persons; increasing their continuing contributions to communities, society, and future generations; and to building caring communities. NCOA is a national voice and powerful advocate for public policies, societal attitudes, and business practices that promote vital aging.  NCOA is an innovator, developing new knowledge, testing creative ideas, and translating research into effective programs and services that help community service organizations serve seniors in hundreds
of communities. And, NCOA is an activator, turning creative ideas into programs and services that help community services organizations serve seniors in hundreds of communities. For more information on NCOA, visit www.ncoa.org.
(thax Proaging)

********************************************************
FUNDRAISER -- DONATIONS
********************************************************
The Peer Outreach Program (POP) is asking for donations for its multimedia
fundraiser that will be held from 7-12 Am on May 28, 2004.  The proceeds raised will be used to help fund and maintain the Peer mentoring program and Women's support group at the Memphis Center For Independent Living.  The Peer Outreach Program's mission is to help persons with all types of disabilities to live independently and be able to participate in all aspects of the community.  We are asking for donations of books, audiobooks, cds, movies, videos, dvds, games of all types, and records.  If you have any questions or would like to make a donation, please contact Christina Clift at 726-6404 for more information. 

Christina Clift
VISTA Peer Outreach Program Coordinator

********************************************************
DAILY HEALTH NEWS
********************************************************
Daily health news articles are featured on the healthfinder® Web site, with 1-year searchable archives in English and Spanish.

Now you also can sign up to receive health news headlines by e-mail.

Estrogen-Only Study Produces Mixed Results

Quick Hip Fracture Surgery Cuts Patient Pain
Finding the First Signs of Ovarian Cancer
Protein Lowers Heart Attack Risk
Over-the-Counter Drugs Aren't Risk-Free
Clinical Trials Update: April 13, 2004
Predicting Odds Against Prostate Cancer
Secondhand Smoke Slows Wound Healing
Lung Cancer in U.S. Women Is 'Epidemic'
Colon Cancer Test Disappoints
News articles are available at http://www.healthfinder.gov/news/ for 1 year. Get the latest health news or easily search thousands of articles in English or Spanish.

********************************************************
REFORM REPRESENTATIVE PAYEE SYSTEM
********************************************************
Congress and the President Act to Reform Representative Payee System

The following item appears in the April 16, 2004, issue of the Puget Sound [Seattle] Business Journal:

Mark Neil Haskey of Puyallup was sentenced to 15 months in prison and ordered to pay $167,500 in restitution Friday for defrauding more than 100 disabled Social Security recipients, government officials said.

Haskey, 42, who pleaded guilty in November, will also have to serve 36 months of supervised release as part of the sentence handed down by U.S. District Judge Franklin Burgess in Tacoma.

The government alleged that Haskey took more than $160,000 while running a not-for-profit service, Turning Point Services, which managed money for Social Security recipients.

Haskey served as a "representative payee," a person or organization selected by the Social Security Administration to receive benefits from recipients who are too disabled to manage their own personal finances.

Haskey's service reportedly acted as a representative payee for more than 100 recipients from June 1995 to August 2003, court papers said. He faced a maximum of five years in prison, a $250,000 fine and three years supervised release for each of the two counts of Social Security fraud he was charged with.

Social Security Protection Act
---------------------
Unfortunately, the tale of Mr. Haskey's criminal misdeeds is not rare. Although crimes by representative payees are by no means common, the problem is serious enough that Congress and the President have done more to stop the problem and protect Social Security beneficiaries. Last month President Bush signed into law the Social Security Protection Act of 2004, Pub. L. No. 108-203.

The new law offers a number of protections for Social Security beneficiaries who have representative payees. Approximately eight million people who receive benefits under the Social Security or Supplement Security Income (SSI) programs have representative payees--usually family members who receive and manage cash benefits on behalf of beneficiaries.

As summarized on the Web site of the Council of State Administrators of Vocational Rehabilitation, the new law will:

* Allow the Social Security Administration to re-issue benefits to beneficiaries whose funds had been misused by organizational representative payees or an individual serving 15 or more beneficiaries. These re-issued benefits will be excluded from resource calculations;

* Require non-governmental organizational representative payees to be bonded and licensed under state law;

* Require monitoring of representative payees, including periodic on-site  monitoring of individuals serving more than 15 beneficiaries; certified community-based non-profit social service agencies; or any agency serving over 50 beneficiaries;

* Disqualify as representative payees people convicted of offenses resulting in imprisonment for more than a year, and people fleeing prosecution, custody, or confinement for a felony;

* Require that a payee that is not a governmental agency will be held liable for misuse of funds and that recovered amounts shall be refunded to the beneficiary; and

* Allow SSA to treat misused benefits as "overpayments" to the representative payee, thereby triggering SSA's authority to recover the money through tax refund offsets, referral to collection agencies, notifying credit bureaus, and offset of any future federal benefits/payments.
(thax Elderfax)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++

========================================================
DAC News V4-#54   Thursday, April 15, 2004   
========================================================
The pharmaceutical industry is trying to get passage of HB 632 by the Virginia General Assembly http://leg1.state.va.us/cgi-bin/legp504.exe? ses=041&typ=bil&val=HB632 The pharmaceutical industry is concerned about profits, not consumers of course.

Governor Warner please take note:
There appears to be a potential significant flaw in the language of HB 632 "Prescription drugs; unlawful to assist individuals in procuring from a pharmacy or other source" which awaits the Governor's signature or veto. The statute states "for compensation" Section 18.2.  I can't find a definition of the word "compensation in that section. The only thing that I can find mentioned a "context" reference (ie § 18.2-190.1. "Definitions. As used in this article, unless the context requires a different meaning").

If the Governor signs this bill in to law will it take a VA Attorney Generals opinion to clarify what "for compensation" means?  Wouldn't it be better to wait a year until the next General Assembly session to clarify this meaning?

HB 632 language appears to prohibit any person for compensation to refer persons to Canadian (or other countries) pharmacy's to obtain prescription drugs. It doesn't appear to apply to unpaid/uncompensated volunteers who make such a referal(s).
You can always check DAC's 'main' page for purchasing drugs out of the country. Go to: DAC main.htm as we don't charge for information that we can gladly supply for free and nobody can stop us:)

It remains unreported how much the advertising campaign noted in the news story will cost -- undoubtedly another cost to be shifted to and paid for in effect by consumers.

If the pharmaceutical industry had the statistics on how many persons are injured by drugs purchased in Canada by US residents as they claim, versus the injury rate by drugs purchased in the USA - surely the industry would trot out those numbers with a few real people cases wouldn't you think?????

However, the bottom line appears to come down to money. In the process it amounts to sock it to US consumers. It is easy to answer the rhetorical question posed in the news story -- "if they are in fact the same, why can't the drug companies sell them for the same price in the U.S.?"  They are not sold for the same price in the USA as consumers in the USA are paying for the cost of research and development for drugs exported from the US to other countries. American consumers also pick up the tab for billions of dollars spent each year in pharmaceutical advertising campaigns to boost prescription drug sales in the US.
Responsible elected leaders should introduce and pass legislation barring such advertising. 

DAC encourages Governor Mark Warner to veto HB 662 when it reaches his desk.

Read this story
"Pharmacists worried about Canadian drugs" By Cynthia T. Pegram
Lynchburg News & Advance, Wednesday, April 14, 2004 at: http://www.newsadvance.com/servlet/Satellite?pagename=LNA%2FMGArticle%2FLNA_BasicArticle&c=MGArticle&cid=1031774864013&path=!frontpage

On a recent vacation to Canada I noted two large pharmaceutical giants as in Merck and Pfizer who had plants/offices in Quebec.  If they can produce and sell drugs much cheaper in Canada then why are U.S. citizens being priced gouged???  Just a thought:)

NEXT:

LIKE TO EAT OUT, BUT DON'T KNOW WHERE TO GO?
If you have access to a computer, you can discover accessibility to restaurants across the US.  Type in a city and state; even add a particular cuisine, if you like. Lots of local places already rated.  It's a not-for-profit online service that's FREE!  http://www.wiredonwheels.org

HAVE YOU HEARD ABOUT SCOOTERS AMERICA?
They will assist you in getting a new scooter or power chair from Medicare, Medicaid, and your insurance company, if you qualify. They do all the paperwork, and what's more, they come to your home. Many people with disabilities are eligible, but are afraid of being turned down.  Call toll free 877-339-1235, or locally 206-755-7339, for assistance and additional information.  (Thax to Bill Brayer in WA)

AND
In our 1st story read about a new website called HireAbilities who offer programs and services to students and college graduates seeking professional employment. They also educates companies and other employers about the benefits of disability diversity in the workplace.

NEXT
Great article about a day/residential school/facility in the Houston, Texas area!
Visit the home page of "Houston Family" - the free monthly magazine that published this article!
http://houston.parenthood.com/
Avondale House: A Second Home and Family for Autistic Kids
http://houston.parenthood.com/Articles.html?article_id=6323&segid=149

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. HIRE-ABILITIES
2. VOICES OF CIVIL RIGHTS - SHORT STORIES WANTED
3. THE FIGHT IS ON IN CA - THE TERMINATOR TO CUT HOMECARE
4. PLAYGROUNDS & SPORTS FOR CHILDREN WITH DISABILITIES
5. APRIL IS AUTISM MONTH
6. HARKIN URGES REVERSAL OF CAPTIONING DECISION
7. CUTS IN MEDICAID DENTAL CARE THREATEN GOOD HEALTH
========================================================
********************************************************
HIRE-ABILITIES
********************************************************  
HireAbilities is a national nonprofit network of emerging professionals with disabilities (http://www.hireabilities.org).  HireAbilities offers programs and services to students and college graduates seeking professional employment and educates companies and other employers about the benefits of disability diversity in the workplace.

We emphasize the need for people with disabilities to be celebrated for their abilities and contributions. We work to advance the presence of people with disabilities in the workforce and to overcome attitudinal barriers preventing full recognition of the talents and skills of employees with disabilities. 

In March 2004, we launched an online mentoring program for emerging professionals with disabilities.  We are currently reaching out to existing professionals, with and without disabilities, to encourage them to serve as short-term or long-term mentors to our members.  We are also welcoming emerging professionals looking for mentors into our program. 

For more information about the mentoring program, Professionals Reaching out to Emerging Professionals (PREP), please visit the Mentors section of our website: 
http://www.hireabilities.org

********************************************************
VOICES OF CIVIL RIGHTS - SHORT STORIES WANTED
********************************************************
We’ve created a civil rights website that features letters from many people about struggles minorities have faced in this country. We want the web site to represent people from all walks of life, especially the disabled. So we’d love it if you’d write a letter for the web site about your own personal experience as a disabled person, where you’ve faced discrimination or your experience in direct action.

 
The letter can be short; we’d prefer it be less than 500 words. Just go to http://www.voicesofcivilrights.org to submit your letter.
Thank you.

Anne Thomas, ALThomas@aarp.org
(thax M.J.)

********************************************************
THE FIGHT IS ON IN CA - THE TERMINATOR TO CUT HOMECARE
********************************************************
ADAPT was a co-sponser of this event described in the newspaper article below. As some of you all may know, the disability community in CA is under a major attack from Governor Arnold Schwarzenegger (aka. Terminator). The entire homecare system in this State is in grave danger and may not survive.  Blane N.  Beckwith - blane10@juno.com.  Are you ready for this struggle in YOUR State?

View this article
View The Oakland Tribune

Care cuts may hit home hard.

Crowd in Oakland voices concerns about Arnold's plan to slash program for disabled

By Rebecca Vesely, STAFF WRITER

Thursday, April 08, 2004 - About 400 disabled and elderly people and their caregivers from across the region packed a town hall meeting in downtown Oakland on Wednesday to voice their concerns about a state budget proposal to slash in-home care services.

Those attending -- many in wheelchairs and requiring assistance -- said Gov. Arnold Schwarzenegger's budget plan to cut wages, benefits and eligibility for in-home supportive services, or IHSS, would be devastating.

"This 'terminator' -- he's out to terminate us," said Blane Beckwith, a 48-year-old Berk-eley resident who requires around-the-clock care.

The IHSS program assists low-income blind, disabled or elderly people so they can stay in their homes. Care includes housework, running errands bathing, feeding and giving medication.

The governor's budget proposes cutting caregiver wages from $9.50 an hour to mini-mum wage of $6.75 an hour and eliminating their health benefits. Parents, spouses and other relatives could no longer get paid through the program. The county authority that screens workers and provides training would be eliminated.

About 75,000 people state-wide would lose care, at a savings of $365 million next fiscal year. In Alameda County, about 3,800 caregivers would see their wages and benefits slashed, and services for 1,650 disabled blind and elderly would be eliminated, said Charles Calavan, executive director of Alameda County's Public Authority for IHSS.

Pamela Simmons of Oakland has been a caregiver to Elnora Jackson for six years. Simmons said she needs the health benefits provided through her work for IHSS. "It would be hard for me to get medical benefits on my own because I am diabetic; I wouldn't qualify," she said.

State Senate Majority Leader Don Perata, D-Oakland, promised to appeal to his colleagues to take the IHSS cuts off the table. "I don't want this on my conscience, or the conscience of the Legislature," he said. "Lord knows your lives are hard enough without us adding more misery."

Hearings on the state budget will be held later this month. Health and Human Services Secretary Kim Belshe has said cuts to IHSS -- a program that has grown 52 percent in five years to 300,000 enrollees -- are necessary because of the state's $15 billion deficit.

Alameda County Supervisor Alice Lai-Bitker choked up while speaking to the audience. "It's very emotional for me to sit here in this room," she said. "I know it was a long fight to get reasonable wages and benefits."

Carla Christensen of San Lorenzo sat in the front row listening, leaning against her 13-year-old son Bond's wheelchair. When Bond was one year old, he contracted a rare parasitic disease that "did a Pac-Man number through his brain" she said, and left him blind and disabled. Christensen quit her job and is his around-the-clock caregiver. She earns $1,159 a month through IHSS for 122 of those hours.

The IHSS money is critical for Christensen and her husband, who works as a doorman in downtown San Francisco, to afford the mortgage payment on their house. She fears they will lose their house if the proposed budget cuts go through.  "It's hard for me to comprehend that in an atmosphere of family values, minor children seem like they're being the first ones hit," she said. "I can understand everyone has to do their bit in hard times, but don't pick on them first."

Contact Rebecca Vesely at rvesely@angnewspapers.com
--
Steve Gold, The Disability Odyssey continues

Back issues of other Information Bulletins are available online at
http://www.stevegoldada.com

********************************************************
PLAYGROUNDS & SPORTS FOR CHILDREN WITH DISABILITIES
********************************************************
Director's Corner: Making Playgrounds and Sports Programs More Inclusive for Children with Disabilities

In last month’s column, I spoke of the disappointment that I experienced as a parent of two daughters who never had the opportunity to have a player with a disability on their teams. I wonder how many of us have asked the questions, "What do children with learning disabilities, autism, cerebral palsy, head injury, mental retardation, and so on, do on Saturday mornings? Where do they ‘hang’ after school and on weekends while their peers head for soccer practice, ballet class, gymnastics, swimming, and skateboarding?" Some argue that 'these' children don’t want to play sports; others say they can’t. I don’t believe either.

Read the entire column at http://www.ncpad.org/Feature/directors_corner/DC040504.htm.

----
Project INSPIRE: Focus on Inclusive Outdoor Recreation

Project INSPIRE (New England Initiative for National and State Park Inclusive Recreation Expansion) is a collaboration between the Universal Access Program of the Massachusetts state parks and All Out Adventures, Inc., to train park and recreation professionals, at no charge, to create accessible, inclusive outdoor recreation opportunities at their sites or in their communities. These initial efforts will inspire an increase in inclusive outdoor recreation programs throughout New England.

The Project INSPIRE conference, “Joining Forces: Collaborative Solutions for Inclusive Recreation,” will be held in April 2005 in Massachusetts in order to inspire similar efforts nationwide.

Project INSPIRE offers park and recreation professionals in New England the following services free of charge: 1) opportunities to attend inclusive outdoor recreation programs in order to understand how canoeing, kayaking, biking, bird-watching, and camping can be made more accessible for people of all abilities; and 2) consultation in creating more inclusive recreation programs and demonstration events to insure permanent inclusion of people with disabilities at that site in the future.

For more information about Project INSPIRE's schedule of summer outdoor recreation programs, please contact Bryce Fifield at All Out Adventures, Inc., at 413-527-8980 or bryce@alloutadventures.org
.

--------------------------------------------------
Lekotek Offers Play Sets

The National Lekotek Center is looking for organizations to receive an adapted remote control play set for only a $15 shipping fee.

The new Lekotek Capable Commander is a one-of-a-kind project by Lekotek. Thanks to funding from the San Diego Foundation, the company is donating 300 free completed play sets to organizations around the country that work with children with disabilities.

Lekotek is a non-profit organization with a national network of 42 affiliates that provides play-centered services to children with all types of disabilities through special play and learning centers. Lekotek also provides supportive and informational services to families and professionals with children who have special needs.

Click on http://www.ncpad.org/newsletters/april04link.htm#6 to view the new adapted remote control and for more details. Sets will be donated on a first-come, first-serve basis, so register soon. Contact Ellen Metrick, project coordinator with questions at 773-276-5164, X118, or emetrick@lekotek.org.
(thax NCPAD)

********************************************************
APRIL IS AUTISM MONTH
********************************************************
April: Autism Month
Autism is a lifelong developmental disability that usually presents itself in the first three years of life. Autism can come in a variety of forms and affects the areas of developmental, social and communication skills. Find out about Best Practices...read more

Dyslexic Kids Now Love to Write!
Word Q takes the frustration level away from learning disabled students and helps them to become proficient writers. Developed in Canada and reasonably priced, this software application is one of the best I've seen. School boards all over are now...read more

Trick Them Into Learning
See what our Math guide has to say about quick tips to learning the multiplication tables. Some great tricks!...read more
(thax about.com)

********************************************************
HARKIN URGES REVERSAL OF CAPTIONING DECISION
********************************************************

HARKIN URGES REVERSAL OF CAPTIONING DECISION DISALLOWING
FUNDING FOR CERTAIN PROGRAMING

WASHINGTON-Senator Tom Harkin (D-IA), along with Senator Edward M. Kennedy (D-MA), today wrote to U.S. Department of Education Secretary Rod Paige urging the immediate reversal of the Department's decision to disallow funding for captioning of nearly 200 television programs.  Harkin and Kennedy urged Secretary Paige to direct the engagement of a fair, consumer-directed process to decide how to best allocate these vital funds.

The Individuals with Disabilities Education Act (IDEA) requires the Department of Education to distribute funding for the captioning of "educational, news and informational" programs.  In years prior, the Department distributed federal funding to captioning agencies and required that these agencies create Consumer Advisory Boards to assist in selecting what qualifies as "educational, news and informational."  That process, however, has recently been superseded by a list of disapproved programs which was compiled by the Department without consumer input.  Many important entertainment news and sports news programs have
been disapproved.

"Without access to these news programs, deaf and hard of hearing students will be unable to participate in many conversations with their peers and unable to understand references to sports and popular culture, which are often used by teachers to make concepts relevant to youth.  The disapproval of news shows and other programs also prevents deaf parents from reviewing these programs for their children - depriving them of many valuable learning opportunities," the letter said.

Harkin also expressed concern with the Department of Education's claims that it instructed an external panel of experts with guidelines regarding which programming met their criteria.  Harkin wrote, "One of these experts has reported to Congress he was not told he was serving on a government panel, did not meet other panel members, was not informed of the purpose for his input and comments and was
not given any definitions, written instructions, or examples to guide his decisions."

Harkin, whose brother Frank was deaf, authored the ADA in the Senate and has led efforts to increase access to captioned television programming for individuals with
disabilities.
(thax jfa)

********************************************************
CUTS IN MEDICAID DENTAL CARE THREATEN GOOD HEALTH
********************************************************
Cuts in Medicaid Dental Care Services Threaten Good Health

Looking to save some $12 million in the 2004 budget, the state of Michigan on October 1, 2003, stopped paying for routine dental care for 600,000 adults on Medicaid, the state-federal health insurance plan for persons with few assets and low incomes.

Among those no longer receiving Medicaid dental care are low-income mothers, nursing home residents, and developmentally disabled and mentally ill people. Care for children is not affected, and adults in pain or those suffering from infections can still receive Medicaid-paid treatment.

In the Missouri legislature, the House of Representatives passed a bill earlier this month that would slice $110 million from the state's $4.2 billion Medicaid budget, which covers almost one million poor, elderly and disabled Missourians. The legislation would authorize the elimination of some Medicaid services not required by the federal government, such as dental and optical care for low-income adults.

Facing a $127.7 million shortfall in the state's budget, the governor of Maine has proposed to eliminate more than a dozen health-care services for adults paid for by the state's Medicaid program, including dental care.

Beginning April 1, 2002, the state of Idaho eliminated all non-emergency adult dental coverage under the Medicaid program. In a memo to the state's nursing home administrators, the Idaho Department of Health and Welfare said that some nursing home residents who need dentures will likely not be able to get them due to the recent Medicaid cuts; but in those cases, nursing homes should grind, puree or blend residents' food so they can eat.

In an effort to cut costs, states are cutting back on such services that Medicaid will pay for. Every state but one is required by state constitution to balance their budgets, and Medicaid, which in most states is exceeded only by education as the single largest budget item, is a convenient -- and, many would say, overdue -- target for cuts.

Proponents argue that cuts are necessary to slow the growth of the states' Medicaid programs. Besides reducing or eliminating covered services, the cuts usually make it more difficult for some people to qualify for Medicaid and impose new co-payments on participants each time they visit a doctor or hospital.

Nonetheless, some public officials have come out strongly against cutting health services to the poor and disabled. In a speech last Wednesday to a crowded room of supporters, Missouri Governor Bob Holden called the state legislature's proposed cuts to the state's Medicaid program "penny-wise and pound-foolish." Holden said, "The cuts go too far."

Dental care is one optional service that budget-cutters are eyeing. Advocates for the elderly and disabled have come out harshly against cuts in dental services, saying that poor dental health inevitably leads to greater health problems.

Health officials say poor dental health can result in premature births, increases in heart disease, arteriosclerosis and uncontrolled diabetes. People suffering from those and other dental-related health problems eventually will show up using other Medicaid health services or in hospital emergency rooms, health officials say.

For just those reasons, "we're not saving anything by not covering adult dental," said Republican State Senator Tom George, a physician who sits on the Michigan Senate Appropriations subcommittee on community health.

Four years ago, the U. S. Surgeon General released a report on "Oral Health in America," stating, "Nursing homes and other long-term care institutions have limited capacity to deliver needed oral health services to their residents, most of whom are at increased risk for oral diseases."

"Oral health is essential to general health and well-being," concluded the Surgeon General.
(thax Elderfax)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#53   Tuesday, April 13, 2004   
========================================================
The Virginia State General Assembly STILL hasn't passed a state budget.  So what's new?  The state remains at an impasse because our legislators don't know how to negotiate.  Remember, you can vote these people out of office as there must be others much better.  Maybe we can outsource these legislative positions? Just a thought:)

Our 1st story is about a new site for CHILDREN WITH SPECIAL NEEDS and I highly recommend their great website.  Lots of info. 

RALLY
The National Association of the Deaf announced its support of the "Silence No More!" rally led by the Gallaudet University Student Body Government (SBG) to protest the lack of captioning in the United States. The rally will take place on Friday, April 16, 3:30 - 5:00 pm at the Upper Senate Park, located at the corner of Constitution and New Jersey Avenues, NE, Washington, DC. More information about the rally can be found at: http://sbg.gallaudet.edu/news.htm

AND
A MARCH in our 3rd story by Pain Advocasy Organizations.  Read and partisipate if you can.

Emergency Planning Training Materials
The Emergency Management Institute has a Web site on Emergency Planning and Special Needs Populations from which course materials can be downloaded. This is not a self-paced, self-study or computer based training course, but rather course materials that are intended to be delivered in an instructor-led classroom training. For more information visit:  training.fema.gov/EMIWeb/pub/register.html
(thax DS News)

NEXT
Read the "Kerry Statement on MiCASSA/MFP Hearing" at: http://kerry.senate.gov/bandwidth/cfm/record.cfm?id=220194

Take a look at the new website for the Virginia Housing Development Authority
at:  http://www.vhda.com

Also the US DOJ ADDS SPANISH TO THEIR ADA WEBSITES.

AND
University grads with severe disabilities increase work chances through 'Illinois Model.'  More about the study can be found at:
http://www.eurekalert.org/pub_releases/2004-03/uoia-sla031904.php

Our last story poses a very serious threat about future actions in other states.  Please read where 'Special Needs Children' are being outsourced to Mexico. Maybe we should outsource our representatives too!

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. CHILDREN WITH SPECIAL NEEDS
2. DRS MEETINGS TO AMEND STATE PLAN
3. PAIN ADVOCACY MARCH
4. US DOJ ADDS SPANISH TO THEIR ADA WEBSITES
5. SOCIAL SECURITY NEWS FOR APRIL
6. BRIDGES4KIDS DISABILITY NEWS
7. SALT RICHMOND WRAP-UP
8. SPECIAL NEEDS CHILDREN BEING OUTSOURCED TO MEXICO
========================================================
********************************************************
CHILDREN WITH SPECIAL NEEDS
********************************************************  
Thanks to the General Assembly we (www.snap4kids.org) are now able to offer a Virginia license plate bearing the legend "CHILDREN WITH SPECIAL NEEDS."  A sample can be found on our website.  With this plate we hope to promote awareness and acceptance of children with special needs throughout Virginia.  As with all license plates we need 350 prepaid orders (a single plate is $25).  With your help (and please feel free to pass this along to anyone) we can make our "CHILDREN WITH SPECIAL NEEDS" license plate a reality.  All forms can be found on our website.  Any questions, don't hesitate to let me know. 

Thanks,

Pam Floyd, Founder
Snap4kids
801 W. Little Creek Road
Suite 110
Norfolk, VA 23505
Phone:  757-440-5254
Fax:  757-440-5251
Thanks for your support in this effort!

********************************************************
DRS MEETINGS TO AMEND STATE PLAN
********************************************************

DEPARTMENT OF REHABILITATIVE SERVICES

Memorandum

To: Community Partners
From:  Susan Burns, Training and Development Coordinator
Date: April 1, 2004
Re: Order of Selection Training
____________________________________________________________________
The Department of Rehabilitative Services will be amending its State Plan for Vocational Rehabilitation to enter into an order of selection effective July 1, 2004.  When, as a result of limited resources, all eligible vocational rehabilitation consumers cannot be served, the Rehabilitation Act requires an order of selection and consumers are served through the use of priority categories, with consumers with the most significant disabilities served first.  

In preparation for order of selection implementation, DRS is offering a series of half-day training sessions designed to provide you with information regarding the purpose and need for an order of selection, the order of selection service delivery process, policies and procedures, and impact on consumers, referral sources, and community partners.  

The training sessions will be open to community partners, as well as DRS staff.  DRS can offer no financial support to community partners interested in attending a session.  As space will be limited in some areas, the agency is asking that you limit attendance of individuals in your organization to one or two representatives.  Videotapes of the one of the sessions will be available for individuals who cannot attend. 

Interpreters will be available at sessions in Fishersville, Williamsburg and Fairfax. Interpreters will be available at one of the sites in the Southwest Region (to be determined). 

Date-Location-Time

4/16/04
Virginia Information Technology Agency
Auditorium
110 S. 7th Street
Richmond, VA
9:00 am – 12:30 pm

4/26/04
Woodrow Wilson Rehabilitation Center
Auditorium
Fishersville, VA
9:00 am – 12:30 pm

5/25/04
Eastern State Hospital
Building 3 - Auditorium
Williamsburg, VA
9:00 am – 12:30 pm

5/26/04
Northern VA Training Center (NVTC)
Gymnasium
9901 Braddock Road
Fairfax, VA
10:00 am – 2:00 pm

5/27/04
Southwestern VA Mental Health Institute
340 Bagley Circle
Marion, VA

AND

Southwestern VA Training Center
Building 1
State Route 707
Hillsville, VA
(video-conference)
9:00 am – 12:30 pm

To better manage attendance and to insure that adequate space is available at each session, please contact Rhonda Earman at EarmanRS@drs.state.va.us with your session request. 

For the Richmond session, please let us know who will be attending by Monday, April 12.  Due to security reasons, you will need to be on the participant list to be admitted to the VITA auditorium.

********************************************************
PAIN ADVOCACY MARCH
********************************************************

"Pain Advocacy Organizations Host March on Washington"

A Press release from the American Paint Institute and National Pain Patients Coalition:

Pain Advocacy Grass Roots Leaders Call For Congressional Hearings

"America's In Pain" - MARCH ON WASHINGTON - "Silent No More"

April 18-20, 2004

(Washington, DC) - Calling for "Congressional Hearings on the DEA War on Physicians, Pharmacists and Pain Patients", grass roots pain advocacy groups are pushing lawmakers to take action.  The National Pain Patients Coalition (NPPC), the American Pain Institute (API) and the National Juneteenth Medical Commission (NJMC) are organizing "America's In Pain" - MARCH ON WASHINGTON - "Silent No More", on the National Mall and at the U.S. Capitol, April 18-20, 2004, in Washington, DC. 

"The DEA war on drugs has turned into war on pain patients and the physicians who treat them," states Virginia Brooks, a chronic pain patient and leader of the National Pain Patients Coalition (NPPC).  "Unable to find a doctor willing to treat them, many pain patients are choosing suicide over living with chronic pain."

"Over 50 million people are living in untreated, disabling pain," states Rev. Ronald V. Myers, Sr., M.D., a Baptist Medical Missionary serving the poor in the Mississippi Delta and Founder & President of the American Pain Institute (API). "The DEA has unjustly prosecuted many physicians who treat chronic pain, shutting down their medical practices and in some cases, trying to give them long prison terms.  The irresponsible actions of the DEA "witch hunt" of many good physicians who treat chronic pain has led to a health care catastrophe in America."

Organizers of the MARCH ON WASHINGTON are gathering 1 million signatures on petitions calling for Congress to conduct hearings on the DEA attacks on pain management in America.  They plan to present these petitions to members
of Congress during the MARCH. 

"Far too many people have chosen suicide over living with untreated chronic pain," states Rev., Dr. Myers. "The DEA's hysteria over oxycontin, and now hydrocodone, which the DEA is trying to make a schedule II narcotic drug, we hope will be quickly investigated by Congress to turn the tide on the epidemic of pain patient suicides. The increased suicides among chronic pain patients demonstrates the morally reprehensible actions of the DEA."

For information on the MARCH ON WASHINGTON and how you can sign the petition calling for Congressional Hearings on the DEA, call Dr. Myers at 662-247-1471 or 202-331-8864, web sites: www.AmericanPainInstitute.org or
www.PainCoalition.us, e-mail: MyersFound@aol.com or Jean Bancroft, Public Relations Director for the MARCH ON WASHINGTON at 479-641-7755, e-mail: bancroft@arkansas.net.

"Don't give up the fight!"

America's In Pain!
MARCH ON WASHINGTON
Silent No More!
April 18-20, 2004
National Mall - Washington, DC

CONTACT:

AMERICAN PAIN INSTITUTE
Rev. Ronald V. Myers, Sr., M.D., Founder & President
202-331-8864    662-247-1471    662-247-1384 Fax
www.AmericanPainInstitute.org
e-mail: MyersFound@aol.com

NATIONAL PAIN PATIENTS COALITION
Virginia Brooks, President   
Terina Threadgill, Vice-President
662-334-6204    662-840-6309
www.PainCoalition.us
e-mail: MSPainCoalition@yahoo.com
(thax jfa)

********************************************************
US DOJ ADDS SPANISH TO THEIR ADA WEBSITES
********************************************************
The Great Lakes ADA and Accessible IT Center is pleased to announce that the
US Department of Justice has expanded the number of documents available on
their web site which have been translated in Spanish:

ADA Questions and Answers     La Ley para Personas con Discapacidades -
Preguntas y Respuestas http://www.usdoj.gov/crt/ada/adaqa03_esp.htm

Commonly Asked Questions About Child Care Centers and the Americans with
Disabilities Act   Preguntas Comunes de la Ley para Personas con
Discapacidades y Centros de Cuidar de Ninos
http://www.usdoj.gov/crt/ada/childcare_qa_esp.htm

Access for 9-1-1 and Telephone Emergency Services  Acceso a los Servicios de
Emergencia Telefonica y de 9-1-1 http://www.usdoj.gov/crt/ada/911ta_esp.htm

Questions and Answers: the ADA and Persons with HIV/AIDS  Preguntas y
Respuestas sobre la Ley para Personas con Discapacidades y las Personas con
HIV/SIDA  http://www.usdoj.gov/crt/ada/hivqanda_esp.htm

ADA Designated Investigative Agencies  ADA Agencias Investigatorias
http://www.usdoj.gov/crt/ada/investag_esp.htm

A Guide for People with Disabilities Seeking Employment  ADA Guía para
Personas con Discapacidades que Procuran Empleo
http://www.usdoj.gov/crt/ada/911ta_esp.htm

ADA Technical Assistance Documents in Spanish ADA Documentos de Asistencia
Tecnica en Español http://www.usdoj.gov/crt/ada/publicat_esp.htm
(thax M.S.)

********************************************************
SOCIAL SECURITY NEWS FOR APRIL
********************************************************
--  Online Benefit Applications Receive Prestigious Award
--  High Marks for Computer Security
--  President Gives Social Security Quality Recognition
--  Our Website Among Best in Government
--  Mom With HIV Uses Ticket to Work
--  Interested in International Pension Reform?
--  Get Your Kids Reading

Online Benefit Applications Receive Prestigious Award

Social Security received the Microsoft Government Solutions Award in the Government to Citizen category at the first-ever Microsoft Solution Recognition Awards Ceremony in Redmond, Wash.  Microsoft worked with Government Technology's Public CIO Magazine to select the winners in four separate categories.  Social Security was recognized for "effective use of Information Technology in helping government perform its mission more effectively or provide superior service to citizens."  The award specifically cited the Internet Social Security Benefit Applications. To be the next user of this award-winning service, visit the link below!
http://www.socialsecurity.gov/applyforbenefits/

High Marks for Computer Security

A Congressional report card rates Social Security's computer security efforts among the best in the federal government.  This report card, issued by the House Government Reform Subcommittee on Technology, Information Policy, Intergovernmental Relations and the Census, gave the Social Security Administration a grade of "B+," the third highest among federal agencies.  And Social Security has been among the top-ranking government agencies each of the four years the report has been issued.

"For more than 68 years, Social Security has honored its commitment to the American people to maintain the confidentiality of our records," said Jo Anne Barnhart, Commissioner of Social Security.  "Through hard work and dedication, we have earned a well-deserved reputation as an agency worthy of the confidence and trust of the American people."

To view the computer security report card, visit the House subcommittee website.
http://reform.house.gov/TIPRC/Hearings/EventSingle.aspx?EventID=652

President Gives Social Security Quality Recognition

When the President's 2003 Quality Awards were presented, Social Security had the distinct honor of receiving honorary mention in two of five categories---the only federal agency to do so.  The Quality Awards recognize the best management practices in government and correspond to the five areas of the President's Management Agenda:  Strategic Management of Human Capital, Competitive Sourcing, Improved Financial Performance, Expanded Electronic Government and Budget and Performance Recognition.  Social Security was recognized for its accomplishments in the areas of Improved Financial Performance and Strategic Management of Human Capital.  White House Chief of Staff Andrew Card, guest speaker at the award ceremony, said the agencies honored "are models and examples of public servants at work, and the quality, success, and progress of the President's Management Agenda at work."  For more information, visit the President's Management Agenda website.
http://www.results.gov/

Our Website Among Best in Government

Our website, Social Security Online, is ranked as the third best overall in government, up from sixth place last year.  This rating is courtesy of Brown University's annual report on state and federal e-government. The report states that our site includes useful information, a host of databases and statistics, foreign language translations, and hundreds of frequently asked questions arranged by category.  The Brown University report also mentions that our website offers 17 online services, including online applications for benefits and retirement planners.  And the website was praised for being accessible to people with disabilities and for having fun information, such as a kid's page and the most popular baby names.  See the full report below.
http://www.insidepolitics.org/egovt03us.html

Mom With HIV Uses Ticket to Work

After years of both health and personal tragedies, Veronica J. of Chicago has put her life back on track again.  In 1992, soon after the birth of her second child, events took a tragic turn.  She and her new son were diagnosed as HIV positive, and they began getting Supplemental Security Income disability benefits.  The baby died the following year, and in the years that followed, Veronica says she became a shell of the person she once had been.

As time passed, she missed working and the sense of accomplishment that it brought.  So the timing was perfect when she received her "Ticket to Work" in the mail from Social Security.  She used her ticket and now works 30 hours a week at a large retirement community as the administrative assistant to the human resources director.  "Getting back in the workforce has improved my economic situation, as well as my outlook on life," Veronica said.

To find out more about how the Ticket to Work is helping people with disabilities work, visit our Work Site.
http://www.socialsecurity.gov/work/

Interested in International Pension Reform?

The twentieth century pension systems of the world are on a collision course with twenty-first-century demographics.  Countries around the world -- including the United States -- are facing the challenges of global aging.  The International Update, our monthly online social insurance policy newsletter, tracks the course of international pension reform.  See the latest issue to learn how other countries are dealing with pension and social insurance issues.
http://www.socialsecurity.gov/policy/docs/progdesc/intl_update/2003-12/index.html

Get Your Kids Reading

Children and adults everywhere are celebrating the 100th year of Dr. Seuss -- the world's most renowned writer and illustrator of children's literature with more than 48 books published in 20 languages.  The author used lively language and fun characters to teach children to read -- and important lessons.  While we don't claim to have the knack for children's writing that Dr. Seuss had, we do have our own Kid's Page, with imaginative stories that teach kids the value of saving and why Social Security is important.  The stories on our site may be who-sized compared to Horton the Elephant and the Cat in the Hat, but we do have stories to tell that your kids will love.  As you partake in the Seuss-sentential, take a look at our Kid's Page.  You will find fun reading (with important lessons). http://www.socialsecurity.gov/kids/kids.htm
(thax Enews)

********************************************************
BRIDGES4KIDS DISABILITY NEWS
********************************************************
bridges4kids Video Review: Manners for the Real World: Basic Social Skills
Jackie Igafo-Te'o, Bridges4Kids, April 11, 2004
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEdbboDaTbafpLKt/

"We produced this video to show students from upper elementary through high school how to act during some of the most common interactions between people. It features clear, straightforward demonstrations of appropriate and inappropriate behavior -- and we added a dash of fun to keep those adolescent attention spans engaged." This video helps kids with disabilities and those who lack social skills learn to function in social settings.

Au Study to Investigate Effect of Spirituality, Social Support and Perceived Fairness of the Division of Household Labor on Parents Caring for Children with Disabilities
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEebboDaTbafpLKt/

The purpose of this Australian study is to gain a better insight into the lives of parents caring at home for a child with a disability. There is a dearth of studies investigating the impact on parents' well being in relation to raising a child with a disability. Those that have, focus their attention on the primary caregiver, usually the mother. Fathers also feel the effects (positive and negative) of raising a child with a disability and, as such, it is important that their experiences are also considered.

Rare Surgery Zaps Man's Tourette's Syndrome
Stephen Dyer, Akron Beacon Journal, April 2, 2004
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEfbboDaTbafpLKt/

When the electrodes first pulsed into his brain, the twitching stopped, the spasms ended, and, for the first time in years, 31-year-old Jeff Matovic was just another guy from Northeast Ohio who can once again shoot hoops with his brother. Awesome. That's Jeff Matovic's favorite word. And it's taken on a whole new meaning for him now that he can walk down the hall, drink from a glass and use a telephone without knocking himself in the head. [Free login/registration required to view this article.]

Future Horizon's Carol Gray Award Deadline April 15th
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEgbboDaTbafpLKt/

The deadline for the Carol Gray Award has been extended. Nominations are now being accepted for this award, which is for special education teachers who have made an outstanding contribution to the life of a child with Autism or Asperger's Syndrome.

Something To Crow About
Autism Society of Michigan, April 2004
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEhbboDaTbafpLKt/

The following are some of the great things that parents, siblings, grandparents and friends have said about their loved ones with autism. "I love to watch my dad with my son. There is an obvious grandpa/grandson bond between the two of them. I recently asked Kenny what he likes about his papa and he said, 'Well, he knows how to sleep good. And I think he knows Santa Claus.'"

Update: Playtime in Dearborn for Children with Autism

Due the growing popularity of this group, you must sign-up to attend (no walk-ins). Parents for a long time have been asking for group activities in the downriver area for their children with autism. This group exists so that families can get together on a regular basis to share ideas and experiences. It will be started as a ‘playgroup’ for children and parents but can develop into so much more. Siblings are also welcome to attend. Three Wyandotte schools teachers, who works with autistic children will facilitate. These playgroups are held every Tuesday evening from 6:00 pm-7:00 pm and are free of charge. For more information and for sign-up you may contact Michele Coffey (734-675-8583 or javabean48183@yahoo.com) or Elaine Jones (734-283-1759 or elaine1038@yahoo.com).

bridges4kids Featured Website: Project Life Saver
http://bridges4kidsnewsdigest.c.topica.com/maab8sxaa5XEibboDaTbafpLKt/

Project Lifesaver Protects Wandering Patients and Gives Peace of Mind to Families, Caregivers and Communities. Project Lifesaver is an innovative rapid response program aiding victims and families suffering from Alzheimer's disease and related disorders such as Down Syndrome and Autism. By forming partnerships with local law enforcement and public safety organizations, Project Lifesaver deploys specially trained teams with the most reliable technology available to locate and return wandering adults and children to their families and caregivers. Project Lifesaver's solution: A radio-wristband monitored by police and rescue squads. When someone is missing, the team is notified. They home in on the signal, usually finding the person within 20 minutes.

********************************************************
SALT RICHMOND WRAP-UP
********************************************************
We would appreciate it if you would help us publicize our annual SALT Richmond Wrap-Up in your parish 

Weekly Bulletin of April 25 and May 2nd

RICHMOND WRAP-UP—SALT (Social Action Linking Together) announces that the annual forum to learn what happened in the Richmond General Assembly is being held Saturday, May 8, 2004 from 9:00 –11:00 am at St. Charles Borromeo Catholic Church, 3304 North Washington Blvd., in Arlington.  The legislators from the northern Virginia districts will discuss the human services/social justice issues that came before the 2004 General Assembly session and answer questions posed by the participants.   This is an excellent opportunity to learn first-hand what transpired in Richmond.  There is no charge for the program. For more information, contact SALT Coordinator, John Horejsi, at jhorejsi@cox.net or for directions call St. Charles at (703) 527-5500.

********************************************************
SPECIAL NEEDS CHILDREN BEING OUTSOURCED TO MEXICO
********************************************************
Special-needs school rapped by state plans to close

By David Abel, Globe Staff, 4/13/2004

Amid state allegations that it did not create a safe environment for its students, the DeSisto School for emotionally troubled children yesterday announced that it would close its 26-year-old program in Stockbridge at the end of this academic year and send many of its students to a program it runs in Mexico.

Last month, officials from the state Office of Child Care Services told DeSisto administrators to suspend their admissions process. In a letter, state officials charged the school had "an environment that endangers the life, health, and safety of children enrolled."

Frank McNear, Desisto's executive director, said in a telephone interview yesterday that the school could not run properly without its customary admissions process.

"They did us grave financial damage when they closed our admissions," McNear said. "We can no longer fight this. They've been saying they want to close us, and they succeeded."

Blaming state officials, McNear said the school's enrollment has dropped in the past two years by more than half, to 30 students, 18 of whom are being sent to the school's program in San Miguel de Allende, Mexico. The rest will remain in Stockbridge until graduation on June 6.

State officials, however, said they did their best to keep the school running.

"We wanted the school to succeed," said Dick Powers, a spokesman for the Office of Child Care Services. "But rather than making the school safe, they're presumably packing their bags and going to Mexico. It's disappointing -- it's really a shame."

In a letter to DeSisto officials dated March 12, the Office of Child Care Services had chastised the Stockbridge school as having failed to protect residents with self-injurious behavior. State officials later said the school had failed to follow through on changes it promised in February. Last month, state officials said they were reviewing seven complaints against the school, including one regarding a student whose hand was injured when she was placed in restraints and another regarding a student who swallowed razor blades and was not immediately provided with hospital care.

McNear said the school, which costs students $71,000 a year in tuition and therapy expenses, plans to reopen a campus elsewhere in New England. "I promise you our program will reopen in another state -- without out-of-control bureaucrats," said McNear.

Some parents of former students applauded news that the school is closing.

"I'm glad it's finally over," said Amanda Rhael, who withdrew her son, Karl, from the school several years ago after she complained the staff was improperly trained. "There were people working there who weren't qualified to work with emotional children. A lot of problems ensued."

Other families, however, lamented the loss of a school that served such needy children.

"Any time a program closes, it could never be a good thing," said Andrea Watson, coordinator for Parents for Residential Reform, a project of the Federation for Children with Special Needs. "We always hope for the best. I'm not sure they have the same standards in Mexico as they have here, and that's concerning."

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**

++
========================================================
DAC News V4-#52   Tuesday, April 06, 2004   
========================================================
It's getting warm out so I'm going out to play.  In the mean time I'll leave you with some interesting news of interest and reminders of other events.  Enjoy your day:)

REMINDER

In our 1st story please read this.  For the last 18 months Virginian's Aligned Against Domestic Violence (VADV) and Global Org of Feminists with Disabilities (GO FWD) have been working together to develop a training curriculum for sexual assault and domestic violence service providers, shelters-etc and persons with disabilities, disability advocates service providers-etc on issues of domestic/caregiver abuse and inclusive program development in shelters.

Also, April 25th GO FWD will be heading a delegation in DC at the "March For Women's Lives." We will be a first to have a disability contingency marching in this type of demonstration. We will carry our own banner. You do not have to be a woman with a disability to join us. Anyone who wants to support the reproductive freedoms of women and in this case women with disabilities can join us -that means YOU!! :-)

Our 2nd story has much information and resources for your reading pleasure.

AND
Rural Housing Repair Loans and Grants
The Rural Housing Service (part of the U.S. Department of Agriculture) offers up to $7,500 to make dwellings accessible for household members with disabilities in rural areas. Find out how to apply at:
http://www.rurdev.usda.gov/rhs/sfh/brief_repairgrant.htm or call 202-720-4323.

NEXT
Advocates should keep the heat up against CMS regarding the wheelchair policy they ok'd and now have rescinded.  Let CMS hear from you today.  Read our 4th story.

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. VIRGINIANS AGAINST DOMESTIC VIOLENCE (VADV)
2. INFORMATION & RESOURCES
3. KIDS - TRICK THEM INTO LEARNING
4. KEEP PRESSURE ON CMS re POWER WHEELCHAIRS
5. MULTIFAMILY BUILDING CONFORMANCE W/FAIR HOUSING GUIDELINES
6. EFFECTIVE TREATMENT FOR AUTISM & BRAIN INJURIES - HBOT
7. VARIOUS NEWS OF INTEREST
========================================================
********************************************************
VIRGINIANS AGAINST DOMESTIC VIOLENCE (VADV)

********************************************************  

Virginians Against Domestic Violence (VADV)
Virginians Aligned Against Sexual Assault (VAASA)
Global Organization of Feminists with Disabilities (GoFWD)
Training for Disability Advocates and Service Providers


VADV, VAASA, and GoFWD are sponsoring regional basic trainings on violence against women with disabilities.  This effort is funded by a Violence Against Women Office in the US Department of Justice.

These trainings will be open to domestic violence and sexual assault advocates, disability service providers and advocates, and persons with disabilities.  There will be an opening session and closing session where all participants are together and then two sets of workshops specific to each population. 
 
The trainings will be 9:30 am - 4:30 pm:
March 30, Arlington
April 28, Abingdon
May 5, Petersburg
May 14, Weyers Cave (near Harrisonburg)
July 20, Eastern Shore

Cost:
$15 for Certified Domestic Violence Program staff; $20 VADV members; $25 for non-members (personal assistants & support service providers attending with a participant are free)

A description of the training is on the next page.  For more information go to www.vadv.org.

Outreach, Access, Sensitivity, Respect:
Providing Domestic Violence, Sexual Assault and Stalking Services to Women with Disabilities. Women with disabilities are victims of violence at 4-10 times that of women without disabilities, yet very few are accessing traditional domestic violence and sexual assault services for help.  Reasons for this may include that disability service providers are not familiar with the dynamics of domestic and sexual violence.  Violence against women advocates know little about disability issues.  Within our communities more could be done to develop sensitive outreach techniques; improve the accessibility of services; sensitively screen for history of violence and for accommodations needed; and respect the experiences and needs of women with disabilities who have experienced interpersonal violence.  These regional trainings will bring together disability services providers, people with disabilities and domestic violence/sexual assault service providers.  Disability service providers and people with disabilities will learn more about domestic violence, sexual assault and stalking dynamics and services, while domestic violence/sexual assault advocates will learn about disabilities, accessibility and culturally sensitive services.  These different disciplines will have opportunities to network with each other to build community-specific accessible, sensitive domestic violence/sexual assault services for women with disabilities.

Intended audience:
domestic violence & sexual assault victim advocates; people with disabilities; disability service providers; Centers for Independent Living; job coaches; CSB's; residential services & assistive living services; DSB's; disability advocacy groups; victim/witness staff; personal assistants and support service providers; paratransit drivers; assistive equipment distributors; physical therapists; anyone who works with women with disabilities

REGISTRATION FORM - VAWWD Training
Please check which training you are attending:
o April 28, Abingdon
o May 5, Petersburg
o May 14, Weyers Cave (near Harrisonburg)
o July 20, Eastern Shore

Name
Agency
Address
Address
City
State Zip
Email
Phone o Voice   o TTY    o Both
Fax
I am bringing an SSP or personal assistant.
Name (of SSP/PA):

For accommodations, please check all that apply:

All trainings will be wheelchair accessible and allow service animals.
o ASL interpretation o Close-vision interpretation
o Tactile interpretation o CART
o Assistive Listening Device(type:)
o Large-print o Braille
o Audiocassette o Disk
o Other

Make checks payable to VADV.  Payment is required by the day of the training.
Confirmation with directions will be either emailed or faxed to you.  If you do not have email or fax, we will send it in the mail.

Please mail your registration form and payment to:
Virginians Against Domestic Violence (VADV)
1010 N. Thompson St. Suite 202
Richmond VA 23230

OR Fax - 804-377-0339

Questions?
Contact Stacy Ruble at VADV
804-377-0335 v/tty
804-377-7330 tty only
coalition@tni.net

This project is supported by Grant #2002-FW-BX-0005 awarded by the Violence Against Women, Office of Justice Programs, US Department of Justice. Points of view in this document are those of the author and do not necessarily represent the official position or policies of the US Department of Justice.

********************************************************
INFORMATION & RESOURCES
********************************************************

INFORMATION & RESOURCES
NEWS

DISABILITY MATTERS WITH JOYCE BENDER: An international talk radio shows with real-time captioning focused on the employment and empowerment of people with disabilities. Hear prominent disability leaders senior executives from the private sector every Tuesday from 2:00pm - 3:00 pm Eastern Time on www.voiceamerica.com.

WHITE HOUSE RELEASES 2004 NEW FREEDOM INITIATIVE PROGRESS:  The President's New Freedom Initiative 2004 Progress Report is now on-line at the White House Web site and can be accessed directly at www.whitehouse.gov\nf2004

FABLEVISION UNVEILED FIRST DIGITAL “TALKING BOOK” TITLE MADE ACCESSIBLE WITH DAISY 2.02 TECHNOLOGY:
The City Garden, a children’s book donated by author/illustrator Peter H. Reynolds, is available through a free download at http://www.fablevision.com/services/projects/cast.html

SURVEY ON UNIVERSAL DESIGN:
Georgia Tech is currently running a survey on Universal Design.  The purpose of the data collection is to better understand user perceptions of accessibility features found in consumer products. The survey may be found at http://aef.gtri.gatech.edu/universal_design.html

GRANTS, SCHOLARSHIPS, INTERNSHIPS & OTHER FUNDING
OPPORTUNITIES


CALL FOR NOMINATIONS FOR THE PAUL G. HEARNE AWARD FOR DISABILITY RIGHTS.
The American Bar Association’s Commission on Mental & Physical Disability Law has extended its deadline to April 15 for this award that will be presented during the  ABA’s Annual Meeting in August 5-10, in Atlanta. Each year a $1000 cash award and a commemorative plaque is presented to an individual or an organization that has performed exemplary service in furthering the rights, dignity, and access to justice for people with disabilities.  Nominations are to be sent to Cathleen West, ABA Commission on Mental and Physical Disability Law, 740 15th St., NW, 9th Floor, Washington, DC 20005-1022, Westa@staff.abanet.org, 202-662-1573. You can obtain a copy of the nomination form at http://www.abanet.org/disability/

2004 DA VINCI AWARDS "CALL FOR NOMINATIONS" HONORING EXCEPTIONAL DESIGN AND ENGINEERING
: 
The da Vinci Awards™ recognize individuals, organizations and corporations in the engineering, construction and technical fields whose design innovations have exceeded legally mandated requirements, such as the Americans with Disabilities Act, to further empower people with disabilities. The nomination deadline is May 28, 2004.  For information, visit: http://www.esd.org/davinci/index.html

NEW INTERNSHIP PROGRAM FOR COLLEGE STUDENTS:
The Washington Center for Internships and Academic Seminars, through a partnership with the U.S. Department of Labor's Office of Disability Employment Policy, recently announced a new academic internship program for students with disabilities. Semester internships are in Congressional offices and federal agencies in Washington, D.C., and The Washington Center will arrange workshops, seminars, lectures, embassy visits and networking events.  For complete information, visit AAPD’s web site at http://www.aapd-dc.org/Internships/washintern.html, or contact JT Taransky at V/TTY: 202-457-0046 or aapdjt@aol.com. Applications are due June 14, 2004. 

ENTRY POINT! INTERNSHIP PROGRAM FOR COLLEGE STUDENTS WITH DISABILITIES:
A program of the American Association for the Advancement of Science (AAAS) offering summer internships and semester co-ops in major companies throughout the United States, including NASA, IBM, NIH, Texas Instruments, J.P. Morgan Chase. New for 2004 are internships at the National Institutes of Health (NIH). Open to students with disabilities majoring in life sciences, computer science, engineering, mathematics, and some social science and business fields. Qualifying students must: 1) be full-time undergraduate or graduate students, 2) be a Science, Math, Engineering, or Computer Science major (some opportunities available for business majors) 3) Have a B-average GPA  and 4) be a U.S. citizen. For more information, contact: Laureen Summers at (202) 326-6649, or Lsummers@aaas.org or visit http://www.entrypoint.org

YOUTH SERVICE AMERICA OPPORTUNITIES:
Visit YSA’s website for information on awards and grants for youth, youth with developmental disabilities, and organizations to participate in National Youth Service Day. www.ysa.org 

QUALITY OF LIFE GRANTS PROGRAM:
Sponsored by The Christopher Reeve Paralysis Foundation, provides grants to organizations for activities in twelve “quality of life” areas and for health promotion. Application deadlines are April 1 and October 1.  For details, go to http://www.christopherreeve.org/QLGrants/QLGrantsList.cfm?c=11

VSA arts PLAYWRIGHT DISCOVERY AWARD PROGRAM:
Challenges middle and high school students of all abilities to take a closer look at the world around them, examine how disability affects their lives and the lives of others, and express their views through the art of playwriting. Two scripts are selected by a distinguished panel of award-winning theater artists for professional production at The John F. Kennedy Center for the Performing Arts. Award recipients receive scholarship awards and a trip to Washington, D.C. to view the production.  Submission deadline is April 15.  For details, visit http://www.vsarts.org/programs/pdp/index.cfm

RURAL HOUSING REPAIR AND REHABILITATION LOANS & GRANTS:
The Rural Housing Service (part of the U.S. Department of Agriculture) offers up to $7,500 to make dwellings accessible for household members with a disability in rural areas.   Find out how to apply at http://www.rurdev.usda.gov/rhs/sfh/brief_repairgrant.htm or (202) 720-4323  


PUBLICATIONS & MEDIA RESOURCES & RELEASES


NEW COLLECTION OF DISABILITY ESSAYS
“Reflections from a Different Journey: What Adults with Disabilities Wish All Parents Knew” edited by Stanley D. Klein, Ph.D. and John D. Kemp with a foreword by Marlee Matlin.  Presents 40 stories by successful adults who grew up with disabilities. They provide insights into what it is like to persevere in the face of community prejudices, and what it takes for families and children with disabilities to work together toward fulfillment. Available from www.amazon.com

NEW PAS PUBLICATION: The Job Accommodation Network (JAN) has just completed a new Personal Assistance Services (PAS) in the Workplace publication.  It is available online at: http://www.jan.wvu.edu/media/PAS.html   

CONFERENCES, EVENTS, MEETINGS & COURSES

NCD MEETING AND FORUM ON NATIVE AMERICAN ISSUES:
The National Council on Disability (NCD) will conduct its next quarterly meeting Tuesday, April 13, 2004, 9:00 a.m.-12:00 p.m. at the Hyatt Regency Tamaya Resort and Spa, 1300 Tuyuna Trail, Santa Ana Pueblo, New Mexico. As part of the quarterly meeting, NCD will conduct a forum on issues relating to Native Americans with disabilities on Thursday, April 15, 2004, 9:00 a.m.-12:00 p.m. at the same location. These meetings are open to the public and free of charge. For more information, contact Mark Quigley at 202-272-2004 or 202-272-2074 TTY or mquigley@ncd.gov.  

NAGC ANNUAL CONFERENCE:
The National Association of Governors’ Committees on People with Disabilities will hold their annual training conference in Nashville from April 17 to April 19, 2004.  If you would like a copy of the announcement and the registration form, email me at Maggie@roffeenet.net.

BEST PRACTICES FOR SURVEYING PEOPLE WITH DISABILITIES: 

Sponsored by the Federal Interagency Committee on Disability Research. Capitol Hill Holiday Inn, Washington, DC, April 19-20.  For information contact David Keer, 202-205-5633, email David.Keer@ed.gov, Paul Placek, 301-458-4437, email PPlacek@cdc.gov,  or Juliana Cyril 404-498-3014, email JCyril@cdc.gov

EMPOWERING THE ADA COORDINATOR: 2004 NATIONAL ASSOCIATION OF ADA COORDINATORS CONFERENCE:
May 3 – 6 in Las Vegas, NV. This conference covers new and updated issues for ADA Coordinators, Section 501/504/508 Compliance Officers, Human Resources and Risk Management professionals, facilities planners, rehabilitation professionals, transit/transportation professionals. The conference is approved for MCLE, CRC, CCM, and CDMS continuing education units. For more information, call 800-722-4232 or visit http://janweb.icdi.wvu.edu/naadac/

COSD 5TH ANNUAL NATIONAL MEETING:
Motorola, Inc. will host Career Opportunities for Students with Disabilities’ annual meeting May 10 – 11, 2004 at its corporate headquarters in the Chicago, IL area.  Visit their website for details at www.cosdonline.org

NATIONAL COUNCIL ON INDEPENDENT LIVING WASHINGTON:
NCIL’s annual conference will be held at the Grand Hyatt, Washington, DC, June 9 - 12, 2004. For information, contact Natalie P. Shear and Associates at 202/833-4456 (V/TTY) Ext 102 or 800-833-1354 (V/TTY) Ext. 102 or ncil2004@nataliepshear.com.

2004 INTERNATIONAL VSA ARTS FESTIVAL: 

Sponsored by VSA Arts.  Washington, DC, June 9 -12. For information, visit www.vsarts.org

"TOOLS FOR LIFE: A 21ST CENTURY LOOK AT ASSISTIVE TECHNOLOGY AND SERVICES:”
An Expo and Conference showcasing products and services for persons with disabilities in Honolulu, Hawaii on July 9 -10, 2004. For additional information, go to www.hawaii.gov/health/dcab/

SECTION 508 TUTORIALS:
The Access Board has sponsored the development of a series of interactive web-based tutorials on different sections of the standards.  The courses will be part of the on-line "508 Universe" program which was developed by the Federal Information Technology Accessibility Initiative, an interagency partnership on the implementation of section 508.  For additional information, visit: www.access-board.gov 

FREE ONLINE DISABILITY CUSTOMER SERVICE TRAINING
:
This web-based course, self-paced course was developed for the staff of One-Stop centers, but should be easily adapted for customer service training in other sectors.  Registration is free and the course can be taken, complete or in part, at any time.  http://www.wiawebcourse.org

DBTAC ADA BASIC BUILDING BLOCKS: AN ONLINE COURSE ABOUT THE ADA: 
This introductory web course on the Americans with Disabilities Act of 1990 (ADA) explores the legal requirements and spirit of the ADA. The course content is self-paced and organized into 12 topics. Upon completion of the course, you may be eligible to earn a certificate and one CEU if you meet ALL established criteria. The course is free, however, there is a $50 CEU fee that must be paid to receive continuing education credit. To access the course, log on to http://www.adabasics.org

ACCESS E-LEARNING:
The Georgia Tech Research on Accessible Distance Education (GRADE) project, housed at the Center for Assistive Technology and Environmental Access (CATEA) at the Georgia Institute of Technology, College of Architecture, has a free, ten-module tutorial for faculty and others on accessible distance education for students with disabilities. For more information, visit  http://www.accesselearning.net/

********************************************************
KIDS - TRICK THEM INTO LEARNING
********************************************************
Trick Them Into Learning
See what our Math guide has to say about quick tips to learning the multiplication tables. Some great tricks!...read more

More Topics
Emotional and Behavior Disorders

Exceptionalities & Disabilities

Gifted Education

Individual Education Plan

Individuals with Disabilities Ed. Act

Exceptionalities and Disabilities

Checklists For LD

Gifted and In My Regular Classroom!
You'd be surprised to find out which students actually learn less in the regular classroom...........What can you do for these students? Project Based Learning! Find out how you can improve your instructional strategies to meet the needs of all students....read more

Dyslexia Treatment - Why So Costly?
This mom of a dyslexic child wants some answers. Why can't her child receive this revolutionary treatment that appears to work? She's calling for the 'education bosses' to help. More from the Online Evening Times (UK)....read more
(thax about.com)

********************************************************
KEEP PREASSURE ON CMS re POWER WHEELCHAIRS
********************************************************
"Keep up the Pressure on CMS re Power Wheelchairs!"

Henry Claypool of the Item Coalition 
hclaypool@halftheplanet.org writes:

During CMS's March 31, 2004 "Open Door Forum on the Medicare Power Mobility Benefit," an astonishing 657 people attempted to participate via conference call.   However, as the forum abruptly wrapped up that afternoon, not one of those 657 callers had been given the opportunity to speak, practically eliminating the consumer's voice from this "open" discussion.  Furthermore, CMS has continued to hold these forums in Baltimore, an inconvenient location for any Washington-based advocate, but especially for those advocates with disabilities.  We need to let CMS know that the Medicare power mobility benefit effects more than the manufacturers and that everyone deserves a voice in this debate about independence!  As we continue to fight for better access to wheelchairs through the Medicare program we need you to take action.  Please see the message below.


HELP US GET WASHINGTON TO FIX MEDICARE REGULATIONS ON
WHEELCHAIRS, SCOOTERS, AND SIMILAR DEVICES!


In December, 2003, as part of a new initiative to fight fraud in the Medicare wheelchair benefit, the Centers for Medicare and Medicaid Services (CMS) issued a "Policy Clarification" that severely limited access to wheelchairs and other mobility devices.  After months of fighting by individuals like you and organizations like the ITEM Coalition, the Policy Clarification was retracted in March, 2004.

HOWEVER, THE FIGHT IS NOT FINISHED.  Current Medicare regulations provide access to a mobility device only if needed for use in the four walls of a beneficiary's home and not if he or she needs it to fully participate in work, school, and the community outside of the home.  The regulations also only cover mobility devices for those beneficiaries who are "bed or chair confined," and not for those who can get out of bed but have limited mobility without a wheelchair, scooter or similar device.

We, with your help, are working to maintain momentum on this issue to ensure that Medicare's overly restrictive regulations are fixed.  PLEASE VISIT THE ITEM COALITION WEBSITE AT http://www.itemcoalition.org/takeaction.html TO TAKE ACTION ON THIS ISSUE. On this website, you can tell key policymakers to fix the Medicare regulations so that Americans with Medicare can have access to mobility devices they need to be healthy, independent and functional.

Thank you.
Henry Claypool
(thax jfa)

********************************************************
MULTIFAMILY BUILDING CONFORMANCE W/FAIR HOUSING GUIDELINES
********************************************************
From: HUD USER News

The "Fair Housing Accessibility Guidelines" (the Guidelines) were developed by HUD in 1991 to assist builders, architects, local government officials, and others in the building community to adequately meet the Fair Housing Act requirement that "covered multifamily dwellings" be designed and constructed to include certain features of accessible design. The Guidelines were developed to serve as a single, reliable source for information on compliance, and have quickly become the most commonly known and utilized guidelines in the industry.

A new report by HUD's Office of Policy Development & Research (PD&R) presents a quantitative assessment of the extent of conformance with the Guidelines, and presents a series of explanations for patterns of conformance and nonconformance. "Multifamily Building Conformance with the Fair Housing Accessibility Guidelines" also provides baseline estimates of compliance to support assessment of future technical assistance and enforcement efforts.

The study is descriptive in nature: it provides a statistical picture of multifamily conformance with the Guidelines from a broad national view. A survey, consisting of 291 questions about technical items relating to accessibility, was conducted at 397 multifamily housing projects. The survey included a review of site and building plans, on-site inspections of buildings, and tabulations of individual building evaluations to obtain detailed data on the degrees of conformance and nonconformance. The analysis of survey data also included follow-up discussions with 20 architects and builders who offered their perspectives on the reasons behind the types and extent of conformance and nonconformance.

Data were summarized in two ways:
(1) To calculate the percentage of surveyed dwelling units that were observed to be in conformance with each of the survey elements; and
(2) To construct summary scales or clusters of elements that showed similar patters of conformance.

Key study findings include:
(1) The percentage of conformance for individual items in the survey ranged from 33.2 percent to 100 percent for projects surveyed in the field, with the bulk of items
displaying conformance percentages in excess of 80 percent. Conformance percentages ranged from 24.1 percent to 100 percent for architectural plans.
(2) Of the 291 items included on the survey, 130 items showed conformance percentages of 95 percent and above for architectural plans for which they were applicable; 79 items showed conformance percentages of 95 percent and above for dwelling units and buildings in the field to which they were applicable. Overall, architectural plans showed slightly higher levels of conformance than did projects in the field.
(3) Conformance scores were uniformly high for Requirement 1 (Accessible Building Entrance on an Accessible Route); Requirement 2 (Accessible and Usable Public and Common Use Areas); Requirement 3 (Usable Doors); and Requirement 4 (Accessible Route Into and Through the Covered Unit).
(4) Conformance scores were somewhat lower for Requirement 5 (Light Switches, Electrical Outlets, Thermostats, and other Environmental Controls) and Requirement 7 (Usable Kitchens and Bathrooms).
(5) Conformance scores were lowest overall for Requirement 6 (Reinforced Walls for Grab Bars).
(6) Scores on the 16 composite conformance measures are generally similar for architectural plans and the projects built from them.

"Multifamily Building Conformance with the Fair Housing Accessibility Guidelines" is available on the Web at http://www.huduser.org/publications/fairhsg/multifamily.html
or in printed form for a nominal charge by calling HUD USER at 1-800-245-2691.
(thax S.)

********************************************************
EFFECTIVE TREATMENT FOR AUTISM & BRAIN INJURIES - HBOT
********************************************************
ANNOUNCEMENT! THE HEARING YOU HAVE BEEN WAITING FOR!!

Effective Treatment for Autism & Other Brain Injuries:  Hyperbaric Medicine & Beyond

Government Reform & Oversight Hearing --Subcommittee on Wellness & Human Rights

May 6, 2004, 2:00PM
2157 Rayburn House Office Building

With a Day on the Hill

Sponsored by the International Hyperbaric Medical Association

Key Announcement:  The IHMA Foundation will announce an IRB approved study that will begin the combination of two treatments that the parent community has found to be effective in treating their children - mercury detoxification and hyperbaric oxygen.

First Panel:
FDA
Department of Education

Second Panel:
Rashid Buttar, DO. Treatment for mercury poisoning. Results of a phase two trial of a transdermal (through the skin) chelator with autistic patients. Rashid will have his son there and about 6 other patients who have been treated with his technique.

Paul Harch, MD.  Treatment results from treating autistic children with hyperbaric oxygen (all of the patients from Louisiana in the first autism hearing were Dr. Harch's patients).

Ken Stoller, MD.  Treatment results for neurologically injured pediatric patients using hyperbaric oxygen. 

Julie Gordon.  MUMS Founder & Director (Mother's United for Moral Support).  Non profit support group for mothers of brain injured children will report on this from a Mother's perspective and how these therapies have benefited MUMS members.

Reception will be scheduled for parents and their children and others interested in hyperbaric medicine to meet with Mr. Burton.

Notify us if you plan to attend so we can get a large enough meeting place.

Send email to AnitaWDuncan@hotmail.com    More information will follow shortly.

********************************************************
VARIOUS NEWS OF INTEREST
********************************************************
New Study Links Childhood Television Viewing With ADD Feature Story
http://thecelebritycafe.com/features/1250.html

Brain could power artifical limbs 
http://news.bbc.co.uk/1/hi/health/3600611.stm

For People With Disabilities
http://www.nokey.com/fordisabled.html

Health care bill plays down race
http://www.nola.com/news/t-p/index.ssf?/base/news-1/1080638826292360.xml

Seeing-Eye Computer Guides Blind 
http://www.wired.com/news/gizmos/0,1452,62810,00.html

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#51   Friday, April 02, 2004   
========================================================
Notice to our Virginia Representatives (loosely put): You are about to set the state up for millions of dollars in lawsuits for your flagrant violation and failure to comply with the Supreme Courts decision concerning the Olmstead Act.  Please read this note now being sent across the state of Virginia and nationwide.

"The House proposed HB 5008, which provides funding for only one year, FY 2005.  HB 5008 contains no funding for any of the Olmstead initiatives.  In other words, the House has eliminated all of Governor Warner's proposed funding for the nine Olmstead initiatives--a loss of $42.5 million (all funds) for the biennium that would have provided services and supports to over 1800 Virginians."

As our so called representatives who are still unable to produce a state budget you cannot arbitrarily pitch out what the U.S. Supreme Court has mandated into law.  It's your obligation to correct this "unwise" decision before the state is inundated with lawsuits costing the taxpayers you pretend to represent even more money. Please note that Governor Warner's Olmstead proposal was already extremely modest in comparison to what is really needed in Virginia to fully comply with Olmstead. We request that you make changes about Olmstead post haste because as our legislative body you have the power to determine where and how to get the funding needed.  You might mess with the state budget but you certainly won't get away with messing with the Olmstead Decision.  Lets end this stalemate and produce a sensible budget.

NEXT
Remember that Caring Communities Inc. will be hosting two of the largest and most anticipated disabilities events in the Mid Atlantic Region! The WORLD OF POSSIBILITIES Disabilities Expos will be held at the Baltimore Convention Center June 25-27, 2004 in Baltimore, MD and at the Dulles Expo Center in Chantilly, VA October 22-24, 2004. There is still room for vendors so please visit their website at: http://www.caringcommunities.org for more information or for free expo passes.  Caring Communities phone number is 1 866 227-2644.  Please spread the word!  DAC has plenty of FREE passes for the Dulles Expo Center in Chantilly, VA and if you'd like some just send a "SELF ADDRESSED STAMPED ENVELOPE" and tell me how many passes you'd like.  These Expo's are great so try to attend.

AND
The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the United States.  Personal assistance services (PAS) refer to help provided to people with disabilities to assist them with tasks essential for daily living. To receive their newsletters and learn more go here: http://www.pascenter.org/about/

The March NCD Bulletin is now available at NCD's new Web site. http://www.ncd.gov/newsroom/bulletins/2004/b0304.htm

"DREDF Update on IDEA Reauthorization"
From the Disability Rights Education & Defense Fund preserveidea@dredf.org
News Briefing  #33   April 1, 2004
TO JOIN THE RRN: Visit www.dredf.org and complete our online subscription form.  Earlier Briefings can also be found on our website: www.dredf.org.  We now have nearly 4000 subscribers.

An interesting read: Bipolar disorder
http://www.mayoclinic.com/invoke.cfm?id=DS00356

Much more news so read, enjoy and comment if you wish:)

Keith-

~Read by millions nationwide~

========================================================
1. REQUEST FOR PROPOSALS - ACCESSING HIGHER GROUND
2. SURVEY - FOR PARENTS WHO HAVE/MAY HAVE KIDS IN GROUP HOMES
3. HHS OFFERS MORE INFO ON DRUG CARDS
4. APRIL 7TH, ATTEND, SUPPORT, CONTACT/MEET -- MiCASSA
5. FUNDS AVAILABLE FOR SPECIAL EDUCATION ADVISORY COUNCILS
6. DECREE TO NAME CHILDREN AS BENEFICIARIES UNENFORCEABLE
7. DISABLED ROLE MODEL KILLED
========================================================
********************************************************
REQUEST FOR PROPOSALS - ACCESSING HIGHER GROUND
********************************************************  
Request for Proposals -- Accessing Higher Ground

Assistive Technology and Accessible Media In Higher Education
November 9-12, 2004

University of Colorado, Boulder

Keynote Speaker:  Kathy Martinez
Deputy Director - World Institute on Disabilities

The University of Colorado at Boulder invites speaker proposals for its 7th annual Accessing Higher Ground Conference.   The conference will take place on the Boulder campus.  The conference focuses on the implementation and benefits of Assistive Technology in the university and college setting. Other topic areas include legal and policy issues, including ADA and 508 compliance, and making campus media and information resources, including Web pages and library resources, accessible.  Accepted out-of-state speakers will receive a 40% discount on conference fees; instate speakers will receive a 20% discount.

To see a list of past workshops, visit our conference page at the URL below.  A presenter application form is also available at the conference Web site.  Please mail, fax or e-mail the completed application to Disability Services at CU-Boulder by April 19 if you are interested in presenting.

Contact Information:
Disability Services: 303-492-8671 (v/tty)
e-mail: hkramer@colorado.edu
Conference URL: http//www.colorado.edu/ATconference

Howard Kramer
Assistive Technology Lab Coordinator
Disability Services
CU-Boulder, 107 UCB
Boulder, Co  80309
303-492-8672
(thax C.A.)

********************************************************
SURVEY - FOR PARENTS WHO HAVE/MAY HAVE KIDS IN GROUP HOMES
********************************************************
Dear Parent/Peer,

My name is Andrea Watson, I am the parent of three children one a former residential school student. I also am the founder of Parents for Residential Reform (PFRR) a project of the Federation for Children with Special Needs now celebrating our 30th year of Parents Helping Parents. 

I am writing to ask your participation in a survey that will be online on Friday, April 2, 2004 at http://www.pfrr.org after 8 AM this survey is for parents who presently have, have had, or anticipate a child going into residential/group home care.  Your participation in this survey will help us at PFRR to better serve parents and others who are or will be in similar situations as you and your family.  You can also access this survey by going to http://www.zoomerang.com/survey.zgi?p=WEB2EUXTQ4VB at any time.  The survey will be online for 10 days until April 12, 2004.  Please pass this information along to everyone and anyone you know that would be interested in taking the survey.  At any time if you would like to add personal information or your  own personal story please email that to us at pfrr@fcsn.org anytime.

I know first hand how hard it is to manage two homes when you have a child in an alternative placement such as a residential placement, I also know the difficult decision but yet loving decision in placing your child in an out of home placement as I have myself been there, I have walked in your shoe’s.  It is my passion to help others who are in the same situation.  By your participation we will be able to do so. 

If you do not have web access please call us at 1-800-672-7084 and we will mail you out a hard copy.  Or you can go to your local public library and take the survey there as well online as internet access is free in public libraries.

I thank you in advance for your participation.
Andrea

********************************************************
HHS OFFERS MORE INFO ON DRUG CARDS
********************************************************

HHS OFFERS MORE INFORMATION ABOUT MEDICARE-APPROVED DRUG DISCOUNT CARDS

New Tools For Choosing Medicare-Approved Discount Cards Available

HHS Secretary Tommy G. Thompson today announced that the Medicare program is offering help to beneficiaries in choosing among the Medicare-approved drug discount card that best meet their needs when they become available in May.

"Beneficiaries will have many options to choose from, and that means they will be able to select a plan that will truly serve them best," Secretary Thompson said.  "Medicare will be there helping them navigate their choices and find the one that's right for their own circumstances."

To begin the process of helping beneficiaries, HHS' Centers for Medicare & Medicaid Services today is expanding the Prescription Drug and Other Assistance Programs section of www.medicare.gov.  By answering a few questions, users can get customized results information about the Medicare-approved drug discount cards including the names of cards available to them, the enrollment fees and ways to contact the card programs.

Starting April 29, users will be able to compare drug prices and find out which pharmacies in their area accept the new Medicare-approved drug discount cards.

Other information available on the Web site includes links to new publications and related Web sites, text on understanding prescription drug coverage, and information on some ways to save on prescription drugs through generic alternatives and use of mail order pharmacies.

CMS is publishing a new four-page pamphlet describing the Medicare-approved drug discount card program and a new "Guide to Choosing a Medicare-Approved Drug Discount Card."  The free publications are available at: www.medicare.gov.  Both can also be ordered by calling 1-800-MEDICARE (1-800-633-4227).

While Medicare-approved sponsors have one more month to finalize their products, they are planning to offer 48 general drug discount cards, including 27 available nationally to all eligible Medicare beneficiaries. Thirty-six of the general cards will charge a fee of under $30 to enroll in a card, including five that will not charge a fee.

In addition, many Medicare Advantage health plans across the United States will offer Medicare-approved drug discount cards as an integral part of their benefit package for their Medicare enrollees.

"Beneficiaries will soon have important new opportunities to lower their drug costs, with at least 27 national cards to choose from, as well as others being offered regionally and by Medicare Advantage plans in their communities," Secretary Thompson said.  "The cards will provide discounts on the high cost of prescription drugs in just a few short months.  We are aggressively reaching out to our beneficiaries, to educate seniors about the valuable new program."

The new guide and Prescription Drug and Other Assistance Programs Web site describe the Medicare-approved discount card program, how to apply for a card and how the cards will work for people with Medicare.  In addition, the guide explains drug discounts, including the price differences between generic drugs and brand name drugs.  The guide and Web site also explains who can qualify for the $600 credit and how to apply for that assistance.

"In addition to providing a fundamentally new way for Medicare beneficiaries to find the best prices and the most help for their drug purchases, the Medicare Web site goes even further in helping low-income seniors and people with disabilities by including information about ways to save even more by using less expensive drugs, including generics," said CMS Administrator Mark B. McClellan, M.D., Ph.D.  "The updated Web site also lists other programs like state Medicaid plans, state pharmaceutical programs and discount programs offered by pharmaceutical manufacturers and the $600 credit available through the Medicare-approved discount drug card program."

The cards will provide a $600 annual credit to eligible low-income Medicare beneficiaries.  Individuals whose income this year is less than $12,569 or married couples whose income this year is less than $16,862 may qualify for this additional help.  Medicare will cover the cost of any enrollment fee for these low-income cardholders.  HHS will work aggressively to reach eligible low-income beneficiaries so they understand this new program, and can enroll quickly.

Along with information about prescription drug assistance programs generally, the information on the Web site will help people with Medicare locate the cards that will be offered in their area and their enrollment fees, if any.  At the end of April, this database will be expanded to include the discounted drug prices that each card sponsor will offer to Medicare beneficiaries.  Beginning May 3, seniors and people with disabilities covered under Medicare will be able to enroll in a card program, and begin to use the card on June 1.  Customer service representatives at 1-800-MEDICARE also will be able to answer questions about the program, help beneficiaries compare drug cards on price and network pharmacies, and refer callers to other appropriate resources such as their local State Health Insurance Assistance Programs (SHIPs).

HHS is reaching out to seniors and people living with disabilities who are covered by Medicare, to inform them of benefits available to them under the prescription drug card program. Those efforts are described below:

·       HHS will work with SHIPs to distribute educational material to
seniors to help them make choices.

·       HHS will continue its 1-800-MEDICARE advertising campaign to inform
Medicare beneficiaries about the discount cards and place an emphasis on
explaining the low-income benefit. The campaign will include television,
radio, newspaper and Internet advertising in both English and Spanish.

·       HHS will mail a short, overview pamphlet directly to every Medicare
household starting late next month.

·       The Social Security Administration will mail a separate letter to
Medicare beneficiaries with lower incomes, who are likely to be eligible for
the $600 credit.

The new Medicare drug discount card program fulfills the promise that was made last September by all members of the Congressional conference committee to provide this immediate relief to seniors from their high drug costs.

The program was included in the Medicare Prescription Drug, Improvement, and Modernization Act of 2003 as a means to provide seniors immediate assistance on prescription drug costs before the comprehensive Medicare drug benefit starts in 2006.  In addition to providing savings on prescription drugs, the new law also improves preventive benefits and enhances access to doctors and medical care for beneficiaries, especially those living in rural areas.

********************************************************
APRIL 7TH, ATTEND, SUPPORT, CONTACT/MEET -- MiCASSA
********************************************************
The Senate Finance Committee hearing on the Institutional Bias in long term care (MiCASSA, Money Follows the Person and more) is April 7th, 10:00 AM, Room 215, Dirkson Building, Washington, DC.

Here are ways YOU can help.

1) ATTEND the hearing!  Bring a friend!  Arrive at least an hour to 90 minutes early, space will be limited in the hearing room, although an overflow room will be provided.

2) If you can't attend, SUPPORT/sponsor someone's attendance, contact your local ADAPT (http://www.adapt.org/contlist.htm ), Center for IL (http://www.virtualcil.net/cils/ ) or self advocacy group.
3)  SEND the Senate Finance Committee your written testimony (doesn't need to be long). Just tell them why we need MiCASSA (S. 971) and Money Follows the Person (S 1394), and why we need to end the institutional bias; it can be your personal story or a short explanation of why you care.  Your statement should be typewritten, single-spaced, not exceeding 10 pages in length. Title (Money Follows Person) and date of the hearing (April 7, 2004), and your full name and address or your organization's must appear on the first page of the statement.   Statements must be received no later than TWO weeks following the conclusion of the hearing. Statements should be mailed to:

Senate Committee on Finance
Attn. Editorial and Document Section
Rm. SD-203
Dirksen Senate Office Bldg.
Washington, DC 20510-6200
http://finance.senate.gov/sitepages/hearings.htm

VERY IMPORTANT: Send ADAPT a copy at adapt@adapt.org or 1339 Lamar SQ DR #101 Austin, TX 78704   We can use these for the future, but only if we get a copy.  Also send your members of Congress a copy.

4) CONTACT your Senator and urge them to attend the hearing!  Show them folks from your state care and want him/her to attend.
5) MEET with your Senator ( http://www.vote-smart.org ) in your home state during the Senate's upcoming recess, which begins April 9, 2004.

SENATE FINANCE COMMITTEE, alpha by State

Senator Blanche Lincoln AR, 202/224-4843

Senator Jon Kyl AZ, 202/224-4521
Senator Bob Graham FL, 202/224-3041

Senator Charles Grassley (IA), Chairperson 202/224-3744
Senator Jim Bunning KY, 202/224-4343
Senator John Breaux LA, 202/224-4623
Senator John Kerry MA, 202/224-2742
Senator Olympia Snowe ME, 202/224-5344
Senator Trent Lott MS, 202/224-6253
Senator Max Baucus (MT), Ranking Minority Member 202/224-2651
Senator Kent Conrad ND, 202/224-2043
Senator Jeff Bingaman NM. 202/224-5521
Senator Don Nickles OK, 202/224-5754
Senator Gordon Smith OR, 202/224-3753
Senator Rick Santorum PA, 202/224-6324
Senator Thomas Daschle SD, 202/224-2321

Senator Bill Frist TN, 202/224-3344
Senator Orrin G Hatch UT, 202/224-5251

Senator Jim Jeffords VT, 202/224-5141
Senator John D Rockefeller WV, 202/224-6472
Senator Craig Thomas WY, 202/224-6441
(thax M.J.)

********************************************************
FUNDS AVAILABLE FOR SPECIAL EDUCATION ADVISORY COUNCILS
********************************************************

Funds Available


The Virginia Board for People with Disabilities is pleased to announce the availability of funds for an initiative to improve the effectiveness of local Special Education Advisory Committees (SEACs) in the Commonwealth.  The Board is making up to $100,000 available in its competitive grants program for this project.  

The Request for Proposal announcement “
Effectiveness Training for Local Special Education Advisory Committees” is available at: http://www.vaboard.org/Funds.htm. Additional information regarding applicant eligibility and proposal submissions can also be found on the Board’s website at http://www.vaboard.org/grants.htm  The Board’s Grants Administration Manual contains detailed instructions regarding proposal preparation and submission. Proposals for the SEAC initiative are due in the Board’s offices by 5 P.M. on June 8, 2004.

If you have any questions about this funding opportunity please feel free to contact Dr. Barbara J. Ettner, Staff, VBPD Education Committee (ettnerbj@vbpd.state.va.us) or Ms. Amy Wright, Grants Administrative Manager (wrightag@vpbd.state.va.us). 

March 31, 2004  

********************************************************
DECREE TO NAME CHILDREN AS BENEFICIARIES UNENFORCEABLE
********************************************************

Divorce Decree Requiring Parent to Name Children as Plan
Beneficiaries Unenforceable

Parker Harris, M.D., and Penny Harris were married in 1963. They had two children, Susan and Nancy. Dr. Harris was a physician and was employed by a professional association he set up. In 1992, the professional association maintained a pension plan known as the "Parker Harris, M.D., P.A. Money Purchase Pension Plan" that provided retirement benefits for its employees. Dr. Harris was a participant in the Plan, but Penny Harris was not.

Dr. Harris and Penny Harris divorced in July 1992. Their children, Susan and Nancy, were then 25 and 22 years old, respectively. As part of the personal property distribution agreed upon in the divorce, Dr. Harris consented to an immediate transfer to Mrs. Harris of one-half of his interest in, plus an additional $35,000 from, his Pension Plan. The transfer was formalized in a section of the judgment of divorce entitled "Qualified Domestic Relations Order" (QDRO) and took place upon the
finalization of the divorce.

A provision in the divorce settlement agreement pertaining to the division of personal property said: “The parties agree to leave their portion of the pension to the surviving children of this marriage. Nothing contained herein shall prevent each from using his or her pension otherwise in their lifetime.”

Dr. Harris married Linda Harris in 1995. He formed a new pension plan and rolled the money into the old plan into the new one and designated his new wife the sole beneficiary. Dr. Harris died in 2002.

His daughters sued to enforce the divorce settlement in which their father had agreed to leave his share of his qualified plan benefits to his surviving daughters. Their complaint asserted four counts: (1) breach of contract; (2) conversion; (3) fraudulent transfer; and (4) unjust enrichment. In addition to these counts, the daughters recited the equitable remedies of specific performance and constructive trust.

This is another case that arises under the Employees Retirement Income Security Act (ERISA), a federal law which governs retirement plans. One of the fundamental provisions in ERISA is that a participant in a qualified retirement plan, such as Dr. Harris, is prohibited from assigning his rights in the plan to someone else.

This prohibition on assignment and alienation of pension benefits extends to an assignment or alienation ordered pursuant to a “domestic relations order,” unless the domestic relations order is a “qualified domestic relations order” (QDRO).

A QDRO is a type of domestic relations order which creates or recognizes an alternate payee’s right to, or assigns to an alternate payee the right to, a portion of the benefits payable with respect to a participant under a qualified retirement plan. A domestic relations order, in turn, is any judgment, decree, or order that concerns the provision of child support, alimony payments, or marital property rights to a spouse, former spouse, child, or other dependent of a participant and is made pursuant to a State domestic relations law.

A domestic relations order must meet certain requirements to qualify as a QDRO. The court concluded that the agreement to name the daughters as beneficiaries was not a QDRO and was, therefore, unenforceable because of ERISA's prohibition on assignment of plan benefits. The agreement regarding the beneficiary designations was not contained in the portion of the divorce decree that was approved as a QDRO.

Noting that "the appropriate disposition of the pension plan benefits is determined by reference to the plan and ERISA's surviving spouse provision," the court declared that the second spouse was the lawful beneficiary of the plan and dismissed the daughters' claims.

Dr. Harris and his first wife may have made a thousand promises, all in good faith, to their children, that they would be named as designated beneficiaries of the pension plan, but under ERISA, in the absence of a QDRO, a plan beneficiary is determined by the plan documents itself.

MacKay v. Estate of Harris, February 25, 2004.
(thax Elderfax)

********************************************************
DISABLED ROLE MODEL KILLED
********************************************************
http://www.nypost.com/news/regionalnews/17845.htm

RADIO SHACK VICTIM'S TRAGIC LIFE
By SELIM ALGAR and CHRIS MICHAUD

GUNNED DOWN:
Brain-injured and partially paralyzed, murder victim Chris Gilardi held down two jobs, although he could have lived on disability.

Chris Gilardi could have lived off disability after a childhood brain injury left him partially paralyzed. But, determined to make it on his own, the Long Island man chose to work two full-time jobs - and that cost him his life.

On Monday night a trio of cowardly crooks invaded the Radio Shack on Sunrise Highway in Oakdale, where Gilardi worked as a clerk, and announced a holdup.

The manager fled out the back, but Gilardi, who had already put in a full day at a 7-Eleven, pressed a silent alarm.

Seconds later one of the masked thugs fired a shot into Gilardi's abdomen, killing him.

"This is unbelievable," said Michael Capuano, Gilardi's landlord.

"I have to go into his room now and see all his stuff. That was his entire life, his room. He was really proud of it," said Capuano of Gilardi's meticulously neat bedroom.

Gilardi, 30, suffered a brain injury in a childhood car accident. He had little use of his right arm and his right leg was very weak.

"He could have just taken the easy way out [by going on Social Security], but he wanted to be a regular member of society," Capuano said.

"He was determined to make it on his own."

Just days ago, Gilardi had been entrusted with the keys to the store and closing duties, something in which he took great pride, Capuano said.

Cops nabbed the suspects, who fled empty-handed, after a chase that ended when the driver lost control of his car.

All three, who have prior convictions for violent felonies, were charged with murder. Police withheld their names, because they're suspects in other robberies.

"Chris was an all-around good guy," said his friend, Vinnie Maione. "He had problems with his walking, but he never let it bother him. It's a shame he had to end like this."
(thax C.A.)

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#50   Monday, March 29, 2004   
========================================================
It appears that after all the excuses received by DAC about the abuse in New Jersey Group Homes last year now Governor James McGreevey is about to accept funds from one of those group homes that allegedly participated in the abuse.  What happened to the fines?  Where is the change?  I suppose the change ($) will be in the governors pocket.  Read our 1st story and see what the Family Alliance in NJ thinks about this turn of events.  I wonder if the FA has a lawyer with enough sass and brass to write a letter to the governor?:) We shall see....

Our 2nd story is a letter written by Delegate Benny Keister about the never-ending budget impasse we are still facing in Virginia.  I like Del. Keister's title "Swimming With Jellyfish" as it pretty much sums up the situation.

In our 3rd letter we have an offer for transportation assistance in Lynchburg, VA.  No excuses not to attend this EVENT now.

AND
Thousands of ADA Documents Online
ADA Document Portal:
http://www.adaportal.org/
More than 3,400 ADA documents on-line! Developed by a sister agency in Colorado Springs with funding from the National Institute on Disability and Rehabilitation Research. Includes the regs, technical assistance manuals, settlement agreements, opinion letters. It also offers documents on other disability rights laws like the Air Carriers Access Act. A great new resource.

NOTE
The DMAS Web address is changed to www.dmas.virginia.gov

NEXT
During April, the AARP is sponsoring 16 free seminars around Virginia to describe the new Medicare drug benefit.  This is a 2 1/2 hour program. Registration is required.  More information and locations can be found at:
http://community.aarp.org/n/mb/display.asp?webtag=rp-va&msg=32.1

GOOD NEWS SOURS FOR KIDS
A new edition of the Bridges4Kids NewsDigest has been published and is now available online at http://www.bridges4kids.org/newsdigest/3-29-04.html

Read about the proposed FEC restrictions that would severely restrict nonprofit advocacy in our 4th story.

LATE BREAKING NEWS
CMS is retracting their wheelchair policy -- Please read our last story #9 and see how you can help!

Thank you to all that contribute news and information for us to share.  You're what makes DAC the success it is.  Great job!

Much more news so read, enjoy and comment if you wish:)

Keith-

========================================================
1. ALL IS FORGIVEN?
2. SWIMMING WITH JELLYFISH
3. FEE ASSISTANCE FOR GLTC TRANSPORTATION LACIL EVENTS
4. FEC WORKING GROUP MATERIALS
5. NEWS LINKS OF INTEREST
6. CHEMO COULD HELP PEOPLE WITH MS
7. HEATH OFFERS OPPORTUNITIES FOR PWD's BEYOND HIGH SCHOOL
8. URGENT - HEARING ON INSTITUTIONAL BIAS
9. ACTION ALERT - CMS RETRACTS WHEELCHAIR POLICY
========================================================
********************************************************
ALL IS FORGIVEN?
********************************************************  

All is forgiven 

Danielle Gruskowski's family and friends offended by Governor's plans to attend Spectrum fundraiser

In October, 2003, Governor James McGreevey signed Danielle's Law, named in
memory of Danielle Gruskowski, a 32-year-old woman with Rett Syndrome who died when staff at her Edison group home ignored her extremely high fever.

At the signing ceremony, the Governor called the fact that no one called 911 for Danielle "unforgivable." Four months later, however, it seems that all is forgiven.

Spectrum for Living, Middlesex, has announced it will be holding a fundraiser on April 17, 2004 in honor of Governor McGreevey. The Governor's plans to appear at the event have not been well received by Danielle's family and friends, who are collecting signatures on a petition that asks Governor McGreevey not to attend Spectrum's fundraiser.

Danielle's mother, Diane Gruskowski, and her aunt, Robin Turner, are founding members of The Family Alliance to Stop Abuse and Neglect. We share their opinion that, by attending Spectrum for Living's fundraising event, the Governor gives the appearance of endorsing the facility whose irresponsible conduct led to Danielle's death.

We encourage our readers to support Robin and Diane by calling the Governor's office at (609) 292-6000 or sending an email from his web site using the link below to ask that he reconsider his plans to attend Spectrum for Living's April 17 fundraiser.
Go to this web page to send a message to the governor --
http://www.nj.gov/governor/govmail.html

Visit the Family Alliance to Stop Abuse and Neglect website
www.thefamilyalliance.net  for more information.

********************************************************
SWIMMING WITH JELLYFISH
********************************************************
March 26, 2004

FROM THE DELEGATE'S DESK
BY
DELEGATE BENNY KEISTER
SIXTH DISTRICT

Swimming With Jellyfish

For those of us who can recall our basic biology class from high school, we learned that jellyfish were living organisms without backbones.   Now if you have ever been swimming in water with jellyfish, you've probably been stung.  

That is what this budget fiasco is about to do to us-sting us big time!   I will attempt to explain, as best I can, what is involved here.

First of all, your taxes are going to go up- either at the state level or the local level or maybe even both.  The "why" of this is because revenues have dropped off and in order to provide the citizens with their expected services, the money has got to come from somewhere.  So you say…"can't we make cuts, stop waste?"  The answers are "YES" and we have done so.  That action coupled with the Rainy Day Fund support is what pulled the state through last year's expenses. 

"Can't we cut some more?" you reply.  My is answer is…probably, but not near enough to solve the problem and the backup savings, the Rainy Day Fund, is too low to be of much help.   That leaves us with the unenviable task of having to create more revenue either with taxes or fees (which are taxes just spelled differently), or doing both.

We have been working with three different vehicles to accomplish this.  None of the three are perfect, but they are a base from which to work.

The Governor, as required by law, presented his budget in December.   It is a combination tax increase/tax reform package.   He has suggested that we increase the sales tax by one cent, lower or eliminate the sales tax on food, raise the cigarette tax and raise the state income tax on all Virginia citizens who make $100,000 a year and more.   He also provides tax breaks for 65% to 70% of Virginia citizens.  The amazing thing is that this package also eliminates the "Death Tax" or estate tax (which I worked toward happening last year) and protects our AAA bond rating.

The Senate, on the other hand, has taken a more aggressive approach in the quest to solve Virginia's financial problems.  While the Senate's package is very similar to the Governor's proposals, it actually raises $1 billion dollars more in revenue.  It too, protects our excellent bond rating.

The House budget is completely different.  It has no tax hike per se, but does away with the sales tax exemptions that many business and industry enjoy in Virginia.

And herein lies the problem.

First of all, it would supposedly produce $531 million dollars in new money to apply to the budget and that is a cornerstone of the budget.  The Department of Taxation has disagreed with this assessment- it says that such a move would only produce half of that which would automatically leave over a $200 million dollar hole in the House budget with no way to fill it.

Secondly, and most important, it would not protect the AAA bond rating- our ability to borrow money for long-term projects or needs especially in the areas of education and transportation.

Third on the list, and of great importance- business and industry use the sales tax exemptions to do business in Virginia.   Part of this exemption dictates how many people they can employ.  If they start paying this money out in taxes, employment will suffer.  When production drops, so do profits.   When this happens, they will start looking at surrounding states that offer these exemptions or other countries with low cost labor and then they will pull up stakes and move.

A fourth consideration which seems pretty underhanded to me…the House bill raises the tax on utilities and the entertainment/advertising arena.  Now if you are not paying attention…guess what?  The utilities will pass the tax hike onto their consumers' bills and newspapers, advertising companies, even the media industry in this state will really begin to look elsewhere for "business friendly" states.  Think our economy might not take a hit if Northern Virginia giant AOL goes south- literally?

Some newspaper articles and TV news reports have suggested that Democrats in the House are unwilling to work with House Republicans to solve the budget crisis.  This is not so.  I for one, am most willing to make tough decisions about this state's fiscal stability, but I will not vote for any half-baked, poorly crafted proposals that do not protect our bond rating.

I am also not going to be a party to a budget that is easier to look at on the surface, but has no substance and causes even more headaches.  We must have the backbone to face the real underlying problem of low revenue and optimistic predictions that may or not lift us beyond bare survival and gets passed on each year to the next assembly.

We have used the Band-Aid* approach far too long and we can't even borrow our way out of the current financial situation without collateral.   We don't even have that backup any longer. Having a bankrupt budget like the state of California appeals to me even less.

We are looking at financial ruin in this Commonwealth if we are not strong or honest enough about what needs doing. 

So we are back to basic biology- do we as a legislative body continue to float around like spineless jellyfish?  Or do we get down to business and provide a budget that doesn't allow our roads, our schools, our security, our care for young and old alike slide even more every year.   My stand is to do the right thing here- if it takes a one-cent sales tax or adjustment to Virginia's antiquated income tax structure, then it must be done.

My congratulations to the Pulaski County Chamber of Commerce for an excellent business showcase this past week.  Candice Simmons and her crew along with some great local sponsors provided a public venue to show off the businesses in the area to each other, to our students, and to the general public. 

My guess is that the Road to Richmond will continue to be a traveled one, but I have certainly heard from people from all over the state.  Please continue to express your views….call at 540-994-0800 or e-mail at wbkeister@I-plus.net.  The address is PO Box 1023, Dublin, Virginia 24084.   You can also get your suggestions and opinions to all legislators through the general e-mail service at: ConstituentViewpoint@house.state.va.us

cc/state reps
cc/constituents
cc/dac network



On
Tuesday, April 6th at 7: p.m. Lynchburg City Council will have its annual budget hearing at Heritage High School. Persons with disabilities and other Lynchburg citizens are encouraged to attend this important meeting.

On
Friday, April 9th at 6:00 p.m. is the opening Hill Cats game at the new City Stadium. Persons with disabilities are encouraged to support our Hill Cats and their new stadium by attending this opening game. In addition to financial assistance toward GLTC transportation, LACIL is able to offer $2 tickets to this game to the first 25 persons with disabilities to call. Proceeds will be used to host a tailgate party at LACIL on Allegheny Avenue at 5 PM that evening.

For ore information about attending these events, please contact Dr. Rob Jarvis at LACIL at 528-4971

*Financial Assistance cosponsored by the Lynchburg Depressive Disorders Association a mental health support group

********************************************************
FEC WORKING GROUP MATERIALS
********************************************************
This message provides a summary of the efforts discussed at the FEC Working Group meeting held on March 24th at People For the American Way's offices to defeat proposed FEC rules that would severely restrict nonprofit advocacy. Please distribute this message widely to your networks of nonprofit groups, including but not limited to nonprofits operating as 501(c)(3), 501(c)(4), 501(c)(5), 501(c)(6), or 527 organizations.

SUMMARY OF OUR OBJECTIVE

On March 4, 2004, the FEC voted 5-1 to consider new rules that would have the effect of redefining many nonprofit groups as political committees, thereby forcing these groups to meet vastly more stringent financial and reporting requirements or to forego many of the advocacy and civic engagement activities at the core of their
missions.

The FEC Working Group believes that:

1) the proposed rules clearly exceed the FEC's authority;
2) the proposed rules attempt to impose limits on nonprofits' free
   speech rights that Congress and the Supreme Court have clearly
   rejected; and,
3) given the above, the proposed rules should not be considered in
   the middle of an election year and should only be considered by
   Congress, not the FEC.

Therefore, the FEC Working Group is determined to defeat the proposed FEC rule changes.

CAMPAIGN TIMELINE

March 31 - FEC Working Group will circulate comments to the FEC with
           specific instructions on how nonprofit groups may sign on.
           A sample e-mail alert to other nonprofit groups and to
           nonprofits' individual members will also be provided.

April 5, 9 a.m. - Deadline for nonprofit groups to sign on to FEC
                  comments (nonprofits signing on after this time
                  cannot testify at the FEC hearing).

April 14 and 15 - FEC hearing on proposed rules.

May 14 - Earliest FEC could issue final proposed rules.

WHAT YOU CAN DO RIGHT NOW

1) Notify other nonprofits of the FEC proposed rule changes and the
   efforts to defeat them.

   See the attached .pdfs or visit the link below for:
    - talking points
    - specific examples of how various nonprofit entities would be
      impacted
    - a copy of the comments to the FEC in February that were
      endorsed by over 500 organizations in opposition to an FEC
      Draft Advisory Opinion that also threatened nonprofit advocacy

    http://www.pfaw.org/pfaw/general/default.aspx?oId=14670

2) Send an organizational letter of opposition to Members of Congress
   and urge them to submit comments opposing the proposed rule
   changes to the FEC.

3) Send an e-mail alert to your individual members (if applicable)
   asking them to write the FEC. A sample grassroots alert will be
   sent shortly for you to distribute to your members.

4) Notify your members and/or affiliates in the metropolitan
   Washington, D.C., area of the April 14-15 FEC hearing and ask them
   to attend.
(thax pfaw)

********************************************************
NEWS LINKS OF INTEREST
********************************************************
New funding for Duchenne muscular dystrophy research in UK
http://www.medicalnewstoday.com/index.php?newsid=6892

Briefing to Congress on UN Disability Convention
http://releases.usnewswire.com/GetRelease.asp?id=132-03292004

Woman Steals Paraplegic's Van, Debit Card
http://www.kron4.com/Global/story.asp?S=1744618&nav=5D7lLsHh

voice4change.org ~ changing hearts and minds
http://www.voice4change.org/

Overprescribing Prompted Warning on Antidepressants
http://www.nytimes.com/2004/03/24/health/24DEPR.html?ex=1081124867&ei=1&en=3a48d9f51545bb74

Children with Disabilities Under No Child Left Behind (NCLB) Myths and Realities
http://www.educationnews.org/children-with-disabilities-under.htm

Health Sites With The Right Stuff
http://www.cbsnews.com/stories/2004/03/11/earlyshow/saturday/main605476.shtml

********************************************************
CHEMO COULD HELP PEOPLE WITH MS
********************************************************
Chemo could help people with MS
By JOANN LOVIGLIO
ASSOCIATED PRESS WRITER

PHILADELPHIA -- Doctors report promising results using huge doses of a potent chemotherapy drug to treat autoimmune diseases including multiple sclerosis, though only a handful of patients have been treated so far and one MS researcher said far more study is needed before any victory is declared.

The drug, cyclophosphamide, is given at such high doses that it destroys most or all of a patient's disease-fighting immune cells. 

However, the stem cells within the patient's bone marrow survive the drug's onslaught, the doctors say, and then are stimulated with other drugs to rebuild the immune system from scratch - but without the bad triggers that caused the body to attack its own cells.

"Once the immune cells are destroyed, they come back no longer recognizing the stimulus that brought them on," Dr. Isadore Brodsky, director of hematology and oncology at Drexel University's Hahnemann University Hospital, said Monday. "The immune system comes back naive, so it's tolerant of whatever trigger caused the autoimmune response."

So far, only six MS patients have completed the regimen, which is administered over three to five days, and the first patient finished it just six months ago. All had advanced cases of MS and had tried at least three other types of therapy, from steroids to immune-suppressing drugs, with no benefit, said Brodsky. He is developing the treatment with his son, Dr. Robert Brodsky of John Hopkins University.

The vice president for research with the National Multiple Sclerosis Society, Stephen Reingold, said the results are too preliminary to draw any conclusions.  "Any study that claims extraordinary benefits based on a short-term, uncontrolled study with a small number of patients has to be treated cautiously," Reingold said. "The big questions here are how long it lasts and whether it leaves you open for infections and other problems."

Autoimmune diseases typically are suppressed with drug interferon, steroids, radiation and other chemo drugs that stop reproduction of the confused cells that treat the body's own cells like they're foreign invaders.

Brodsky's work involves killing the misdirected immune cells, not merely suppressing them. He has used the drug since 1997 on more than 300 patients with autoimmune diseases of the blood, peripheral nervous and neuromuscular systems, and extended it to the handful of MS patients starting last fall.

Patient follow-up and more research is necessary but the initial results were "striking and unexpected," said Dr. Robert Schwartzman, a Hahnemann neurologist who has referred patients to Brodsky for treatment. Several of his patients who had cognitive problems, difficulty walking, or other coordination troubles have seen much of their symptoms disappear in as little as three to six weeks, Schwartzman said.

MS patient Terry Davis, 47, of Pennsville, N.J., said she underwent Brodsky's treatment in September after other therapies failed. She lost her hair, experienced severe nausea and had a "flare up" of her MS symptoms after the treatment, but those symptoms all have since subsided and she no longer needs a cane or walker to get around, she said.

"There are no words to describe how dramatically this treatment has affected the quality of my life, physically and mentally," she said. Results of the study, which was approved by the FDA, were presented at a symposium in Philadelphia last week.

********************************************************
HEATH OFFERS OPPORTUNITIES FOR PWD's BEYOND HIGH SCHOOL
********************************************************
Dear Colleague,

I am writing today from the HEATH Resource Center at The George Washington University in Washington, DC.  As you may know, HEATH is a national clearinghouse for information about postsecondary opportunities for individuals with disabilities who are pursuing education and vocational training beyond high school.

The purpose of my email is twofold.  First, I want to inform you that HEATH is embarking on a new and exciting initiative in collaboration with a number of other projects supported by the Office of Special Education and Rehabilitative Services (OSERS) to help improve the quality and quantity of postsecondary education programs serving students with intellectual disabilities.  As an initial step in this initiative, we would like to identify and survey existing 2-and 4-year colleges and universities throughout the country that are currently serving students with intellectual disabilities.

If you know of such programs HEATH would appreciate hearing from you.  I also encourage you to forward this email to your colleagues who may have the information that we are seeking.  Email program contact information to
askheath@heath.gwu.edu .  If you would like to receive updates on the progress of this new initiative, please email us at askheath@heath.gwu.edu  and we will add you to our mailing list.

The second purpose of this email is to make sure that you have the most current information about HEATH in your mailing list and databases: we moved in late 2001 and a few organizations still seem to be having difficulty finding us.

Our new contact information is:

GW HEATH Resource Center
2121 K Street, NW
Suite 220
Washington, DC 20037
(800) 544-3284 (V/TTY)
(202) 973-0904 (V/TTY)
(202) 973-0908 (Fax)
www.heath.gwu.edu
askheath@heath.gwu.edu

Please think of HEATH in the future if you have news to share or information that you might like us to pass along to our inquirers.  And, please add us to your mailing list to receive journals, publications, or newsletters that you prepare.  Don’t hesitate to contact me if you want to explore the possibly of collaborating with HEATH in any of your endeavors that enhance the lives and independence of adults with disabilities.

Thanks for taking a moment to update your records and staying in touch.  I look forward to hearing from you soon.

Warmest Regards.

Pamela M. Ekpone, Ed.D.
Director

Pamela M. Ekpone, Ed.D.
Director
The George Washington University HEATH Resource Center
2121 K Street NW, Suite 220
Washington, DC 20037
(202) 973-0906
(202) 973-0908 (FAX)

Donna Martinez, M.A.
Project Consultant
The George Washington University HEATH Resource Center
2121 K Street NW, Suite 220
Washington, DC 20037
(202) 973-0906
(202) 973-0908 (FAX)

********************************************************
URGENT - HEARING ON INSTITUTIONAL BIAS
********************************************************
The Senate Finance Committee is finally holding a hearing on ending the institutional bias. They have verbally agreed to include MiCASSA (S. 971) and Money Follows the Person (S. 1394).

IT IS CRITICAL that a large number of supporters, people with disabilities, advocates, family members, older people, friends, workers and others be there to show support for ending the insitutional bias.

A LARGE TURN OUT will show political support for our goals, and we can be sure that the other side will be turning out large numbers to oppose real choice.

The hearing will be WEDS., APRIL 7th at 10:00 am
Dirksen Senate Office Building, Room 215.

A LARGE TURN OUT will also help assure that their verbal commitments are kept, and the Senators understand the importance of this issue for people with disabilities.

SHARE A RIDE. GET UP EARLY. BRING A FRIEND. RAID YOUR PIGGY BANK. BUT WHATEVER YOU DO, GET THERE! MICASSA NEEDS YOU.

Free Our People!

For more information contact adapt@adapt.org or bkafka@juno.com or call
512/431-4085.

The ADAPT Community

********************************************************
ACTION ALERT - CMS RETRACTS WHEELCHAIR POLICY
********************************************************
"ACTION ALERT!!  Contact CMS about Wheelchair Policy"

The Center for Medicare and Medicaid Services (CMS) has issued and then retracted a policy that would limit access to power wheelchairs for people with Medicare.  But the exact status of the policy remains unclear.  Since Medicare sets the industry standard for wheelchair coverage, any actions taken by CMS will have a rippling effect.

CMS is hosting an open forum on Wednesday, March 31, at 2:00 PM Eastern for feedback regarding the power wheelchair benefit.  Below is information about what's been happening with respect to the policy and details about participating by phone or in person.

It is crucial that people with disabilities are represented in this open forum to help ensure that CMS makes its retraction real and that people with disabilities get the
coverage they need.

Jonathan Young
JFA Moderator, AAPD

================================

Jennifer Nordheimer jln@idi.net and Todd Main tmain@idi.net write:

We have learned the following:

1. CMS has no plans to issue a public press release about the retraction of the December 9th bulletin;

2. According to the DMERCS and CMS nothing has changed. "The coverage policy remains unchanged from when it was originally put into place in 1985.  CMS will continue to pay claims as it has prior to and following the issuance of the December 9, 2003."

It is clear that CMS issued the statement to the Hill about retracting the bulletin merely to take the pressure off. What concerns me is that folks on the Hill will see that CMS retracted the December bulletin and think that CMS responded to this issue and all is well. When clearly it is not!  Nothing has changed, in fact things seem more confusing and convoluted then ever. 

That is why is it SO IMPORTANT that we get as many people as possible to participate in Wednesday's Open Door Forum on this issue. It's great to have people on the phone but it is ESSENTIAL that we have people in Baltimore.  CMS needs to see the faces as well as hear the voices of those who care about this issue and those who are impacted by it.

We are glad to help arrange transportation. Please let us know if you can participate and what we can do to help you do so.   

Also please feel free to distribute this information.  We need to alert as many people as possible and encourage them to participate in the Open Door Forum on Wednesday, March 31st at 2:00pm in Baltimore.  [Information about the forum from CMS follows.]

Thanks,
Jennifer and Todd
Issue Dynamics Inc.
919 18th Street, NW
10th Floor
Washington, DC 20006
202-263-2936 (direct)
202-263-2962 (fax)
(thax jfa)

Update on the Medicare Power Wheelchair Benefit

When: Wednesday, March 31 2004 from 2PM to 3:30PM (EST)

There are 2 ways to participate in this Open Door Forum
Listening Session, (1) by phone or (2) "In-person".

1.) To participate by phone:
Dial:  1-800-837-1935  & Reference Conference ID:  6334600

Note: TTY Communications Relay Services are available for the Hearing Impaired.  For TTY services dial 7-1-1 or 1-800-855-2880 and for Internet Relay services click here: http://www.consumer.att.com/relay/which/index.html

A Relay Communications Assistant will help.

2.) To participate "In-person" at the CMS Single Site building in Baltimore, an RSVP is required. To RSVP, send your name along with the name of your organization to
HOMEHEALTH_HOSPICE_DMEODF-L.CO5.BALT5@cms.hhs.gov.  Please arrive no later than 1:30 PM.  Photo identification is required at security points.

ADDRESS:
CMS Single Site Building
Auditorium
7500 Security Boulevard
Baltimore, MD  21244
Map & Directions:
http://cmsnet.cms.hhs.gov/hpages/ocsq/cmsdirections-north.htm

ENCORE:  1-800-642-1687; Conf. ID# 6334600 "Encore" is a recording of this call that can be accessed by dialing 1-800-642-1687 and entering the Conf. ID beginning 2 hours after the call has ended.  The recording expires after 4 full days.

For Forum Schedule updates, Listserv registration and Frequently Asked Questions please visit our website at www.cms.hhs.gov/opendoor/

===============================
Comments and news of interest are always welcome.  Please feel free to use or disseminate the information in these newsletters however you want and while DAC likes to be recognized, do so only if you wish.  To subscribe (please enter state) or unsubscribe just hit reply with your wish.  Thank you.

Keith Kessler - Founder of DAC (disabled Action committee)
14405 Artery Ln#11
Dale City, VA 22193
703-878-1737
Email: DAC4VA@aol.com

Website:  http://members.aol.com/DAC4VA/main.htm 

**Some people grin and bear it.  Others smile and change it.**


++
========================================================
DAC News V4-#49   Tuesday, March 23, 2004   
========================================================
If you think our collective voices don't count you're wrong and better rethink your position.  Earlier CMS came out with a ridiculous ruling regarding wheelchair users and now they have rescinded their position.  Please read our 1st story: "Victory with CMS Wheelchair Policy" and learn what can and will happen when we s